FAQ - Multiple Sclerosis, Relapsing-Remitting
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Would you prefer having type 1 diabetes or having relapsing-remitting form of Multiple Sclerosis?

me and my bf are debating..LOL. what you think?

I would go with the M.S. because you can eat whatever you want, and people don't usually understand that it's not fatal, and its easily controlled as long as you carry a healthy life style (i.e. eating, sleeping, right and not stressing).

I suppose any disorder can be fatal if you don't take care of yourself, and yes diabetes can be fatal.

Can't really debate about the injections, because both conditions require injections.

Diabetes you can lose your vision, lose limbs if you don't take care of it. But M.S. you can get treatment for a relapse and your vision comes back.

The only way I'd personally rather have diabetes instead of M.S. relapse remitting is if I were a black male...such as Montel Williams. M.S. tends to be extremely aggressive in males particularly in black males.  (+ info)

Have u or any1 u know ever had relapsing-remitting Multiple Sclerosis that turned into progressive MS?

Patients beginning with RR-MS can then enter a phase where relapses are rare but more disability accumulates, and are said to have the Secondary-Progressive (SP) type of multiple sclerosis. About 50% of RR-MS patients will develop SP-MS within 10 years.

Here's a easy to understand article http://www.medicinenet.com/multiple_sclerosis/article.htm
I also like the "MS for Dummies" book. For me MS was the devil I knew since my mom and aunt have it. But the book was a good reference for my husband. Plus there were tips I hadn't heard of or thought about.

My mom, aunt and I all have RR-MS.  (+ info)

Re: Multiple Sclerosis - Have you or do you know someone w/ relapsing-remitting 15-20 years w/o progression?

yes. my girlfriend has had it for about 15 w/o.  (+ info)

my uncle has had multiple sclerosis for 3 years and he lives in Cuba, can I help?

He has relapsing remitting multiple sclerosis and he has to walk with a cane, and even then he has difficulty, he lives in Cuba and the usual treatment such as interferons and glatiramer aren't available. We try to help, his doctors presribed Prozac for depression and we've always sent it to him but it is clearly not designated for ms. I don't know what to do, is there anything that I can do to help him?

I too have had relapsing remitting MS for 10 years now and have been on the interferons for 9 years...There are lots of things he can do to help himself. The first massive one is to look at his diet...He must begin to treat the root cause of MS and not the symptoms and after extensive research and trying different thinks I am personally convinced that diet has everything to do with it. Our bodies have become too acidic due to the change in diet over the last 100 years and need to be balanced out again...Repair is possible and don't forget no matter where he is in the world the one thing he CAN control is his diet...Ultimately what he puts in his mouth is his decision..Take a look at my website for some more information on MS and Diet...There is a link to a book there that I know will help him...It will also give him a focus and great motivation...It did for me anyway...I'd be happy to talk with him if you think it would help...  (+ info)

Can women with Multiple Sclerosis donate eggs?

I have heard that men with MS may donate sperm - but I know blood banks will refuse those with the disease.
MS has never been proven genetic as of yet...
My MS is low grade Relapsing-Remitting and I do not even need to take medication for it.

no, it is not possible.  (+ info)

What does "relapsing-remitting" means in this small sentence?

He is a patient with Relapsing Remitting Multiple Sclerosis

Sometimes Multipule Sclerosis goes in to remission. A relapse is when it comes back. Remitting is when it comes back the same as it was before or a little better then before it was before it went in remisson.  (+ info)

Is it safe to say that people with Multiple sclerosis ; then will eventually die from it?

My mom was diagnosed with Multiple sclerosis but more specifically Relapsing-Remitting MS a few days ago and I hate to even think about her going through something like that and the suffering and what not but is this disease just going to bring her down to the point of being a vegetable and live the rest of her life suffering?

No you cannot die from MS, but it is possible to die from health problems relating to MS. It is hard, and it is important to be supportive of your Mum and keep her positive- make sure she still does things for herself, because in my opinion it will help her keep sane.

My mum has had MS for around 21 years although it is progressive rather than Relapsing but she was ill for around 15 years before she had to go in a wheelchair all the time. Even once she couldn't get around without a wheelchair she kept on living- we've gone bumping over ruins in egypt, taken little boats round greek islands...my dad was even going to take her up versuvius until a man stopped us because we'd need about 20 men.

Anyway, my point is the diagnosis is by no means a death sentence, and it shouldn't stop her doing anything- there is always a way around a problem, she says she wants to run a marathon and the only difference is she needs gloves instead of socks to stop the blistering. This way even if she does become very ill through connected health problems she will not regret anything in her life and she will know you were always there for her.

By the way check out www.mssociety.org.uk there's lots of information and stories about people with MS.

Good luck xxx  (+ info)

I was just recently diagnosed with remitting and reletting multiple sclerosis.?

I would like to know if anyone has any homepathic remedies for the symptoms of this disease. I have prescribtion pain meds from the Dr.,but these can be very easy to get addicted to, and I would rather try to deal with the symptoms anothet way than with the narcotics. Thanks ahead for any info given!

Have the same kind of MS and I use Avonex simply because it's 1 shot a week and about 30% of success to slow down the disease.

My follow up is quite impressive - I saw the neuro 2-3 times/yr, saw my family doctor 2x/ year ( Not for MS ) and I have a MS nurse for any questions at any time.

Best thing to me is to remain active despite my leg, the fatigue and my low endurance. I'm going at the gym with an adaptated program of exercise. That allows me to do gardening, swiming at home with my kids and party up to midnight with some preparations before.

Dont let MS controls your life because in a sense she's the boss. Listen to your body and do your normal things because MS has no remedies as of today. Like I said, I'm using interferons because small chances are there to slow down the decease.

Lastly, the worst thing to be wasnt the drug or the pain but all the emotions related to that. Remain active, this is the best way to avoid...depression.

:)  (+ info)

How deadly is multiple sclerosis?

i know all the facts but every where i go no one will give me a basic timeline of how long a person with Relapsing-Remitting MS,
Primary-Progressive MS, Secondary-Progressive MS, or Progressive-Relapsing MS, usually lives. i want a basic timeline for all. i dont want kindness just truth. how long??

Chicken, I have had MS for decades The World Health Organization and the Center for Disease Control do not categorize MS as fatal because people who have it live a normal or near normal life span. And most of us do not wind up in a wheel chair or severely disabled. I live a very normal life. I work, swim, lift weights at the gym and have a full social life. I also garden and walk my dogs a mile or two everyday. MS is not a fatal disease. You can go to the Multiple Sclerosis website and verify this for yourself. Or just call the 800 number which is listed on their website. At one time there were no therapies for MS. Now there are many medications that slow the progression of the disease as well as medications that treat the symptoms. The truth is that the majority of people with MS continue on with their lives and careers just as the rest of the population does. Many people unfortunately mix multiple sclerosis up with muscular dystrophy which is a very debilitating and deadly disease. The progressive form of MS can be very disabling over the course of decades. But not every case of MS becomes progressive and ones that do are not fatal. The disease in rare instances does result in fatal complications. Fatal complications are the exception and not the rule.  (+ info)

Multiple sclerosis?

I am 39 and 2 weeks ago I was diagnosed a disease Multiple sclerosis. At that moment my world collapsed because I am a teacher.I've been told that it is not progressive. Any advice how should behave in the future?

I was diagnosed with Relapsing and Remitting MS 18 months ago. In retrospect, I have had this for at least 20 years. Of course I had symptoms and exacerbations that I simply ignored (fatigue, numb hands & feet, was falling all the time, had vertigo, double vision, cognitive issues, constipation and bladder urgency) until I had a really horrific exacerbation where I had optic neuritis for 3 full months. My doctors (opthamologist and PCP) had been urging me for many years to see a neurologist but I was in SERIOUS denial. Ok, I am a busy mom, and business professional, I didn't have time to be sick! I guess I figured if I ignored it, it would go away. Wow, was I ever wrong. Of course I could no longer deny my illness when those bright spots/ lesions appeared on my MRI. I truly felt like I was dying.

I saw 3 different neurologists all who recommended I go on a medication that required daily injections. I was NOT willing to commit to that and decided to embark on fixing myself through diet, exercise and supplements. (Some of my keys to success are avoiding gluten, sugar, refined flours, I take natural vitamins from a health food store, not those nasty synthetic vitamins, I walk daily and do Yoga which is great for helping with spasticity.) I follow The Swank Diet, which has been in existence since the 1950's successfully offering an option for people with MS. http://www.swankmsdiet.com/

Today I feel better than I have in 20 years. People cannot believe how good I look and I feel even better.

I urge you to read as much as you can. There are many books on the market, there are great groups here on Yahoo with very knowledgable people, search the internet for other options. One great book I read recently was Montel Williams book "Living Well". Montel has MS and he is an inspiration to all of us with this stupid disease! http://search.barnesandnoble.com/Living-Well/Montel-Williams/e/9780451222930/?itm=1
Although you can't cure yourself, you can definately and dramatically improve your health. Just remember you are what you eat.

I also urge you to read all you can on Naltrexone. Given in low dosage form, the results have been very positive.
Naltrexone is a FDA approved medication and very inexpensive however your neurologist will not tell you about it. I got my prescription from my family doctor....my PCP.

Now the decision is yours, do you completely depend on western medicine? Do you go completely holistic with diet, supplements and such? Do you use a combination of them all? What ever you do, remember that MS is individual to each person but what ever you do, I know as an educator you will definately educate yourself on your options and make an informed decision in which route to take.

If you would like to talk about this and my approach, email me here.

Oh, and I'm no victim. I am alive and kickin and feisty as ever! I will NOT go softly into the night and you don't have to either! Please note, I do not claim to be cured, I'm NOT. However, I am remarkably better and better than my friends that inject themselves with the pharmaceutical cocktail.

Whether you think you can, or you think you can't.........you're right! You can overcome this! It's not easy but it's better than being a victim!  (+ info)

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