FAQ - Myelodysplastic Syndromes
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myelodysplastic syndromes?

myelodysplastic syndromes in kids? Can someone please shed a little light....... please

Here is the web site for the Myelodysplastic Syndromes Foundation. It contains a wealth of information relating to education, advocacy and research. Hope it helps a little. http://www.mds-foundation.org/  (+ info)

if you have myelodysplastic syndromes (RARS)does it mean you have leukaemia or that you will get it later?

my father in law has been told he has myelodysplstic syndrome and has been given a book the doctor outlined the part called Refractory anaemia with ring sideroblasts (RARS) but we want to know if it means he will get leukaemia later

He has leukaemia.  (+ info)

What is the difference between Myelodysplastic syndrome and chronic myeloid leukemia?

Myelodysplastic syndromes are bone marrow stem cell disorders that cause inefficient blood production. CML is unregulated growth of myeloid cells in the bone marrow and the accumulation of these cells in the blood. It is also a marrow stem cell disorder.  (+ info)

What are the marrow feature in myelodysplastic syndrome?

What are the abnormalities?


marrow cellularity is ussually increased but occasionally may be normal or hypoplastic. When there appears to decreased cellularity., there are islands of abnormal appearing cells, which are often atypical megakaryosites. The erythroid series is usually hyperplastic with megaloblast and apparent nuclear cytoplasmic maturation abnormalities. There are nuclear fragments in stippled erythroblast with poorly hemoglobinized cells. On staining for iron with prussian blue, an increase in macrophage iron is usually found. Moreover importantly, increased number of erythroblast that contain siderosomes (cytoplastic ferritin containing vacuoles), are referred as abnormal sideroblast. Ringed sideroblast, mitocondrial iron aggregated around the nucleus in a ring shape, are common in acquired refractory anemia. Granulocytic hyperplasia also found, so do hypogranulation, pelger huet, megakaryocytes, micromegakaryocytes, increased blast and increased other white cell precursors  (+ info)

Has anyone received Aranesp injections for anemia or myelodysplastic syndrome?

What side effects did you experience? Were they bad? PLEASE answer my question if you can! Just diagnosed with myeloblastic syndrome and SCARED!

I've had it after chemo treatments made my counts drop...
It wasn't too bad...kinda stings when they inject you....I had sort of a weird side effect...I got muscle spasms...my hands cramped up and got these weird "catches" in my sides....we know it was from the drug, because of the time frame between the chemo treatment and the injection....
I always get weird side effects....just my luck!
Good luck with your treatments!!!  (+ info)

Does anyone know the life expectancy of someone with Myelodysplastic Syndrome?

My mother has had the disease for five years and has been doing great with her treatment, however she was just informed that her last blood test was not good.

There are no "set in stone" survival statistics. Women generally do better than men. What you want to be doing is watching the trend in her test results rather than placing too much emphasis on any single exam results.


good luck to you both  (+ info)

What are the peripheral blood smear clues for myelodysplastic syndrome?


Since MDS is a disorder of myeloid stem cell, there are frequently abnormalities in all three cell lines pn peripheral blood smears. The hallmark is macrocytic red cells, with second population of hypochromic and coarsely stippled ones. basophilic stippling, howell jolly bodies, immature white cells that normally not in circulation, pelger huet with bilobed / ring shaped nuclei, decreased/ absent of cytoplasmic granules, abnormal number of platelet, poorly granulated platelet or circulating fragment of megakaryocytes are found. Abnormalities in more than one cell are highly suggestive for MDS, especially in absence of peripheral circulating blast.  (+ info)

Anyone else out there with myelodysplastic syndrome facing a bone marrow transplant?

I am actually a leukemia patient, but I have been through the transplant. Feel free to contact me if you wish. Also check out these sites
http://www.bmtinfonet.org/services.html  (+ info)

Is there a link between myelodysplastic syndrome and having a genetic predisposition to develop colon cancer?

Not that I see listed, however there is a predisposition to develop acute myeloid leukemia. I don't know whether this is a genetic predisposition or whether it is just a change in MDS for the worse.

http://www.emedicine.com/ped/topic1526.htm  (+ info)

Besides chemo, how can I treat Myelodysplastic Syndrome?

Bone marrow tests showed low platelets, and blood cells dying before they reach maturty, but very low blast cells.

here are some links to MDS and clinical trials and bone marrow transplant (if that applies )

Myelodysplastic syndrome

http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Myelodysplastic%20Syndromes (NORD…scroll down for support organizations)
http://www.aamds.org/aplastic/ (aplastic anemia and MDS organization)
http://www.aplastic.org/aplastic/disease_information/about_the_diseases/meylodsyplastic_synd.php (about MDS and MDS drugs)
http://www.aplastic.org/aplastic/disease_information/drug_information/mds_treatments.php (drugs for MDS)
http://www.aplastic.org/aplastic/disease_information/drug_information/erythropoietin_infor.php (FDA warning on erythropoetin stimulating drugs..epogen, aransep, procrit..can cause increased tumor growth and heart attack in cancer patients with anemia)
http://www.aplastic.org/aplastic/patient_clinical_tri/mds_trials/ (MDS clinical trials)
http://www.clinicaltrials.gov/ct/search;jsessionid=AFE75BA6B68795A36460CF53DC8EE7C1?term=myelodysplastic+syndrome&submit=Search (MDS clinical trials…hit map to find local trials..don’t forget to turn pages to see all trials)
http://www.cancer.gov/Templates/doc.aspx?viewid=7C5CCBC9-ADAD-4683-8448-E705FB912971&ReqUrl=%2Fclinicaltrials%2Fsearch (national cancer institute clinical trials…find myelodysplatic anemia and chose de novo-newly diagnosed or previously treated and go from there)
http://patientrecruitment.nhlbi.nih.gov/MDS.aspx (patient recruitment for MDS clinical trials and studies at the National Heart Lung and Blood Institute)
http://www.bu.edu/prs/mds/ (Slone patient registry for MDS)

Bone marrow transplants
http://www.nbmtlink.org/ (National Bone Marrow Transplant link)
http://www.marrow.org/ (National Bone Marrow Donor link)
http://www.marrow.org/PATIENT/Undrstnd_Disease_Treat/Lrn_about_Disease/ALL/index.html (National Bone Marrow Donor program…acute lymphoblastic leukemia)
http://www.marrow.org/ABOUT/Connecting_Patients_w_Donors/The_Registry/index.html (about the National Bone Marrow Donor program)
http://www.marrow.org/PATIENT/Undrstnd_Disease_Treat/Undrstnd_Treat_Opt/Lrn_Clinical_Trials/Find_Trial/index.html (clinical trials by type)
https://web.emmes.com/study/bmt/ (Bone Marrow Transplant clinical network)
http://www.marrow.org/PATIENT/Plan_for_Tx/Planning_for_Tx_Costs/Financial_Assistance_for_Trans/index.html (financial assistance for bone marrow transplant patients..ie leukemia,etc)

3 books on disease symptoms and treatments

you could also get these books on ebay or amazon or a half price book store. (last two are very similar)..
1.Oxford Handbook of Clinical Medicine
2.Handbook of Diseases (Lippencott)
3.Professional Guide to Diseases (Springhouse)  (+ info)

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