FAQ - Optic Nerve Neoplasms
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I'm a 13 year old and blind in my left eye due to incomplete developing of my optic nerve?


Will my children be vulnerable to blindness? I know it's nothing I need to worry about now but it saddens me sometimes to think about it. I know I won't be able to drive a plane but that's the least of my worries. Please only give useful information. No stupid answers. Thanks. -hannah
well i was about a month premature, so i dont know if that helps any...
even less than a month.
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This is the same condition my bestie has :O

anyway, I think this depends on the source it all. Were you a premature baby? If so, then you should worry about your future child. If's it's genetic then the likelihood of this condition is higher. What about your mother's pregnancy when she had you? was she exposed to anything like cigarettes, radiation etc anything that can damage genetic cells? (remember to star clear from stuff like that hun.)

I hope I have helped you...:)  (+ info)

I was told that I have a freckle on my optic nerve and it is rare to have it there. Should I worry?


I was given the information by my optamologist, I am going in to have my eye photographed tomorrow. I see that having freckles on your retina or eye is common but on the optic nerve?
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Seek an opinion of an Opthamologist or Opthalmic Surgeon. I think you may have gotten the information from such an professional, but just in case...

It could be nothing or it could be serious. Seek professional opinion and guidance. This question cannot be satisfactorily answered on this forum.  (+ info)

Anyone with an older child with an optic nerve coloboma?


I have a 3 year old with a lazy eye and an optic nerve coloboma in her left eye. We've had her vision tested and it looks good now. She doesn't have peripheral vision in that eye, but it doesn't seem to effect her. I'm wondering if anyone has any older children (10+ years ) that have this same condition and if so, if they are having any vision issues. I know that every kid is different, I'd just like a general idea of things to expect in the future.
Thanks!!!
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I am 24 and I was diagnosed with optic nerve coloboma when I was 3. It has a little affect on my sight, I am 20/40 in my right eye and was told that it was probably as good as it gets with my vision having that. My periphail vision is very weak but it has not stopped me from playing sports, getting a driver's license, or working. To be honest I never even knew I had anything wrong til I was in the third grade when I got glasses. Just keep an eye on it and have pictures taken every few years of that eye to make sure there is no change. I just had new pics of my eye and the only thing that they have found new is some arterial sheething and stretching of my macular. Other than having poor periphail vision, nearsightedness and an astigmatism i see fine with the help of glasses or contacts. Hope this helps.  (+ info)

is there a way i can start a foundation 4 my 9mnth old babygirl cuz she diagnosed with optic nerve hypoplasia?


this means she is unable to focus and see normally because she has real little nerves.
and i want to kno if there a foundation to help me raise money for surgery
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There is a lot of funds and grants out there from many different charities. you could try asking at the hospital or your doctors. also try social services as they often have infomation about these places. You could do some fund rasing your self and local churchs are normally willing to help set up these kind of things. take care good luck to you both  (+ info)

How much damage can the optic nerve sustain and still be repairable?


It depends on what you mean by "damage" to the optic nerve. Generally any damage to the optic nerve is not repairable  (+ info)

i have a brain tumour growing on my optic nerve , what are the treatments available ?


this is a second tumour ,the first removed 5 years ago (size of an orange) therefore their is existing scar tissue present ,doctors in uk hesitant to operate again as dangerous to remove with normal surgery.
what are my options .other countries use proton surgery etc .does anyone have any information for me ?
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The UK funds proton beam in certain cirumstances.

The second tumor may need debulking to be small enough to irradiate. Look for a skull base speciality surgeon.  (+ info)

I cant see from my right eye as I suffered Optic nerve damage 15 years ago, can it be cured by surgery?


Vision in my affected eye could only be recovered to 5-10% after the accident in which I lost the vision. My other eye's vision is normal.
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With our current technology it is, unfortunately, not possible to return vision that has been lost by damage to the optic nerve. This is because the optic nerve is central nervous system tissue and we do not now have the ability to regenerate central nervous system tissue.  (+ info)

My sister just went to the opticians and was told she had rapid optic nerve deterioration?


she barely drinks anything, so this was told as a major cause.
other than drinking ALOT of water, what can she do?
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Optic nerve damage

Papilledema, the swelling of the optic nerve, can result from increased intracranial pressure or optic nerve deterioration (optic neuropathy). Inflammation, lack of adequate blood supply to the optic nerve, and certain diseases such as multiple sclerosis can cause the optic nerve to deteriorate. A brain tumor, bleeding or blood clots in the brain, brain swelling due to encephalitis or trauma, or a blockage in cerebrospinal fluid circulation can cause an increase in pressure inside the skull (intracranial pressure). The condition is often life threatening, and correct diagnosis of papilledema is important.


Papilledema arising from increased intracranial pressure is often accompanied by other symptoms, including diplopia, nausea, headache, and reduction of the visual field. When diagnosing papilledema, the physician looks for swelling of the optic disc (the area where the optic nerve enters the eye). The early signs include slight changes in appearance of the edge of neural tissue. Later, the disc rises from the retinal surface and can appear pale or can show signs of hemorrhages in severe cases. Persistent, chronic papilledema can cause atrophy of the optic nerve head and result in blindness

The optic nerve can also be damaged by increased intraocular pressure (IOP) as in glaucoma. The pressure develops in aqueous area of the eye and is transmitted to the back of the eye, causing an initial reduction in peripheral vision and leading eventually to blindness. Glaucoma is often a complication arising from diabetes.

it is very important to have regular eye examinations in order to detect and prevent optic nerve damage. In some cases when a person has acute glaucoma, a series of diagnostic tests is unnecessary. In such an instance, a doctor can immediately detect the presence of glaucoma if the pupil is non-reactive (it doesn't adjust to differing frequencies of light) or if the eye feels hard to the touch. In most cases, however, a routine diagnostic examination includes:


While glaucoma typically cannot be prevented, if it is detected early enough, its development can be slowed. As damaged optic nerves cannot be repaired, the loss of vision is permanent. That is why treatment focuses on preventing continued vision impairment rather than regaining lost vision. A major part of treatment consists of reducing and regulating intraocular pressure so that any blockages in the drainage system of the eye or of the trabecular mesh can be removed. Controlling IOP is done with medications or surgery, depending on what form of glaucoma the person has.  (+ info)

whats the process in releiving pressure on the optic nerve?


i know somebody thats gonna have surgery on tuesday, can anything bad happen. is there anything he can do right now to help?
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How many of you have Optic Nerve Damage & find it stressful to go out in Public?


I have it in one eye & am constantly juggling with 2 different perspectives & find judging how near people are to me a real hassle!
This is not a "Poor Me!" statement, I just want someone else's story, as it feels like I'm the only one on the Planet with this problem!!
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Ok, you found one! In 1994, waking down the corridor in my house,
the lights were off in the corridor and on in the room ahead. All of
a sudden the lights seemed to go off in my left eye. Well, next day
I had to travel 400 miles by car and had forgotten of the mishap,
but when I got up expecting to see again, nothing registered in my
my left eye, so I decided to take the bus. Went off for one week,
each morning expecting to be able to see again.

Upon my return I visited my doctor who outrightly told me that it
was an idiotic thing to do, travel in my condition. He examined me
carefully and said there was very little hope of recovery. A small
vein had ruptured and the eye was full of clotted blood. He said
the the only hope would be to inject myself subcutaneously with
a blood thinner and hope for the best, which I did. After the month
was over, I returned to the MD and the test revealed that I was
totally blind of one eye!

So it became a physical problem since I was bumping into people
on my left side, tripping on objects and so on. From then on, I
began to educate myself to a new way living. I have blue eyes
and my one big worry was that the eye should turn into a white
"dead fish" appearance. Well, it did not. My only loss was the
sense of perspective. But my MD did tell me that the right eye
was subject to the same problem since the veins were just as
fragile and I suffered from a very high blood pressure.

So off I went to the cardiologist and have been medicated since
the misfortune. The best he could was to bring it down to 15/10,
which still is on the high side. I have had several similar popped
veins. Fortunately all in my left eye since the first bout.

Today, my only problem is to exercise my eyelid to keep it looking
normal. And normal it is. My cautions are not to drink nor smoke,
or take any exercise which may increase my blood pressure.

I have learned to live my life back to normal and my only
restriction is driving. Nobody ever has noticed my shortcomings
and I feel perfectly normal and happy at all occasions. Only
spillover problem remains to be an unusually high blood pressure,
which is carefully controlled and monitored.

So, I am sorry for the lengthy tale but I only wish to let you know
that you will be living a perfectly normal and happy life with no
regrets. PS. did you know that Gordon Brown (chancellor) has
one glass eye resulting from a rugby match accident? If we can
do it, so can you. Only make sure that you don‘t spill the sugar
on the table when trying to get it into the coffee or tea cup. This
is my only problem today. I wish you well pal, you are not alone!
Iain Ritchie.  (+ info)

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