FAQ - Paraneoplastic Cerebellar Degeneration
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I have cerebellar Degeneration What does that mean & Is it bad?

I'v had it for about 10 years now, im in a wheelchair, It made me worse by time to time. Im just wondering if the condition is bad? When i say 'BAD" I mean cause of death?

I am so sorry to say that, anything degenerative in your brain is bad. It really can cause death since it affects your brain. Don't lose hope, just pray and God can do miracles. You should also ask you doctor about the most possible way to somewhat delay the process if not stop. Good luck. ♥☺♥  (+ info)

What is alcohol cerebellar degeneration?

Its when you start forgetting about alot of sh!t  (+ info)

Stem Cells can be used to treat Cerebellar degeneration ..is that true ?

we have a patient from Egypt who has a problems in balance , movement and speak due to cerebellar degeneration , we heard that stem cells are now injected inside patient body to recover the cerebellum

we want to know where is a trusted place to go for that

To be clear, there has been 30 years worth of stem cell treatment using bone stem cells and repairing bones. With a lot of controversy, embryonic stem cells and the related research were thought to be the answer to many medical problems. But now we know that adult stem cells, indeed our own stem cells (without the controversy) can be as useful as embryonic stem cells. Some treatments are close to release, but most are a long way away.

There are some biotech companies (listed in the first link) that may be able to help, or redirect you to a better source.

For further info, try these sites/articles:



http://www.sciencedaily.com/releases/2007/03/070314153123.htm  (+ info)

how or where can we get a spino cerebellar degeneration disease? what are this symptoms? how to avoid this?

i hope theres an answer about this, thanks.

god bless you!!

I think there are about 30 different types of Spinal Cerebellar Atrophy. Something like the first 22 types (they are labelled SCA 1, SCA2...) are genetic, that is they are inherited from your parents. Some are thought to come about from exposure to toxins such as pesticides and heavy metals.

Some of the SCAs are minor conditions and some can be very debilitating.

Each different type has a different age of onset, some childhood, some teenage, some adult. The symptoms can either be gradual in appearing or come on more suddenly. Symptoms range from ataxic gait only to gait and balance being affected and /or speech being affected and varying degrees of Autonomic Nervous System instability.

The different types of SCA affect the cerebellum and brainstem (top of spine/connection to cerebrum and cerebellum) and spinal cord to different degrees. Five or so Cranial Nerves pass through the brainstem (connecting the cerebellum to the cerebrum and spinal cord) and any one or all of these nerves may be affected in the different types of SCA. The Cranial Nerves affected are the ones which deal with eye movement and hearing/balance, running of the gastrointestinal system, breathing and urinary system and facial expressions. Some of the types get migraine variant headaches as well.

To avoid this type of condition choose your parents wisely, they must have good genes; do not work as a pesticide sprayer or with toxic metals etc. Eating a well balanced diet will protect from your symptoms exacerbating. Staying out of the sun and avoiding radiation (x-rays for example) is a must for people with cerebellar conditions, also avoid getting hot as heat tends to temporarily make the symptoms worse.

Foods rich in magnesium are excellent to relieve muscle spasm (almonds, spinach, broccoli). Omega 3 oils found in olive oil, flax seeds/oil, oily fish such as mackerel, salmon and tuna are very good for you as well. The myelin (lining/covering of nerves) is made up of similar fats to Omega 3 Oils.  (+ info)

nutrition for cerebellar degeneration?

What tpy of vitamine should take to control cerebellar degeneration

Oriental Medicine or Ayurvedic..... you must do exactly what is prescribed. best if they are Chi (Qi) Masters, as well as Oriental Medicine practitioners .....you will probably have your diet changed, have acupuncture, given herbal supplements, and given Chi Therapy.......this is NOT a do-it-yourself matter!

Feel free to contact me for further details!

Be well!

Night Spirit  (+ info)

What are low lying cerebellar tonsils and what does this mean?

My daughter was diagnosed with a severe concussion due to head trauma. Upon reading the CT scan they noticed she had low lying cerebellar tonsils. Is this something that could be life threatening or could surgery correct this?

It is a normal variant of human development.  (+ info)

How do I treat mucinous degeneration of the anterior cruciate ligament?

I have been diagnosed with mucinous degeneration of the anterior cruciate ligament but don't understand what the best method of treatment is? I also have a prominent fissure in the lateral patellar articular facet. What exactly is a "fissure"?

quadriceps exercises , avoid exertion , pain killers ,  (+ info)

What is the very first symptom of macular degeneration?

What is the very first sign/symptom of macular degeneration? What does a drastic change in vision in one eye mean?
What are the symptoms of macular degeneration? Can macular degeneration, caused by arthritis medication, be stooped?
If it can be detected early, and is caused by an arthritis medication, can it be reversed when the meds are discontinued, or will the degeneration continue once it starts?


swollen testacles  (+ info)

How do you maintain your independence with macular degeneration?

My 78 year old step dad has advanced macular degeneration. He used to enjoy cutting the grass, cooking and reading crossword puzzles. Please share any information that is useful in maintaining his independence. Thank You.

Hi, and this is a good question !
I will just elaborate a little more on the first answer.
There are many visual aids available through the Braille Institute, the Foundation Fighting Blindness, and online companies that will send you catalogs of their products.
There are products such as talking watches, screens to magnify television screens, clocks and telephones with large and dark lettering and numbering, monoculars for long-distance viewing, and cctv's for intense magnification, along with so much more.
I recommend that you try to get him involved with a local Braille Institute asap. They have classes for all ages of visually impaired people, subjects such as cooking and art, learning Braille, and orientation and mobility, and how to adapt to macular degeneration. They will also issue him a library of congress card, which allows him to check out several large print books at a time., or even books on tape. Braille Institute even has private buses that will pick him up for classes.
If he is resistant to wanting to go the Braille Institute route, I suggest that you discuss the benefits of getting a social worker for his case, who can point him in similar directions.
I think that it is wonderful that you are asking!  (+ info)

If someone has Diabetes and macular degeneration, Do they still need to have a yearly dilated eye exam?

I have a couple of diabetic patients that state they do not need to have a dilated eye exam since they have macular degeneration. If this is true,what is the rationale behind this?If not true, what is the rationale?

Macular degeneration (MD) is just one of the complications of diabetes affecting the eye. With MD, one's visual acuity certainly goes down but can still perceive light & gross motion (blurry). So the eye is still useful.

The dreaded complication however is retinopathy. As everywhere in the body, vessels in the eye are also affected (due to excess of glucose in the blood, certain products are formed that deposit in the vessel wall. This makes them stiff and narrow) So with retinopathy,
1. The stiff vessels are not flexible & can burst causing a bleed in the eye rendering it completely blind.

2. The narrow stiff vessels lead to less oxygen delivered to the retina. Due to body's intrinsic reflexes, certain chemicals are released in the areas that do not get blood (oxygen) which forms new blood vessels in an attempt to increase oxygen delivery. However, these "new" blood vessels aren't perfect and easily burst & bleed leading to complete blindness.

3. Small bleeds (that do not cause blindness) eventually heal with scaring (like a contusion anywhere else in the body). The scar tissue contracts. This detaches the retina from its "bed" leading to retinal detachment and eventual degeneration and consequent complete blindness.

I dont intend to give a lecture in ophhtalmology, but you see, it is imperative for regular eye check up in diabetics. Needless to say, pristine glucose control is imperative!

Good luck with your patients... convincing them is quite a job (my mom is a diabetic with retinopathy so I know what it takes to get her to the doc!)  (+ info)

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