Where is the best treatment available for Polymyositis?
Can anyone help me by providing information on hospitals in the US or anywhere else in the world where good treatment for Polymyositis is available?. Any help will be appreciated! Thanks!
Polymyositis is a type of inflammatory myopathy, related to dermatomyositis and inclusion body myositis. Polymyositis means 'many muscle inflammation'.
Polymyositis tends to become evident in adulthood, presenting with bilateral proximal muscle weakness, often noted in the upper legs due to early fatigue while walking. Sometimes the weakness presents itself by the person being unable to rise from a seated position without help, or inability to raise their arms above their head. The weakness is generally progressive, accompanied by lymphocytic inflammation (mainly cytotoxic T8 lymphocytes). The cause is unknown, but seems to be related to autoimmune factors, genetics, and perhaps viruses. In rare cases, the cause is known to be infectious, associated with the pathogens that cause Lyme disease, toxoplasmosis, and others.
Polymyositis, like dermatomyositis, strikes females with greater frequency than males. The skin involvement of dermatomyositis is absent in polymyositis.
Diagnosis is fourfold, including elevation of creatine kinase, signs and symptoms, electromyograph (EMG) alteration, and a positive muscle biopsy. Treatment generally involves glucocorticoids, especially prednisone. Unfortunately very few in the medical profession are familiar enough with the disease to be able to accurately diagnose it in the early stages. Therefore many patients go undiagnosed for years, suffering needlessly.
Sporadic inclusion body myositis (sIBM): IBM is often confused with (misdiagnosed as) polymyositis and polymyositis that does not respond to treatment is likely IBM. sIBM comes on over months to years, polymyositis comes on over weeks to months. It appears that sIBM and polymyositis share some common features, especially the initial sequence of immune system activation, however, polmyositis does not display the subsequent muscle degeneration and protein abnormalities as seen in IBM. As well, polymyositis tends to respond well to treatments, IBM does not. IBM and polymyositis apparently involve different disease mechanisms than are seen in dermatomyositis.
The link below has some suggestions on treatments. (+ info
Is there anyone with polymyositis that has gotten better?
I have recently been diagnosed with polymyositis and I am extremely weak. I want to get in touch with someone that has this disease and has regained strength back in their muscles. I would like to know what you have been through and the process it took to get there.
What is dermatomyositis, polymyositis and inclusion body myositis?
Are there any cures for it?
Here is a website to give you more information:
http://www.clevelandclinic.org/health/health-info/docs/3600/3666.asp?index=12053&src=newsp (+ info
What type of disease is polymyositis?
I have looked at a bunch of different websites- some say muscular, some say skeletal, and some say nervous. I am doing a report for biology, and I need to know what type it is.
It's a connective tissue illness which is uncommon & causes inflammation of the MUSCLES. There's progressive muscle weakness in muscles closest to the trunk like the shoulders; upper arms; hips; thighs; neck. It occurs on both sides of body.
There is also mild joint or muscle tenderness. Possible difficulty swallowing.
It belongs to a group of conditions called inflammatory myopathies which are diseases or abnormal conditions of the muscles.
It is suspected they are autoimmune diseases
Google: mayo clinic>>diseases>>polymyositis
Good luck (+ info
What are the last & final stages of the disease Polymyositis? How does death occur?
Death from the disorder is rare, but may occur in patients with severe and progressive muscle weakness, difficulty swallowing (dysphagia), malnutrition, pneumonia, or respiratory failure.
Office of Communications and Public Liaison
National Institute of Neurological Disorders and Stroke
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Bethesda, MD 20892 (+ info
Can you develope polymyositis from long term exposure to paint , turpentine,xylene or acid fumes. i?
If so where can I locate information to support this fact
does anyone know what polymyositis means? does anyone know someone with polymyositis?
polymyositis is a disease that attacks the muscles. it is rare, only 1 in a 100,000 get this disease ech year. there is no found cause for the disease thus far. no one is known for living pass five years with the disease. there is no cure.
I think you have recieved some bad information on this disorder.
Yes it is an inflamitory myopathy which causes chronic muscle inflamation.
It is not however a disorder which causes death within 5 years.
In approximately 15 % of cases there may be shortened life span, but those are the cases with other issues such as cancer, heart problems and other connective tissue disorders.
Most patients with polymyositis have great success with medications and go into remissions.
Some may only have a single flare up in thier lifetime, Others may have on again off again flare ups.
But the bottom line is it is treatable, though not cureable. The earier it is diagnosed the better as those diagnosed early respond more quikly to treatment.
I suggest you do a search on polymyositis and do some more research, there are many good sites.
My Best Wishes (+ info
Has anyone ever heard of polymyositis?
Or dermatomyositis? My dad was diagnosed in Dec. and then got septic shock infection and died in Feb. Has anyone else heard of this?
This is a set of autoimmune disorders.
You can get tested for the antibody
Ususually involving P-Anca
Dermatomyositis is polymyosistis with skin involvement.
I believe the septic shock was probably different than those two disease syndromes.... but they diseases could have helped make the shock worse. (+ info
Neuro Dr diagnosed as Polymyositis,advised 6 prednisone 5 mg daily.Prednisolone 10mg is available. Is it OK.?
I am suffering from Muscles weakness disease. Symptoms are difficulty in climbing stairs/hilly path even with support, More pressure is felt in eyelids & fingers movement. The effect is more in right side, specially right leg above knee. Not in a position stand for more time. Even in plain area, after walking 50m, need rest.
If you take them all at the same time then you should be fine taking 3 of the 10mg as the total amount will be the same. (+ info
I was diagnosed with lupus(sle) in 1992. polymyositis in 2006. My shoulders are very weak and so are my hips?
I have severe weakness and loss of strength in my shoulders, hip, thighs, and upper arms, it is very difficult to climb stairs, and getting up from a chair and lifting objects combing my hair and it's getting very hard to get out of bed.
I'm sorry, what is the question? It sounds like you're complaining of your symptoms, and, in general, if your plan with your current physician is inadequate, you should consider getting a second opinion. (+ info
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