Does anyone have Chronic Inflammatory Demyelinating Polyneuropathy?
IIt's also known as Chronic Guillian Barre syndrome.It's an autoimmune disease where your immune system mistakes your nerves as foreign bodies and attacks the protective coating of myelin around them. It causes a very wide range of symptoms because it deals with the nervous system and is hard to diagnose because it can only be done after eliminating everything else. Does anybody happen to have this rare disease?
Dosage for Chronic Inflammatory Demyelinating Polyneuropathy or CIDP?
CIDP is a rare chronic condition with an ample range of variations, usually involving a cocktail of drugs/ treatments tailored to each individual as effectiveness varies widely across patients, dosage associated to weight, severity, associated syndromes, etc. Please check with your neurologist; avoiding alternative treatments is advisable unless your medical team states they don't interfere with your standard treatment. It is too serious a condition to jeopardize your health due to false promises of cure. There may be ups & downs but chronic so far means "no cure". Regular exercise is recommendable, though again linked to every patient's specific features and medical supervision.
For further details you may check the GBS/CIDP Foundation International website at http://www.gbs-cidp.org. They're glad to help out. (+ info
Chronic Inflammatory Demyelinating Polyneuropathy?
I have Chronic Inflammatory Demyelinating Polyneuropathy (CIDP). I first had Guillain-Barré back in 2004 my freshman year in high school. Then again in 05, 06, so I am labeled as a CIDP patient. What I wondering was there any other people out there with the same issues, I have basically been non symptomatic since my last occurrence in 06. What would be my chances of relapsing into another episode? Now also take into account that I have been sick several times this year and no exacerbation of any symptoms.
Hi Sara. Although I've never had the disease, being a doctor I do have some experience with it. Unfortunately, the disease is usually chronic and relapsing/remitting, which means it will come back once in a while. It may be related to infections or it may not. I've had some patients that have never been able to identify a precipitating cause or infection and many patients are labeled as having an autoimmune cause (they have antibodies that attack the myelin in the peripheral nerves without an infectious stimulus.
From my experience, you probably have a 70 - 80% chance of having a relapse in the next 2 years. There are some ways of managing the illness if the relapses are too often. If you get more than one or two episodes a year, talk to your neurologist about trying IVIG therapy.
On the plus side, some people never experience a relaspe and/or the episodes become much less frequent as you get older. Certainly is is reassuring that you haven't had a recurrence in 16 months or so!
Unfortunately, nobody can answer your question completely, but I hope I was able to help a bit ;). (+ info
i have chronic demyelinating brain disease confirmed by MRI what precautions should i take ?
so that chronic will not change into acute. neurologist said it is a autoimmune disease and prescribed vitamin B1,B12 and piracetam and exercise also said not to wet your head and do not be more excited.
Only your neurologist knows your case and can advise you.
Sorry. (+ info
How accurate is MRI of the brain without contrast for diagnosing inflammatory demyelinating lesions?
Help I have a vague aquaintance with brain problems asking me this.
What are some of the test available to confirm CID(Chronic Inflammatory Disease)?
What are some of the test available to confirm CID(Chronic Inflammatory Disease)?? I have looked in google, and it does not show any test that can confirm it. If there any test that CAN confirm it?
Thanks in advance.
I believe you don't know what CID is. It's actually chronic inflammatory diseases. Diseases, as in plural. This is not a single disease. This term refers a large group of diseases that are inflammatory in nature and they include rheumatoid arthritis, osteoarthritis, chronic obstructive pulmonary disease (COPD), irritable bowel disease (IBD), psoriasis and atherosclerosis. And there are more.
No wonder you haven't been able to find a test for chronic inflammatory disease. You've been looking for the wrong thing. I've given you a list of disorders and now you should be able to run a search for available tests for each one. (+ info
Just diagnosed with Chronic Inflammatory Demilinating Polyneuropathy?
I have read a lot about this on the internet. However, I am not getting any info on the pain.
I have chronice pain, left leg, hip and foot. I have pain in the rest of my body, however, the above mentioned is worse.
I am on lortabs, flexeril , neurontin and celebrex. Sometimes it is just not enough for these intense sporatic bouts of pain
Has anyone else got this and have so much pain that you can't stand it?
So sorry you are in pain. I pray you get the answers you need.
The Malware above has been reported.
Blessings to you. (+ info
What is Chronic Inflammatory Demyelating Polyneuropathy?
What is Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)?
Chronic inflammatory demyelinating polyneuropathy (CIDP) is a neurological disorder characterized by progressive weakness and impaired sensory function in the legs and arms. The disorder, which is sometimes called chronic relapsing polyneuropathy, is caused by damage to the myelin sheath (the fatty covering that wraps around and protects nerve fibers) of the peripheral nerves. Although it can occur at any age and in both genders, CIDP is more common in young adults, and in men more so than women. It often presents with symptoms that include tingling or numbness (beginning in the toes and fingers), weakness of the arms and legs, loss of deep tendon reflexes (areflexia), fatigue, and abnormal sensations. CIDP is closely related to Guillain-Barre syndrome and it is considered the chronic counterpart of that acute disease.
Is there any treatment?
Treatment for CIDP includes corticosteroids such as prednisone, which may be prescribed alone or in combination with immunosuppressant drugs. Plasmapheresis (plasma exchange) and intravenous immunoglobulin (IVIg) therapy are effective. IVIg may be used even as a first-line therapy. Physiotherapy may improve muscle strength, function and mobility, and minimize the shrinkage of muscles and tendons and distortions of the joints.
What is the prognosis?
The course of CIDP varies widely among individuals. Some may have a bout of CIDP followed by spontaneous recovery, while others may have many bouts with partial recovery in between relapses. The disease is a treatable cause of acquired neuropathy and initiation of early treatment to prevent loss of nerve axons is recommended. However, some individuals are left with some residual numbness or weakness.
What research is being done?
The NINDS supports a broad program of research on disorders of the nervous system, including CIDP. Much of this research is aimed at increasing the understanding of these disorders and finding ways to prevent, treat, and cure them. (+ info
My cervical spine MRi without contrast shows inflammatory demyelinating lesion but my evoked responeses were?
normal.. Do I have Multiple Sclerosis?
MS is such a complicated disease. Some people go years without ever getting a positive diagnosis, while others can get their diagnosis in a matter of days.
You could check out the "Good Docs List". (URL in Sources) This will list MS specialists and Neurologists that have worked with MS patients and had very positive reviews. These could be listed right in your area.
You could try and have your records examined my a MS specialist/Neurologist. They may find something new on the MRI/Evoked results that could point to MS.
I would also have your doctor run a test for Lymes Disease. Lymes mimics MS and some doctors don't end up testing for it until last. If it's Lymes, that could be treated with anti-biotics.
I wouldn't jump to any conclusions yet though, you still want to have a second or third opinion of your case.
I hope you are able to get this sorted out quickly and won't have to deal with the unknown.
Good Luck. (+ info
Are there any relation between chronic skin inflammatory conditions & skin cancer ?
i've heard that chronic inflammation of the skin (such as: seborrheic dermatitis) can be the cause of some types of skin cancers , is that true ??
I think it's possible.
My pathophysiology teacher said body tissue or organs that have had chronic disease or major injuries are more likely to later develop cancer. (+ info
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