FAQ - Pseudobulbar Palsy
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How many peps out there with a child with cerebral palsy and a deployed husband?

I have 3 daughters ages 7, 5, and 20 months. Eldest with cerebral palsy (can walk with walker and braces but mostly crawls, and doesn't talk). Husband is in Iraq for 2nd time, 3rd time overseas. Just wondering if there are anymore out there in the same "boat" that I'm in.

My husband is also military, but he's home right now.Our two year old has CP. Feel free to email me if you'd like someone to talk to. I can be contacted through Y!A and will give you my email then.  (+ info)

How significant is a traveling tinel sign with radial nerve palsy?

I had sugery for a broken humerus and sometime during the surgery I developed radial palsy it has now been four months and the tinel sign has moved down my arm from the triceps area to the elbow area. Is this a promising sign of recovery?

Only the doctor can say for sure, hopefully yes it is a good sign as it is moving towards the source of the palsy,, good luck,,  (+ info)

What are the chances of Cerebral Palsy being passed through to an unborn child during a pregnancy?

My fiancee and I want to have a baby, but he is worried that his cerebral palsy (mild) will be passed on to the baby and since he is older, he wouldn't be around to help me raise the baby and also he knows the cruelness and the hard times he had while he was growing up.

Your child's chances are the same as anyone else. Cerebral palsy isn't something that is passed down from parent to child, it is a birth defect that happens before birth, during birth, or perhaps even shortly after birth. It is usually the result of a stroke. So, I would not worry too much, as your husband cannot "give" your child C.P. It isn't apart of him in that way.  (+ info)

Do people with severe cerebral palsy understand what you say to them?

There is such a wide range of severity with cerebral palsy. I am wondering if a 12-year-old child with very severe cerebral palsy (cannot walk, talk, eat without help) understands what I say to him. Thanks!
Thanks for your answers so far! Based on your answers, he may be able to really understand me. So to him, do you think it would be offensive if I talked to him very sweetly almost "baby talk"? Or should I speak to him (nicely of course) like any other 12-year-old?

Absolutely. Some are very smart and understand everything.

"Spastic Cerebral Palsy, the most common form of CP, causes the muscles to be tense, rigid and movements are slow and difficult. This can be misinterpreted as cognitive delay due to difficulty of communication. Individuals with cerebral palsy can have learning difficulties, but sometimes it is the sheer magnitude of problems caused by the underlying brain injury that prevents the individual from expressing what cognitive abilities they do possess."

http://en.wikipedia.org/wiki/Cerebral_palsy  (+ info)

How did you feel when you found out that your child had cerebral palsy?

We always knew that our now 16 month old daughter was a little 'behind' for her age, but when the paeds told us yesterday that she actually had cerebral palsy - I was dumbfounded.

It took a whole day to sink in, and I wasnt hit with the severity of it until this morning (and it felt like I was hit with a shovel on the head).

I'm devistated. How did you feel? What did you tell your family?

I'm a 26 year old female with mild spastic diplegia cerebral palsy, and although I obviously don't remember being diagnosed, I do know that my mother worried more BEFORE the diagnosis than she did afterwards. Like you, she knew something was wrong, and she was relieved when the doctors told her what it was because now "it" had a name.

I suspect what you are most worried about is how your daughter is going to function in a "normal" world. I'm not going to lie, it's very hard, and it's probably going to be harder on you than it will be on your daughter. But one thing my parents did for me that was absolutely invaluable was to tell me from a very early age "Don't ask us for help if you can do it yourself." They would show me how to do things, and then expect me to do them, even if it took me three times longer to get it done than everybody else. It made me feel at times like they didn't really love me; especially when they would just stand there after I fell and watch me pick myself up again--which at the beginning took a full five minutes. I now realize of course, that they were doing this because they loved me. Independence is a LIFELONG process.

As your daughter grows and develops, you will learn what the severity of her disability is, and how much she is really capable of, but I'm going tell you right now, if you push her, she will me MUCH more capable than the doctors give her credit for. Push her, push her, push her! It's painful but oh, so necessary. You cannot begin to teach your daughter independence at the age of 25 and expect her to catch up with everyone else. I am what I am today because I have spent a lifetime learning it.

Your dreams for your daughter will need to be readjusted, but they do not have to die, and this is what I would tell your family. I have been alble to achieve everything I set my mind to, even if it took me a little longer to reach my goal. I'm trusting the same will be true for your daughter. The only thing I cannot do is drive. I am in grad-school for my Masters in Divinity right now (so I can preach), and I would love to get my PhD someday. I walk and do pretty much everything for myself, even if it is awkward. I have some self-image issues because of the fact that my walking gait is ugly, but that's my own junk to deal with.

This is not a death sentence. Please believe that. Inside your daughter is a wonderful, God-made person just waiting to get out with your help. Make sure you have good physicians and physical and occupational therapists, and you will be fine.

Let me know if you need anything else. I'm here to help.  (+ info)

Is cerebral palsy the outcome of all in utero stroke children?

Grandaughter diagnosed with in utero stroke on left side of brain. She has some right side weakness. Everywhere I look it seems like cerebral palsy is the outcome. Does anyone know?

CP is

a non progressive lession with an abnormality of motor function (the ability to move and control movements) that is acquired at an early age either prenatal perinatal or post natal up to 2 years of age..

So to answer you question, an in utero stroke is generally considered cerebral palsy specifically hemiplegic cp (one side of the body)

Hope this helps  (+ info)

How can playing with a child that has cerebral palsy be beneficial?

Just wondering, what things I could do with a child that has cerebral palsy and what benefit does it have for them? School assignment

playing with a child that has cerebral palsy stimulates the 'learning' part of their brain, which can make it stronger...

singing with actions are good, as well as any action games, like simon says... etc. Colouring or Drawing, Shape sorter, Playing Tea Parties or something - anything that might encourage social interaction... try googling it, u may be surprised what you find!  (+ info)

How to treat Pancreatitis and Cerebral Palsy NEED HELP?

We have a 20 year old son with Cerebral Palsy who has been diagnosed with pancreatitis. He has had several episodes in the last several month. We are severely concerned because all the doctors cannot find what is causing it and what would be an appropriate course of action to treat it.

See another doctor. You are not going to get an answer here.  (+ info)

What do you think will be the best way to treat cerebal palsy?

I have cerebal palsy Im hemipaligic on my left side. and everyday I wonder what will treat CP until it cant affect the person that has it? I have come down to 2 possibilities in my opinion, either bionics were do it where they will create a system that can deliver signals to the limbs and appendenges that the brain cannot. or by things like stem cell research that will reverse or heal the brain damage that is causing the CP what do you guys think?

Bionics will come first. There is to much controversy with stem cell research and using computer chips and wireless connections to take over motor functions will be possible real soon.  (+ info)

Does anyone know any exercise programs that someone can do with cerebral palsy?

I'm 19 and have an extremely mild case of cerebral palsy. I have balance issues and some muscle pain. I am about five to ten pounds overweight and want to lose weight to see if that will help with my irregular periods. Does anyone have any ideas for me? I have been trying so hard but nothing is helping and I am so upset because I can't do fitness programs that are on tv and suggestions?

I'm 20yrs old i have moderate CP and currently use a walker (i will be switching to crutches within a few weeks).I go to the gym 5-6 days a week and have been for about 9 months. I've noticed considerable strength gains overall and combined with stretching expect to be walking unassisted within a few months. honestly what i recommend is a change in diet and four days a week on a treadmill and or another cardio machine for somewhere between 15-25 minutes per day
-hope this helps,Austin.  (+ info)

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