FAQ - Purpura, Hyperglobulinemic
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Why do I get purpura when I drink beer, cider and champagne?


Over the last 5 months every time I drink alcohol I get a blood spot purpura. This predominantly occurs when I drink beer, cider or champagne. Why oh why does this happen?
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I would suspect an allergy to sulphites, which are added as an additional preservative in some alcoholic beverages, but are naturally occuring to some degree or another in most (especially non-liquor types, though I dont recall the reason - I haven't had a drink in years in part due to this - I always looked like I had black eyes)  (+ info)

What to expect with a diagnosis of Purpura Fulmicans and Lupus Anticoagulant w/possible Phophosilid syndrome?


My 20 month old daughter was recently diagnosed with this in a Children's Hospital she was sent to. I've looked on line, but I can't find anything on living with it, life expectancy, or any preventative measures to take. All I can find is some descriptions and a few pictures. I know it's rare, but surely someone can give me some advice.
Thanks.
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God, I'm so sorry about the diagnosis. Purpura Fulmicans is usually associated with some underlying infection such as meningitis. It can decrease the blood flow/pressure, sometimes causing digits to be amputated. The Lupus Anticoagulant/Antiphospholipid Syndrome is a clotting disease that can be treated with blood thinners/aspirin. Blood clots are common in people with APS and early onset usually implies greater complications.

The primary issue is finding the underlying cause of the Purpura Fulmicans and treating it. Usually this will subside after the cause is treated. APS is a different story and is a lifelong issue. There is a much higher rate of heart attack and stroke in people with APS, however, with vigilant treatment lifespan can be normal.

My wife has APS and Lupus and is doing just fine. She has had two blood clots and a heart attack but survived them all because we knew what was going on.  (+ info)

What kind of testing should be done for repeat purpura/ecchymoses?


I have had two episodes of ecchymoses / purpura within the last couple months. Both times there was no trauma to the area. The first time the area was the size of my fist, although I had had a couple drinks and tylenol so that could explain that one. The second time it was the size of a silver dollar - I haven't had a drink in several weeks and no pain relievers for four days. Should I have a doctor look into this? If so, what should they be testing for?

As additional info, I'm a 30yo female with PCOS on 1500mg of metformin and yasmin low dose birth control. I have factor five leiden.. is this possibly the cause? Any info or advice is appreciated. Thanks!
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I don't think that it is at all unusual that you would want to know the workup. There could be several possible causes, and if I understand your question correctly, you are searching for not only causes but which specific tests would be ordered. Furthermore, you are probably curious as to what a prudent doctor would test for given this and no other mentioned symptoms.

While I do not know the answers to these questions, I would still definitely recommend going to see your doctor, while you still have it if possible, or if not, then take a picture.

I don't think it is factor five leiden that is causing it, as this is something different from factor five deficiency. The defeciency could possibly cause it, but probably not the more common factor five leiden.  (+ info)

In the case of idiopathic thrombocytopenia purpura; why is the external aspect "gravity prone"?


ITP effects the internal organs. EGD's are done for the diagnosis which show the results of purpura in multiple locations throughout the body. In the history of ITP, it has been noted to be seen in gravity prone area's (legs, bottom of feet, palm of hands. buttocks etc...). In what relation does this have with the internal system's.
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They never did an EGD when i had Itp... A simple CBC will tell if you have it.... the excessive bruising is probably noted in gravity prone areas because thats where blood pools, since itp often leads to bleeding. The EGD is only done if they think uncontrolled bleeding from your digestive tract is causing it, and there are many other causes.  (+ info)

What is the treatment or medicine for HENOCH-SCHONLEIN PURPURA skin diseases? except the dermatologist....?


What is the treatment or medicine for HENOCH-SCHONLEIN PURPURA skin diseases? except the dermatologist....?
this kind of skin diseases is usually in leg, bottoms, and arms.
except in dermatologist do u know what is the medicine or a cream for that? it is so itchy and longer and longer if scartchy and take a cream after a an hour its scratchy again. its look like a big pimple but so very itchy and scarctchy help me for this i want to know what is the best medicine for that...except a dermatologist i want to know from you.thank you
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Treatment
The prognosis of Henoch-Schönlein purpura is excellent. Most patients recover completely, and some do not require therapy. Treatment is similar for adults and children. When glucocorticoid therapy is required, prednisone is recommended.
Go to the web site listed below it has the newest info on this.  (+ info)

about 6 months ago found a site rickys story on HSP or henoch schonlein purpura need to find again?


My son has HSP, very close to Ricky's story, and would like to ask his parents or grandparents, whoever posted the story about treatments,regrets and how they feel about what has happend since diagnosis. I live in New Zealand and HSP going renal is not usual and I don't feel the drugs suggested are appropriate. Any imput on my situation would be greatly appreciated as I feel that the next step will endanger my sons health and wellbeing for the future.
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ill Pray your Son to get well soon... i hope after this a few hours later or tomorrow.. your worried is no more..  (+ info)

Immune thrombocytic purpura; Is it really that major of an illness?


I was recently diagnosed with ITP. The doctors sounded like once i'm off prednisone I would be fine. From what I have researched that doesn't seem to be the case. Should I be concerned? Is ITP really that serious? Thoughts? Ideas? Suggestions?
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OK, here are some facts for you.

There are two types of ITP: acute (temporary or short-term) and chronic (long-lasting).

Acute ITP generally lasts less than 6 months. It mainly occurs in children, both boys and girls, and is the most common type of ITP. Acute ITP often occurs after an infection caused by a virus.

Chronic ITP is long-lasting (6 months or longer) and mostly affects adults. However, some teenagers and children can get this type of ITP. Chronic ITP affects women 2 to 3 times more often than men.

Treatment depends on how severe the bleeding symptoms are and the platelet count. In mild cases, treatment may not be needed.
Outlook

For most children and adults, ITP isn't a serious or life-threatening condition.

Acute ITP in children often goes away on its own within a few weeks or months and doesn't return. In 80 percent of children who have ITP, the platelet count returns to normal within 6 to 12 months. Treatment may not be needed.

A small number of children, about 5 percent, whose ITP doesn't go away on its own may need to have further medical or surgical treatment.

Chronic ITP will vary with each individual and can last for many years. Even people who have severe forms of chronic ITP can live for decades. Most people who have chronic ITP are able at some point to stop treatment and keep a safe platelet count.

Hope that helps.  (+ info)

Can You get ITP(Idiopathic Thrombocytopenic Purpura) from being around a person who has it?


Okay well my 2 out of 4 and one just got it and one already got treated for it. I just wanted to know if you can get it from being around her. Or from drinking from the same bottle or using the same chapstick or something. please and thanks.
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how to cure a 2 yrs old boy who suffered by purpura?his blood is?


discharging through stool.he vomited 3 times at today.pls,suggest me best hospital in jharkhand/india.
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I think you should see a doctor as soon as possible who will evaluate the boy's condition and probably refer him to a hematologist. From what you have described, the boy seems to be having Thrombocytopenia which means less platelets in the blood. He may be requiring an urgent Platelet Transfusion before he bleeds more, and in dangerous parts of the body like brain etc.  (+ info)

Herbal remedies and alternative therapy for Henoch-schonlein Purpura?


I have been diagnosed with henoch-schonlein purpura and was wondering what herbal remedies would be good for me to take? Also, would reiki or Indian Head massage be good treatments to have?
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Let's look at the parts affected. Reiki would help as a supportive treatment at best, but cannot hurt. Even though it affects all sorts of things, let's concentrate on the kidneys.

Eat More:
Raw foods, garlic, potatoes, asparagus, parsley, watercress, celery, cucumbers, papaya, bananas, watermelon, pumpkin, sprouts, legumes, seeds, soybeans, spirulina, acidophilus, Lecithin

Eat Less:
Potassium, phosphates, beet greens, meat, spinach, rhubarb, swiss chard

Do Not Eat:
Chocolate, cocoa, eggs, dairy

Drink clean water (6-8 glass’s per day), eat smaller portions of meat, do small mild cleanses

Alternative Treatments for Kidney Disease
Nutrients for Kidney Disease
Calcium – helps body use all minerals in synergy
Magnesium – see calcium
L – Arginine – aids kidneys
L-Methionine – helps circulation within kidneys
Multi-enzyme complex – aids digestion
Potassium – stimulates kidney function

Vitamin A – helps healing process of urinary tract lining
Vitamin B complex – helps fluid metabolism
Vitamin C – boosts immunity and elevates urine acidity
Vitamin E – elevates immune system
Zinc – immunostimulant

Buchu Tea
Dandelion Root (pu gong ying) – aids kidney excretion function of waste
Cranberry – acidifies urine and kills bacteria
Celery and Parsley – diuretic (decreases uric acid)
Hydrangea – natural diuretic – cleanses urinary tract
Uva Ursi – natural diuretic – cleanses urinary tract – germicidal
Marshmallow Tea – cleanses kidneys
Goldenrod tea, juniper berries, stinging nettle, parsley, red clover, watermelon seed tea are all good for kidney disease.  (+ info)

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