FAQ - Purpura, Thrombotic Thrombocytopenic
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Has anyone ever heard of thrombotic microangiopathy in pregnancy?


This was the cause of death of a 26 yr old pregnant female with no known health problems. This person and her baby passed away two weeks before her due date - so far doctors have not been able to tell me what caused the thrombotic microangiopathy.
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I tried to read some of the sites that explain what this is, sorry to say I did not understand much. It must be some serious problem that has to do with formation of thrombosis
and also with the kidneys. I am not certain though, its more guessing on my part from what I read.

http://www.google.com/search?q=thrombotic+microangiopathy&sourceid=ie7&rls=com.microsoft:en-US&ie=utf8&oe=utf8  (+ info)

Why do I get purpura when I drink beer, cider and champagne?


Over the last 5 months every time I drink alcohol I get a blood spot purpura. This predominantly occurs when I drink beer, cider or champagne. Why oh why does this happen?
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I would suspect an allergy to sulphites, which are added as an additional preservative in some alcoholic beverages, but are naturally occuring to some degree or another in most (especially non-liquor types, though I dont recall the reason - I haven't had a drink in years in part due to this - I always looked like I had black eyes)  (+ info)

Will having idiopathic thrombocytopenic puta (ITP) affect my chances of having lasik eye surgery?


I have idiopathic thrombocytopenic puta (ITP)
i am also short sided and am looking into having lasik eye surgery.
will my IPT affect my chances of receiving the surgery or the effectiveness of the surgery?
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Just tell the Dr. Shouldn't be a big deal. Some parts of the body aren't vascular. Won't affect the outcome either.  (+ info)

Thrombotic microangiopathy: does anyone know a good web page with sime info on this condition?


Any web page I have found is very technicial; I am looking for something in plain english please!! Also, do you know of anyone who has this condition?
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Yes, I have alot of microangiopathy. You will typically find it with Livedo Retiularius - a part of Raynauds.

I get it from both the Raynauds and Antiphospholipid Antibody Syndrome.

There are several articles on this site that refer to it but not a solid paper on it.  (+ info)

What to expect with a diagnosis of Purpura Fulmicans and Lupus Anticoagulant w/possible Phophosilid syndrome?


My 20 month old daughter was recently diagnosed with this in a Children's Hospital she was sent to. I've looked on line, but I can't find anything on living with it, life expectancy, or any preventative measures to take. All I can find is some descriptions and a few pictures. I know it's rare, but surely someone can give me some advice.
Thanks.
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God, I'm so sorry about the diagnosis. Purpura Fulmicans is usually associated with some underlying infection such as meningitis. It can decrease the blood flow/pressure, sometimes causing digits to be amputated. The Lupus Anticoagulant/Antiphospholipid Syndrome is a clotting disease that can be treated with blood thinners/aspirin. Blood clots are common in people with APS and early onset usually implies greater complications.

The primary issue is finding the underlying cause of the Purpura Fulmicans and treating it. Usually this will subside after the cause is treated. APS is a different story and is a lifelong issue. There is a much higher rate of heart attack and stroke in people with APS, however, with vigilant treatment lifespan can be normal.

My wife has APS and Lupus and is doing just fine. She has had two blood clots and a heart attack but survived them all because we knew what was going on.  (+ info)

How many years does a woman patient live suffering from Thrombotic stroke?


It all depends on the extent of the stroke. It can be for years. The cause of death is often something like pneumonia.  (+ info)

What kind of testing should be done for repeat purpura/ecchymoses?


I have had two episodes of ecchymoses / purpura within the last couple months. Both times there was no trauma to the area. The first time the area was the size of my fist, although I had had a couple drinks and tylenol so that could explain that one. The second time it was the size of a silver dollar - I haven't had a drink in several weeks and no pain relievers for four days. Should I have a doctor look into this? If so, what should they be testing for?

As additional info, I'm a 30yo female with PCOS on 1500mg of metformin and yasmin low dose birth control. I have factor five leiden.. is this possibly the cause? Any info or advice is appreciated. Thanks!
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I don't think that it is at all unusual that you would want to know the workup. There could be several possible causes, and if I understand your question correctly, you are searching for not only causes but which specific tests would be ordered. Furthermore, you are probably curious as to what a prudent doctor would test for given this and no other mentioned symptoms.

While I do not know the answers to these questions, I would still definitely recommend going to see your doctor, while you still have it if possible, or if not, then take a picture.

I don't think it is factor five leiden that is causing it, as this is something different from factor five deficiency. The defeciency could possibly cause it, but probably not the more common factor five leiden.  (+ info)

In the case of idiopathic thrombocytopenia purpura; why is the external aspect "gravity prone"?


ITP effects the internal organs. EGD's are done for the diagnosis which show the results of purpura in multiple locations throughout the body. In the history of ITP, it has been noted to be seen in gravity prone area's (legs, bottom of feet, palm of hands. buttocks etc...). In what relation does this have with the internal system's.
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They never did an EGD when i had Itp... A simple CBC will tell if you have it.... the excessive bruising is probably noted in gravity prone areas because thats where blood pools, since itp often leads to bleeding. The EGD is only done if they think uncontrolled bleeding from your digestive tract is causing it, and there are many other causes.  (+ info)

What is the treatment or medicine for HENOCH-SCHONLEIN PURPURA skin diseases? except the dermatologist....?


What is the treatment or medicine for HENOCH-SCHONLEIN PURPURA skin diseases? except the dermatologist....?
this kind of skin diseases is usually in leg, bottoms, and arms.
except in dermatologist do u know what is the medicine or a cream for that? it is so itchy and longer and longer if scartchy and take a cream after a an hour its scratchy again. its look like a big pimple but so very itchy and scarctchy help me for this i want to know what is the best medicine for that...except a dermatologist i want to know from you.thank you
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Treatment
The prognosis of Henoch-Schönlein purpura is excellent. Most patients recover completely, and some do not require therapy. Treatment is similar for adults and children. When glucocorticoid therapy is required, prednisone is recommended.
Go to the web site listed below it has the newest info on this.  (+ info)

about 6 months ago found a site rickys story on HSP or henoch schonlein purpura need to find again?


My son has HSP, very close to Ricky's story, and would like to ask his parents or grandparents, whoever posted the story about treatments,regrets and how they feel about what has happend since diagnosis. I live in New Zealand and HSP going renal is not usual and I don't feel the drugs suggested are appropriate. Any imput on my situation would be greatly appreciated as I feel that the next step will endanger my sons health and wellbeing for the future.
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ill Pray your Son to get well soon... i hope after this a few hours later or tomorrow.. your worried is no more..  (+ info)

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