FAQ - Retroperitoneal Fibrosis
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Can you treat retroperitoneal fibrosis?

My husband was diagnosed with this disease and I don't know what to do. No doctor has delt with this before. Anybody know anything about retroperitoneal fibrosis?


Surgery to remove the mass and free the ureters may be required. In some cases, the ureters will be moved to a different position in the body or wrapped in fat tissue harvested from other areas to prevent recurrence of the fibrosis.

Stents (drainage tubes) placed in the ureter or in the renal pelvis may provide short-term relief of the symptoms until the mass can be removed.

Corticosteroid therapy may help if surgery can't be done due to other medical conditions.

Some doctors use the drug tamoxifen to treat this condition.  (+ info)

I have been Diagnoised with Retroperitoneal fibrosis . Is there a medicen for it if so what?

I have Retroperitoneal fibrosis dure to which i have pain in lower back and in lower abodomen, diagnostic reports confirm the same and the Urinary track is coverd with it thickly , i need to know is there a medicin to remove the same or dilute it

Retroperitoneal fibrosis (RPF) is a disorder in which the tubes that carry urine from the kidneys to the bladder are blocked by a fibrous mass in the back of the abdomen. Another name for it is idiopathic retroperitoneal fibrosis or Ormond's disease.

My research shows that surgery and medication is the treatment of preference at this time: Studies are still inconclusive.
Surgery to remove the mass and free the ureters and in some cases, the ureters will be moved to a different position in the body or wrapped in fat tissue harvested from other areas to prevent recurrence of the fibrosis. Stents (drainage tubes) may placed in the ureter or in the renal pelvis to short-term relief of the symptoms until the mass can be removed.
For medication corticosteroid therapy may help if surgery can't be done due to other medical conditions. Though the use of steroids in RPF remains controversial; however, some authors believe that steroids can be used as an adjuvant to surgical ureterolysis.
More recently, immunosuppressive drugs, such as azathioprine, cyclophosphamide, and tamoxifen, have been used to treat RPF.

For more info on this disease go to your search engine on your home web page and type in retroperitoneal fibrosis or retroperitoneal fibrosis treatment.

Be sure to discuss all treatment options with your doctor too.

Hopefully this helped some.  (+ info)

Where can I find an illustration on retroperitoneal hematoma on the web?

I am trying to make a power point presentation on retroperitoneal hematoma. I need an illustration on the same topic for a one time use.

How about this link:
http://lpig.doereport.com/enlargeexhibit.php?ID=9484  (+ info)

I have symptons of Cystic Fibrosis. Is it possible to start show the symptons in my 30's?

I am having a hard time breathing and seem to have attacks that come on all of a sudden. Also I t feels like something stuck in my lungs..I cannot remeber any signs when I was growing up. Is it possible to start showing signs of cystic fibrosis in my 30's?

Yes, it is possible. Some of the previous answers are unbelieveable.
No, you don't have to be diagnosed prior to 2 years old and NO you don't have to spend your teenager years in the hospital. Some of you are reading out of a 1950's medical journal.
There are many different mutations with different manifestations.
There are MANY different forms of CF and there are documented cases of people being diagnosed in their 30's, 40's, 50's , 60's etc...
Good Look and I hope you find what is ailing you.  (+ info)

What is the average life expectancy for people with Cystic Fibrosis?

I'm pregnant with my first baby and I got some tests done and the doctors informed me that my daughter will have Cystic Fibrosis. My mother had a brother and sister who died from the disease when they were quite young. Anyway, I'm wondering what is the current life expectancy for children/people with Cystic Fibrosis and how can you best take care of them to maximize their life?

more than 37 years old  (+ info)

What is the difference between asbestosis and pulmonary fibrosis?

My husband has been advised by his consultant to claim industrial disease allowance for his pulmonary fibrosis.Has he worked in shipbuilding with asbestos we expected to be told he had asbestosis!Should we be pleased or is it two names for same illness? He has lost a lot of former colleagues to asbestosis and so we and especially me, are very concerned about his quality of life in the near future.

asbestosis is caused by exposure to asbestos asbestos fibres are thin and microscopic and easily pass through the filters in the nose and bronchi into the lungs it sticks to the lungs and scars the lung tissue it makes it harder for the lungs to function properly and gas exchange gas exchange in the lungs gets harder it can cause respiratory failure and can take years to develop
pulmonary fibrosis scars the tissue in the lungs eventually the air sacs in the lungs are all replaced by fibre or scar tissue this tissue is thicker and the tissuyes cant transfer oxygen to the blood anymore  (+ info)

What are the chances of a woman with cystic fibrosis to get pregnant?

I have cystic fibrosis and i was curious to know the percentage chance of a woman with this disease to get pregnant. i know we can conceive, but with men there is only a 2% chance of them getting their partner pregnant.

you could take a look on http://www.getpregnantguides.com/ . did a search on the internet and i found there some great guides  (+ info)

What sports/physical activities are good for someone with Cystic Fibrosis?

I want to get my daughter involved in some good sports/physical activities. She's only 3 years old. She has Cystic Fibrosis. We live in New York and walk a lot, she gets out of breath often when we go for walks and walk up hills. But the doctors say its good for her to have to work her lungs. What are the best sports and other physical activities I should get her involved in?

Regular exercise improves the health of people who have cystic fibrosis. Exercise helps loosen mucus, encourages coughing, improves oxygen flow, and makes you feel better. Upper body exercises, such as swimming or rowing, increase the strength and endurance of the muscles that are used for breathing.

After talking to your doctor about how much exercise is good for your child, encourage your child to participate in sports and recreational activities. Team sports are great ways for your child to stay fit and to interact with other children. Talk to the coach or supervisor about your child's abilities and the important role of physical activity in the treatment of cystic fibrosis.

Some people who have cystic fibrosis may not be strong enough to participate in certain activities. Your doctor can recommend the right amount and type of exercise for you. Or, you may work with a physical therapist to develop your own exercise routine.  (+ info)

What causes differences in the severity of Cystic Fibrosis?

I have identical twin girls (they're 16) who have Cystic Fibrosis, they have always been in the same environment, but they seem to have two different severity levels of Cystic Fibrosis, one of my twins is sick very often and has had to spend numerous amounts of time in hospital, has much lower lung function, needs a feeding tube, and will need a lung transplant eventually, my other daughter does not get sick and get infections that much and has always been a lot stronger. What actually causes the differences since they are identical twins?

Different mutations of the disease may play a part in this. However, this cannot be ruled at the answer either. For example, I have CF as well, my mutation is the G551D, and right now I am currently in a study with 2 other people at my CF center (about 80-120 in the US hopefully at the end) and even at my center 5 people have this mutation. I am about 50% lung function (this is very good for me) but have spent a lot of time in the 40%. To be in this study your lung function had to be over 40% and stable. One girl is not able to participate because she is under that mark, and one boy is in the 90's so he cannot participate because he is doing too well! I think that Cystic Fibrosis is still really misunderstood, and not everything is known yet about it. Everyday there are new treatments that are developing to make life better. Right now I am a lot healthier than my older sister who does not have CF! I have not been ill in nearly a year, which is amazing to me because for about 3 years I consistently had IV therapy every 3 to 4 months for about 2 months at a time.  (+ info)

What are the symptoms of cystic fibrosis?

I know that it affects the lungs, but what is cystic fibrosis exactly?

  (+ info)

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