FAQ - Rhabdomyosarcoma
(Powered by Yahoo! Answers)


My granddaughter has this cancer since age 4yrs. She is now 8yrs. It has masthesized and she has been given three months to live. She doesn't know it, and I don't know if she should be told. Is there anyone out there that has had this experience? Can you please share with me?

If you have not already joined the ACOR rhabidomyosarcoma listserv then you should. They currently have 270 members who are caregivers of kids with rhabdo. This is a private non commercial list. ACOR runs lists for over 100 types of cancer. The Archives can be invaluable reading plus you can contact, ask questions and receive input from people going through the exact same problems with the exact same cancer.
all the best to you and your granddaughter

http://listserv.acor.org/archives/rhabdo-kids.html  (+ info)

Where is the best cancer treatment center for adult rhabdomyosarcoma? My father is in stage 4 of this cancer.?

My father was just diagnosed. It's metastasized to lungs from a tumor that developed on his leg muscle (lateral tibia). Everybody in the family is doing research on the web looking for the best options for treatment.

He needs to be treated at a center that sees a lot of this type of cancer. No one hospital is the best.
Major teaching centers such as Mayo, Anderson, Sloan-Kettering, etc are a great start.

Having said that, a patient is stage 4 doesn't have good odds at living very long. Your family needs to talk about this possibility. Depending on what the oncologist (cancer doc) says, palliative care (to keep him comfortable, not cure) may be best,

Hope & pray for a miracle, but also be realistic.

Best of luck.  (+ info)

What's the longest people tend to live with metastatic alveolar rhabdomyosarcoma?

Are there any stats for this?

18 year old male, 15 at dx

Hey up!

Saw you have asked more questions- and you know what, the best thing you can do is not worry about stats- there rubbish and not helpful!  (+ info)

What do you know about the cancer children get called rhabdomyosarcoma?

My daughter had it 12 years ago, she is one of the longest survivors. She is still showing no sign of it to day. If you needs more information from us please email me. She was 17 at the time pregnant an under went chemotherapy for a year after she had the baby she took radiation Her baby is now12 and doing great  (+ info)

Could someone help, my baby was born with rhabdomyosarcoma I just need some advice and information?

He was diagnosed exactly four weeks old. They say that it is very rare for a infant like that to get it. The tumor was on his spine also which they said was in a unusual spot. My doctor said that he has not seen this case since 1973 with a baby. If there is anyone out there that has had this happen to them or have heard anything like this please contact me, any information will be helpful. I just don't know what exactly to do so I need as much advice as possible thank you.

I'm so sorry about your baby . . even though this may be rare you can still find support through the Rhabdomyosarcoma groups . . this disease can hit at any age. There are several types of this disease with the most common for children under 6 called Embryonal rhabdomyosarcoma

There is an email list group and the people there will be able to offer support and hopefully some guidance for you as you seek treatment:

Rhabdo Kids

NCI: Childhood Rhabdomyosarcoma
http://www.cancer.gov/cancertopics/pdq/treatment/childrhabdomyosarcoma/Patient  (+ info)

Is there any latest method or any alternative method in the treatment of rhabdomyosarcoma?

My son who is 6 yrs old has rhabdomyosarcoma. he has had chemo therapy and radiation. Is there any other mode of treatment any alternative modes etc please let me know
dr dennis

Surgery to remove the tumor is often difficult or impossible because the tumor is usually embedded deep within the tissue, leaving it difficult to reach. If a tumor presents itself in the extremities, amputation is often necessary to improve survival.
If there is no evidence of metastasis, surgery combined with chemotherapy and radiation offer the best prognosis. Patients whose tumors have metastisized have a poor chance for long-term survival. In patients who began treatment before metastasis, the prognosis is better, although the disease has a five-year survival rate of 25% to 90% depending upon the stage at diagnosis and other factors.  (+ info)

Can anyone tell me the best hospital and doctor to treat RHABDOMYOSARCOMA it is a cancer disease please help?

THANKS!! Any info would help?

Not sure where you are located. In my opinion, Memorial Sloan Kettering Cancer Center is the best.

http://www.mskcc.org/mskcc/html/44.cfm  (+ info)

i have rhabdomyosarcoma a type of cancer any help on how to cure it?

I'm having chemo n stuff for it but any ways to increase chances on living?!!?

all that depends on whether it was all removed by surgery, how agressive the cancer itself grows, etc. Most cancers when cought in early stages have really good chance.. I have cancer, but have never heard of what you mention. Try cancer.org and see if their website helps  (+ info)


one of my neighbor has it we are doing a ride for her i was wondering what is it?

look at this site...


Even if you don't find what you're looking for, it is very helpful in all aspects of cancer and knowing/ supporting people with it, and doesn't make anything more complicated than it is.

I'm sure she wouldn't be offended if you asked her, she will perhaps appreciate your concern...

Hope this helps and Many Blessings  (+ info)

My granddaughter is 8 years old. She has had a cancer called "rhabdomyosarcoma" for four years.?

She has had this cancer for four years. She went into remission and now the cancer is back. There are four stages and she is in stage four. Is there anyone out there that has had an experience with this that can share some info with me. Thanks!

God Bless your grandaughter and your family. I have no experience with this however, have you contacted St. Jude's Hospital????  (+ info)

1  2  3  4  

Leave a message about 'Rhabdomyosarcoma'

We do not evaluate or guarantee the accuracy of any content in this site. Click here for the full disclaimer.