FAQ - Sarcoidosis
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I am trying to start a fundraiser for a disease called sarcoidosis? I started making homemade candles 4 cause.


That's a great idea and it's wonderful that you're helping out for those with such an overlooked disease.
God bless and keep up the amazing work!  (+ info)

Is anyone familiar with sarcoidosis who can tell me the symptoms, treatments, etc. when it affects the lungs?


I want to know if there are any known treatments that work and just how serious of a disease it is.
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http://www.stopsarcoidosis.org/sarcoidosis/pulmonary.htm
This site should get you started.
God bless.  (+ info)

I need professional advise on Sarcoidosis. What is their symptoms, causes? How would you know you have it?


Doctors that are specialized with this sickness, are they available in the Philippines? Do you any Best Doctor in the Philippines that I can go to consult?
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A persistent cough. Sarcoidosis is an auto-immune problem. Get a chest x-ray and a chest ct done along with a bronchoscopy.  (+ info)

What could cause mediastinal lymph node swelling besides lymphoma or sarcoidosis?


I've had chest pain on left side for a few months. They thought it was just pleurisy, but it hasn't cleared. Just had a biopsy of nodes done which is negative for cancer, and sounds like they aren't thinking it's sarcoidosis either. Still have the pleurisy in left lung along with node swelling.
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In general, lymph nodes can be swollen due to infection, inflammation, or cancer. It is good that the biopsy was negative for cancer. The mediastinal lymph nodes could reflect a problem (such as an infection or inflammation) in the lungs, heart, thymus, esophagus, or their surrounding tissues. If you already know you have pleurisy, then that seems like the most obvious choice. I believe that certain infectious agents are more likely than others to cause swelling of the lymph nodes, such as TB or fungi. Take a look at the second source below, which has a lot more detail than what I've outlined, and see if anything else there seems to fit your situation.

Good luck, and I hope you feel better soon.  (+ info)

How does sarcoidosis affect the liver? ?


I was diagnosed with sarcoidosis 17 yrs ago. I have been on prednisolone 6 times since original diagnosis- anything from 4 mths to 18mths. My liver function tests have been out of wack for 2 yrs now. My Dr suspects it is related to the sarcoid and has ordered an ultrasound of the liver.
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Sarcoidosis may affect any organ or system in your body............In many patients, the disease gets better all by itself. women and people with less severe lung involvement usually do the best...............and it can cause the liver to enlarge. The disease rarely causes serious liver problems though; however, and most people do not even realize it when their livers are affected. If you have liver symptoms, they might include fever, feeling tired or fatigued, itchy skin, jaundice, which causes your skin and eyes to look somewhat yellow, pain on your upper right side under your ribs.  (+ info)

Anyone know about sarcoidosis first hand?


I was diagnosed with this malady- never heard of it- and haven't spoken to anyone first-hand. The web medical stories sound horrid. The Dr. simply states it can take several directions, but is rarely terminal.
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My husband was diagnosed with sarcoidosis,10 years ago.
He had tumors in his lungs and behind his eyes.
They did a bi-opsy of the lung tumors and left them where they were,but his eyes were a different matter all together.
He had High doses of steroids which he took orally for 3 months, and then they gave him steroid shots in both eyes.
That fixed both the lung problem and his eyesight.
We still see the specialist 1time a year to check that it hasn't returned in a different area.
Good luck to you.  (+ info)

How long it will take the treatment of Sarcoidosis?


The problem is regarding only lungs nodules.After taking the corticosteroids for three months continously...there is a remarkable inprovement.What actions should be prosecuted further?
Waiting for a quick and positive response...
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How is sarcoidosis treated?
There is no cure for sarcoidosis, but the disease may get better on its own over time. Many people with sarcoidosis have mild symptoms and do not require any treatment at all. Treatment, when it is needed, generally falls into two categories—maintenance of good health practices and drug treatment. Good health practices include:

•Getting regular check-ups with your health care provider
•Eating a well-balanced diet with a variety of fresh fruits and vegetables
•Drinking 8 to 10, 8-ounce glasses of water a day
•Getting 6 to 8 hours of sleep each night
•Exercising regularly, and managing and maintaining your weight
•Quitting smoking
•Avoiding exposure to dust, chemicals, fumes, gases, toxic inhalants, and other substances that can harm your lungs
•Avoiding excessive amounts of calcium-rich foods (such as dairy products, oranges, canned salmon with bones), vitamin D and sunlight. Daily sunbathing is an example of excessive sunlight and should be avoided; sunlight received from activities of everyday living is acceptable. (The advice in this bullet point is limited to patients with high blood or urine levels of calcium.)
Drug treatments are used to relieve symptoms, reduce the inflammation of the affected tissues, reduce the impact of granuloma development, and prevent the development of lung fibrosis and other irreversible organ damage.

Corticosteroids are particularly effective in reducing inflammation, and are typically the first drugs used in treating sarcoidosis. The oral corticosteroid prednisone is the most commonly used corticosteroid.

For patients with no symptoms or very mild symptoms, the side effects of prednisone therapy may outweigh possible benefits, so treatment is usually not recommended for this disease stage. Corticosteroids are more typically reserved for patients with disease that is of moderate severity. Symptoms, especially cough and shortness of breath, generally improve with steroid therapy.

Corticosteroid treatment controls the disease rather than cures it. The symptoms respond to treatment in the majority of patients. A relatively high dose is usually prescribed at first, followed by a slow taper to the lowest effective dose. Fortunately, disease relapses--when they occur--usually respond to retreatment with steroids. Patients who improve and remain stable for more than 1 year after stopping treatment have a low rate of relapse.

Results of some long-term studies indicate patients can expect about a 10 percent improvement in symptoms up to 5 years after quitting corticosteroid treatment. Whether or not this is a large enough benefit to outweigh the risks of corticosteroid treatment remains an issue debated by doctors. If steroids are prescribed, the patient should see his or her doctor at regular intervals so that the disease and side effects of treatment can be monitored. The common side effects of corticosteroids include:

•Excessive weight gain
•Insomnia
•Acne
•Diabetes in susceptible people
•High blood pressure
•Glaucoma
•Cataracts
•Osteoporosis
•Depression and emotional irritability
•Skin bruising
•Increased risk of infections  (+ info)

if someone has fibrosis of the lungs and sarcoidosis can they get disability?


if u cant breath and u get fatigued very easy doesn't that help ?
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It would depend on the severity of the fibrosis - I have fibrosis of the lungs but that's also from numerous health problems since 10 years old - I qualify but I'm not sure if you would. Go to your doctor and see if you qualify.  (+ info)

Can some one tell me about the disease called sarcoidosis?


The doctors said I have this want to know more about it
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What Is Sarcoidosis?

Sarcoidosis (sar"koi-do'sis) involves inflammation that produces tiny lumps of cells in various organs in your body. The lumps are called granulomas (gran"u-lo'mahs) because they look like grains of sugar or sand. They are very small and can be seen only with a microscope.

These tiny granulomas can grow and clump together, making many large and small groups of lumps. If many granulomas form in an organ, they can affect how the organ works. This can cause symptoms of sarcoidosis.

Sarcoidosis can occur in almost any part of your body, although it usually affects some organs more than others. It usually starts in one of two places:

Lungs
Lymph nodes, especially the lymph nodes in your chest cavity.
Sarcoidosis also often affects your:

Skin
Eyes
Liver.
Less often, sarcoidosis affects your:

Spleen
Brain
Nerves
Heart
Tear glands
Salivary glands
Bones and joints.
Rarely, sarcoidosis affects other organs, including your:

Thyroid gland
Breasts
Kidneys
Reproductive organs.
Sarcoidosis almost always occurs in more than one organ at a time.

Sarcoidosis has an active and a nonactive phase:

In the active phase, the granulomas form and grow. In this phase, symptoms can develop, and scar tissue can form in the organs where the granulomas occur.
In the nonactive phase, the inflammation goes down, and the granulomas stay the same size or shrink. But the scars may remain and cause symptoms.
The course of the disease varies greatly among people.

In many people, sarcoidosis is mild. The inflammation that causes the granulomas may get better on its own. The granulomas may stop growing or shrink. Symptoms may go away within a few years.
In some people, the inflammation remains but doesn't get worse. You may also have symptoms or flare-ups and need treatment every now and then.
In other people, sarcoidosis slowly gets worse over the years and can cause permanent organ damage. Although treatment can help, sarcoidosis may leave scar tissue in the lungs, skin, eyes, or other organs. The scar tissue can affect how the organs work. Treatment usually does not affect scar tissue.
Changes in sarcoidosis usually occur slowly (e.g., over months). Sarcoidosis does not usually cause sudden illness. However, some symptoms may occur suddenly. They include:

Disturbed heart rhythms
Arthritis in the ankles
Eye symptoms.
In some serious cases in which vital organs are affected, sarcoidosis can result in death.

Sarcoidosis is not a form of cancer.

There is no known way to prevent sarcoidosis.

Sarcoidosis was once thought to be an uncommon condition. It's now known to affect tens of thousands of people throughout the United States. Because many people who have sarcoidosis have no symptoms, it's hard to know how many people have the condition.

Sarcoidosis was identified in the late 1860s. Since then, scientists have developed better tests to diagnose it and made advances in treating it.  (+ info)

Does anybody out there have sarcoidosis?


I ahve had it for 5 years..It went away for 4 and is back. I had to start prednisone again. Does anyone know of any natural treatments or something good to help your immune system?
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I feel for you. By best friend was diagnosed 2 years ago and has been on pregnisone ever since. She is also activly taking mexatrethate along with 10-15 other drugs virtually everyday to help with the side effects from the pregnisone and mexa.

I saw a response from a homeopath person on another blog and she suggested ARNICA 30C + BRYONIA 30C + RHUS TOX 30C together thrice a day half hour before meals and SULFUR 200C once a day first thing in the morning for the next three days.

I am not a homeopathic, this is just what I read. You can how ever talk with a person at the natrual food store and see what they recommend. Also, before taking ANY type of alternative medications please make sure you research them and talk w/ your dr. or pharmacist to make sure that they do not interfere with any other medications (including vitamins) that you may be taking.  (+ info)

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