FAQ - Sjogren-Larsson Syndrome
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What is the difference between Sjogren'syndrome and dry eyes?


My eye doc says they are the same but I've never heard of a dry eye tearing but have heard of a Sjogren's dry eye tearing. I HAVE TORN MY EYE 3 TIMES IN TWO WEEKS. Please help????
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Your doctor is correct they are the same thing. Are you using an eye ointment At night? That's going to lubricate better than drops. This will also help stop the tearing. try Hypotears eye ointment. you have to use this every night and drops throughout the day. I'm also enclosing a link where you can see about a different gel lubricant that works very well and you can see with it, unlike the ointment.  (+ info)

I am looking for a Cleveland Doctor that specializes in Sjogren Syndrome?


Sjogren Syndrome - I am looking for a doctor in Cleveland OHIO or a patient who has been diagnosed with this syndrome
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What does a high sedementation rate mean to someone with SLE Lupus and Sjogren's Syndrome?


I have both Lupus (SLE) and
Sjogren's Syndrome (for 15 years). Recently, in a blood test, my Sed Rate was 40, and this really upset my GP. She has referred me to see my Rheumatologist ASAP. What can this mean besides "inflammation"?

I am also anemic and have been since August. I'm on double iron and folic acid and still continue to be anemic. My hematologist just did a bone marrow test and I don't have the results yet. This past 5 months have been very bad and I'm afraid I have something new. Can anyone help?
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It means your diseases are active and the SED rate is a marker to show inflammation in the body. SED rates are also elevated in people with active arthritis. Inflammation of the joints, and would be elevated during an infection. Your immune system is hyperactive with your type of diseases, and your SED rate is an indicator of your disease. The Rheumatologist is expert in this area of helping the active phase of your disease to subside.  (+ info)

What is the difference between primary and secondary Sjogren's Syndrome?


Sjogren's that occurs as part of a rheumatic condition such as Rheumatoid arthritis or lupus is called Secondary Sjogren's.
Primary Sjogren's occurs by itself  (+ info)

Anyone have Sjogren's Syndrome and take over-the-counter medications/vitamins for your fatigue?


I have been on Plaquenil for years but only need it for the muscle aches. Would like to get off of it but am afraid of the fatigue factor as well.
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How to treat Sjogren syndrome? Any cures? Any procedures? Any good over the counter medications?


My cousin has just been diagnosed with it, and we are very worried. Any help out there?
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Edit- added links to lupus, because NORD link says sjogren is linked to lupus too...and changed clinical trials link to sjogren's because mispelled..

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here are some links..

Sjogren's syndrome

http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Sjogren%20Syndrome (NORD…scroll down for support organizations)
http://www.clinicaltrials.gov/ct/search?term=sjogren%27s+syndrome&submit=Search
(clinical trials)
http://www.medifocushealth.com/RH011/sjogrens_syndrome.php?a=a (sjogren's guidebook)
http://autoimmune.pathology.jhmi.edu/diseases.cfm?systemID=3&DiseaseID=22 (John Hopkins…hashimoto’s thyroiditis linked to sjogren’s syndrome)

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since I found the last link...I will give you all the links that I found for someone else about Hashimoto's thyroiditis an autoimmune disease (as sjogrens is)....

Hashimoto’s thyroiditis

http://www.clinicaltrials.gov/ct/search?term=thyroiditis&submit=Search
(clinical trials...one with selenium..one with hep c relationship to hashimoto's, one with postpartum link)
http://en.wikipedia.org/wiki/Hashimoto's_thyroiditis (wikipedia)
http://www.nlm.nih.gov/medlineplus/ency/article/000371.htm (medline plus)
http://autoimmune.pathology.jhmi.edu/diseases.cfm?systemID=3&DiseaseID=22 (John Hopkins…linked to sjogen’s syndrome)
http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Hypothyroidism (NORD..hypothyroidism…scroll down for related organizations)
http://www.hormone.org/public/thyroid/hypothyroidism.cfm (the hormone foundation)
http://www.thyroid-info.com/hashimotos-encephalopathy.htm (Hashimoto’s encephalopathy…rare)
http://www.thyroid-info.com/articles/yersinia.htm (hashimoto’s and food borne infection,Yersinia enterocolitica infection, via contaminated meats -- especially raw or undercooked products -- poultry, unpasteurized milk and dairy products, seafood -- and particularly oysters -- from sewage-contaminated waters and produce fertilized with raw manure. Foods can also be contaminated by food handlers who have not effectively washed their hands before handling food or utensils used to prepare food. Improper storage can also contribute to contamination.>> stool test that can detect yersinia enterocolitica )
http://www.thyroid-info.com/articles/cohen.htm (hashimoto’s and anergic depression)
http://thyroid.about.com/cs/hypothyroidism/a/hashivshypo.htm (hashimoto’s vs hypothyroidism..what is the difference… In the study of 21 patients with euthyroid Hashimoto's Thyroiditis (normal range TSH, but elevated antibodies), half of the patients were treated with levothyroxine for a year, the other half were not treated. After 1 year of therapy with levothyroxine, the antibody levels and lymphocytes (evidence of inflammation) decreased significantly only in the group receiving the medication. Among the untreated group, the antibody levels rose or remained the same.
The researchers concluded that preventative treatment of normal TSH range patients with Hashimoto's disease reduced the various markers of autoimmune thyroiditis, and speculated that that such treatment might even be able to stop the progression of Hashimoto's disease, or perhaps even prevent development of the hypothyroidism. )
http://thyroid.about.com/cs/hypothyroidism/a/hashivshypo_2.htm (page 2…selenium might help…and calcium with magnesium supplements for nighttime problems)
http://thyroid.about.com/cs/hashimotos/a/encephalopathy.htm (hashimoto’s encephalopathy)
http://thyroid.about.com/od/hypothyroidismhashimotos/a/preventative.htm (treating antibodies when TSH is normal)
http://thyroid.about.com/blcohen.htm (treating anergic depression)

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Lupus

http://www.clinicaltrials.gov/ct/search?term=lupus&submit=Search (clinical trials, page 1)
http://www.clinicaltrials.gov/ct/action/GetStudy;jsessionid=D495FFC64F8842AFC7A901D8B70AD35A (clinical trials , page 2)
http://www.lupus.org/webmodules/webarticlesnet/templates/new_empty.aspx?articleid=568&zoneid=76 (clinical trials of a novel therapeutic)
http://www.lupus.org/webmodules/webarticlesnet/templates/new_empty.aspx?articleid=569&zoneid=76 (clinical studies of lupus)
http://www.lupus.org/webmodules/webarticlesnet/templates/new_resourcesfind.aspx?articleid=157&zoneid=35 (find local resources)
http://www.lupus.org/webmodules/webarticlesnet/templates/new_resourcespatient.aspx?articleid=174&zoneid=39 (patient and caregiver resources for meds)

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3 books on disease symptoms and treatments

you could also get these books on ebay or amazon or a half price book store. (last two are very similar)..
1.Oxford Handbook of Clinical Medicine
2.Handbook of Diseases (Lippencott)
3.Professional Guide to Diseases (Springhouse)  (+ info)

I have Sjogren Syndrome. I can't produce tears. My doctor is sending me to a Rheumatologist.?


Apparently, those with Sjogren Syndrome, night also be at risk for Rheumatoid arthritis. anybody else have this problem? and had to go to a rheumatologist?
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I have primary sjogren's syndrome-is breast augmentation out of the question because of my disease?


I was diagnosed 1 year ago (but have had it for at least 5-bloodwork from first preg. indicated a problem.) I have very mild symptoms. I always planned on having surgery after having children. Now I am afraid it may be too risky?
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Hey, breast augmentation is NEVER a good idea.  (+ info)

I have recently been diagnosed with sjogren's syndrome. Is there any web sites or forums for this?


It has caused me a lot of problems. I was just wondering if there was a web site I could go to for help. I would like to talk to others that have this condition and what they are doing for the symptoms.
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Yes, there are tons of resources on the web. Start at google, type in your condition, and you'll find tons of links.

A few to get you started....

My sympathies. That's one of those "but you don't look sick" illnesses.   (+ info)

When do you say "you have Sjogren's Syndrome"?


I would like a professional or someone with experience to reply, although I will listen to what you have to say, thank you. My rheumatologist THINKS I have Sjogren's Syndrome. My ANA was positive and symptoms only include dry eyes. Nothing else matches Sjogren's symptoms. Lupus, based on the tests he did, was thrown out. Can anything else create a positive ANA? or Should I go on meds for Sjogren's even when the doctor is NOT 100% sure and my only symptom is dry eyes?
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I am currently under treatment for Lupus (for almost 1 year). I still do not have a definitive diagnosis. I have SOME symptoms of lupus, but I have to have a certain number of symptoms before I can be OFFICIALLY diagnosed.

I would definitely follow your doctors directions!! I have very few external symptoms of Lupus, some of my bloodwork is just suggestive.  (+ info)

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