FAQ - Still'S Disease, Adult-Onset
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What is the mortality rate and how rare is ADULT onset Burkitt's disease in US?


check out www.burkitts.org I dont think this type lymphoma is common although I knew a person who acquired it in Africa and died from it  (+ info)

I am wondering if anyone can tell me about Adult Onset Pelizaeus-Merzbacher disease?


It seems that my mother may have this. She has been going to doctors for almost 2 years now trying to figure out what is wrong with her. She has muscle spasms, tremors, and sometimes tightening in her arms. Her CT Scans show progressive growth of her white matter, and her memory is going. She has trouble holding normal conversation, she jumps around a lot and forgets what she is talking about within a few sentences. The doctors have told us this MAY be what she has, but they have also said that about MS, Crohns and a couple of others. Thanks in advance.
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PMD ( Pelizaeus-Merzbacher Disease) is caused by a, usually, recessive gene on the long arm of the " X " chromosome.
There are similarities to MS because both of these disorders are due to the wasting away of the myelin sheath, a fatty covering- which acts an insulator on nerve fibers **in the central nervous system. Basically, this layer protects nerve fibers and keep them working properly. Without this layer,neurons can no longer conduct their electrical impulses.
***MS affects the areas of the brain and spinal cord ( central nervous system) known as the white matter. White matter cells carry signals ( impulses) between the gray matter area, where " processing is done", and is sent to the rest of the body.
The similarity in these disorders has to do with the myelin sheath and some of the symptoms are alike as well.
As previously mentioned, PMD is a rare progressive, GENETIC disorder.
In adult onset cases,deteriorating speech may be an early sign. Other symptoms:
1) Tremor ( shakiness)
2) Various, involuntary body movements
3) Facial grimacing
4) Weakness
5) Unsteady gait ( walk)
6) Muscle contractures ( shrinkage or shortening of the
muscles
Over time, the legs and arms become " spastic " and mental functions may deteriorate.
Some patients may have convulsions ( seizures) and skeletal (bone) deformation such as, scoliosis.
There is no cure nor,is there a standard course of treatment. But, the symptoms of seizures and body movement disorders can be treated with medication.
The prognosis is highly variable. If restorative care is provided, such as Physical Therapy, Speech Therapy, and Occupational Therapy, along with antiseizure meds,then these measures can help to correct some of the symptoms.
Further testing by your Mom's Docs needs to be performed to determine the correct diagnosis.
You need to be proactive and speak to her Docs, ask questions, any suggestions that may benefit your Mom.
I hope that this is helpful and, God Bless to your Mom.
Ruth  (+ info)

I'm curious, what would my doctor most likely prescribe if I was diagnosed with something like adult onset ADD


I'm curious, because I've researched the disease, and not really keen on taking prescription meds, and before being diagnosed, I want to know what the drugs do and how they work.
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There is no such thing as adult onset ADD.

You may only have been diagnosed as an adult, but if you didn't have ADD as a child, you don't have it now. You don't develop ADD. You are born with it.


Drugs for ADD include Adderal - a.k.a. speed.
Another ADD drug is Ritalin.  (+ info)

did anyone with adult onset diabetes start out with hypoglycemia?


i'm hypoglycemic and the information i'm finding goes back and forth about how it's the beginning stages of adult onset diabetes. so i would like to know if anyone had hypoglycemia, didn't treat it (still eating sugar and so on), and then got diabetes. can low blood sugar lead to high blood sugar? diabetes is high blood sugar right? see i really need some input.
yes i have had my blood sugar tested. what kind of question in that anyways?
go f*ck yourself, hoosier, you uppity prick. what basis do i have....jerk....i've had a very difficult time controling my hypoglycemia considering i was an alcoholic.
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I'm type two and never had a hypoglycemic episode... for what it's worth.

I've heard of it happening, but I have no idea as to what kind of frequency we're talking about.

Yes, diabetes is a condition of high blood sugar... not always the same cause, though. That's why there's two major types.... one and two.  (+ info)

When were you diagnosed with adult onset asthma and what do you think caused it?


I was diagnosed with exercise induced asthma when I was 20 and adult onset asthma 2 days after I turned 21 (I had a persistent cough for 2 months before seeking help) Just wondering if many others out there were diagnosed after childhood, why think it was caused and how long have/were you on a preventer for? Thanks!
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I've been asthmatic for most of my life and on a preventer since I was 14. I've been taking relievers since I was 6. Pollen and sudden changes to the air (i.e someone blasting the air conditioner) and occasionally exercise tend to cause attacks.

Asthma is genetic. The same gene responsible for other reactions such as hayfever and eczema.  (+ info)

Has anyone had positive results with alternative adult onset (type 2) diabetes treatments?


I am interested in finding out any and all alternative (besides the regular medical advice) type 2 diabetes treatments.Any answers are welcome-thanks.
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Cinnamon capsules can help with blood glucose (works with the pancreas) as well as high cholesterol and high blood pressure levels and it's great for general heart health. In particular if you're gonna eat any sweets take a cinnamon cap about 20 min ahead of time (in addition to daily cinnamon supplements).

The next thing is gymnena (may be hard to get but if you have a good herbal store they should carry it). The gymnema will help your pancreas start doing the correct production of sugar levels. A lot of people have been able to stop any Western Medicine treatment for Type 2.

If you are on Western Medicine treatment make sure you stay well away from grapefruit (in any form).

Also I would highly recommend a Gluten Free diet, it's done wonders for many.

Good luck with your search and I hope some of these suggestions help.  (+ info)

Can adult onset diabetes be prevented?


My father was diagnosed with diabetes when he was in his late thirties. My mother was diagnosed with it when she was 58 but probably had it earlier than that. Also, my father was obese and died at the age of 53 due to heart disease. I was wondering if there was anything I could do for myself. I am 30 and quit smoking recently, but other than that, I am healthy and at my ideal weight. Needless to say, my family history isn't very promising. Am I doomed to develop diabetes? I can accept it if I am but would like to avoid the family fate if possible.
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Absolutely preventable. It's a lifelong committment, though. If you act like you have it right now, and eat properly and exercise, you aren't likely to ever get it. Also, it wouldn't hurt to read my diabetes info webpage and get the book I mention by Patrick Quillin. Here's more:
http://www.geocities.com/seabulls69/Type_II_Diabetes.html  (+ info)

How do they test for adult onset ADD/ADHD?


I'm 20 years old and after struggling in college and fitting so many descriptions of ADD/ADHD, I'm finally going to get tested. I've heard of some of the tests for children but I was wondering how they do the testing for adults?
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There are diagnostic critieria that must be met that come from what is called the DSM-IV. Some areas to be assessed are impulsivity, and concentration. There are specific pencil and paper tests that can be given for screening - Connor's for example as well some computer tests such as the TOVA, and Continuous Performance Testing I believe. Family background is looked at - is there someone in your immediate family that has it, or someone - yourself that had a learning disability. A learning disability is not ADHD, but can co-occur with it. Sometimes a WAIS (inteligence test) can be administered as there are certain parts of that test that can point towards attentional and concentration problems.

A good book to read is called "Driven to Distraction" which is writen by a psychiatrist with ADHD and another is called "You mean I'm not Lazy, Stupid, or Crazy?" by Kelley and Ramundo. They deal with adults who have ADHD.

Hope this helpful, and I wish you well.  (+ info)

Does Cranberry Juice help malfunctioning kidneys caused by adult onset Diabetes?


I have received conflicting advice from the Medical Profession.
Thank you.
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No.

Once your kidneys have begun to malfunction, there is usually very little that can be done. Damage from Diabetes is almost always permanent. Damage is caused from scar tissue left over from the damaging effects of sugar molecule attached to red blood cells (this is called GLYCATING, and is what the A1C test measures).

the only thing that can be done is to take proper care of yourself, and do everything medically possible to prevent the disease from getting worse.

ASK the doctor that is treating your diabetes to refer you to a Nephrologist (kidney specialist). The nephrologist should take a Creatinine and BUN reading, and from that should be able to get you a Glomular Filtration Rate reading, which is based on your age, sex, ethnicity, and Creatinine reading. Keep that GFR as high as possible, and definitely above 50% !!

Cranberry juice probably won't hurt anything, but if you expect it to improve the situation, or repair the damage, you are wasting money.  (+ info)

Are things like stroke, heart attack, and adult onset diabetes more hereditary or more environment influenced?


Environment meaning lifestyle, exposure to stress, chemicals/pollution, location, etc.
Or is this stuff more influenced by genetics and just ready to come out in the right conditions?
And I'm asking this with the knowledge that even if it does tend to run in families there are things you can try to do to keep from getting it. But can you really prevent these things with effort? Or is it going to happen any way if it's in your genes?
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It's funny you should ask, because I just volunteered to be in a study at the National Institutes of Health, which is going to try to answer that very question. They gave me a whole bunch of information, which I can summarize here.

First of all, no one knows for 100 percent sure (which is why they are doing the study). However, it SEEMS that you need both the genetic tendency and the lifestyle, eating habits, stress levels, etc. In other words, the current expectation is that the study will find that people are more likely to get heart disease and adult onset diabetes if they have the genes for them. But "likely" does not mean "definitely will." We'll see. But it's a great question, and I am going to give it a star.  (+ info)

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