FAQ - Supranuclear Palsy, Progressive
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How many people know what Asbergers is OR Progressive Supra Nuclear Palsy are?

Aspergers is a bit like Autism. Ever see "Rain Man"?

An aspergers child is usually antisocial, has difficulty with being touched, and does not make friends easily.

The biggest difference between autism and Aspergers is that Autistic children are sometimes called "idiot savant" - this is an old and very outdated term, but what it refers to is the fact that Autistic children usually are brilliant in some aspect. Usually with numbers.

In Aspergers, children are usually stronger with Language. They may seem withdrawn, but will talk with an amazing vocabulary or understand advanced literary passages, or make connections in poetry that are beyond their age level.  (+ info)

What do we look for in patients that have progressive supraneclear palsy in their last days?

That have a what in their what?????  (+ info)

Can acupuncture help for Progressive Bulbar Palsy?

I found a Chinese medical study suggesting Acupuncture had good results for symptoms of Bulbar Palsy, but it was a very small study and was published way back in 1996.
There seems to have been no further research even though the results seemed promising. Maybe the paper didn't stand up to peer review, or was proven to be flawed somehow.

So I'm wondering if anyone knows if acupuncture can ease speech and dysphagia/swallowing problems with Bulbar related neurological diseases?


Acupuncture may be able to temporarily arrest, or reverse, dysphagia in PBP cases. In studies treatment has been shown to have a positive effect on dysphagia in post-stroke patients,and although the diseases are separate it does illustrate acupuncture can have a positive effect on restoration of function when neurological damage has occurred.

Due to the progressive nature of Bulbar Palsy, I would say that positive outcomes from acupuncture would not be a permanent. Treatment would be focused on improving quality of life for as long as possible.

Here is a link to a 2003 study published on Acupuncture and Dysphagia in the Medical Acupuncture Journal: http://www.medicalacupuncture.org/aama_marf/journal/vol14_3/article3.html  (+ info)

What are the last stages of Motor Neurons Disease, possible type Progressive Bulbar Palsy?

It progresses to aspiration pneumonia, then respiratory arrest.  (+ info)

is it safe to be around progressive supanuclear palsy suffers?

Yes, but you need some help for it. I suggest you get it fast! ;)  (+ info)

Who is the best homeopathy Dr. in India treating patients with hypothyroidism AND PSP(Para Supranuclear Palsy)

My Father is suffering from hypothyroidism and Para Supranuclear Palsy.Who is the best homeopathic Dr. in Delhi NCR or India whom we can contact.The disease has no cure in Ayurvedic and Allopathy. Thanks-Rajiv Chandna

Contact Delhihomeo.com for referral to the Homeopathic doctor who can treat your father's condition. Good luck!  (+ info)

I cant find super progressive nucleur palsy?

Try this term instead:
Progressive supranuclear palsy
There are lots of good websites.  (+ info)

progressive supraneural palsy?

What exactly is this condition described as? I know the symptoms but dont know exactly what it is.

Known as PSP - Progressive Supranuclear Palsy -
is a very unpleasant degenerative disease for which there is no cure. It can be confused with Parkinson's Disease in the early stages, but has a few distinguishing features - a tendency to overbalance backwards, an arching of the neck muscles and an inability to move the eyes up and down are a few. There's loads on the web.  (+ info)

what is progressive supranuclear palsey?

Sorry to just be pasting this, but there's a lot of info, and I can't paraphrase it all. The link to the site is below, for more info.

What is progressive supranuclear palsy?
Progressive supranuclear palsy is an under-recognized brain disease. Symptoms typically begin in one’s 60’s, but can start as early as the 40’s. Those affected usually survive six to ten years after the initial symptoms occur. In people with PSP, gradual loss of certain brain cells causes slowing of movement and reduced control of walking, balance, swallowing, speaking and eye movement. People with PSP eventually become wheelchair bound or bedridden.

PSP is often misdiagnosed as Parkinson’s disease because of the general slowing of movement. Less often, it is mistaken for Alzheimer’s disease because of its changes in mood, intellect and personality.

The cause of PSP is not known, but it is at least partly genetic. A brain protein called tau accumulates in abnormal clumps in certain brain cells in people with PSP causing the cells to die. Exposure to unidentified chemicals in the food or environment probably also plays a role in the failure of these brain cells and the clumping of tau protein.

There is currently no effective medication for PSP. Drugs that may have a temporary or modest benefit are levodopa (as in Sinemet), amantadine, and amitriptyline. Botulinum toxin injections are sometimes used to treat the blepharospasm (involuntary eyelid closure) that occurs in some people with PSP. Artificial tears can be used to help prevent drying out of the eyes due to decreased blinking. Use of a weighted walker can help prevent backward falls. Glasses with prisms can aid the difficulty in looking down.

What research is being done?
Research is proceeding on several fronts, but more needs to be done. The most promising leads are: 1) A normal protein called tau forms abnormal clumps in the brain cells in PSP. Much recent work is aimed at determining just what causes the tau molecules to clump. A genetic variation in the tau gene is present in nearly everyone with PSP and in only about half of the non-PSP population. This variant in tau probably causes excessive production of that protein, which clumps when its concentration exceeds a critical level. 2) A clue to why only a few people with the tau variant develop PSP may be diet. Certain tropical fruits have been associated with a PSP-like illness on the Caribbean island of Guadeloupe. The precise nature of this is being investigated in order to determine whether chemicals similar to those in the fruits may be causing PSP in other populations. 3) Animal “models” of PSP have recently been created. Mice and fruit flies with an abnormal tau gene develop the same kinds of tau aggregates in their brains as humans with PSP. Such animals are useful in understanding the development of brain cell loss and in developing treatments.  (+ info)

what is cerebral palsy and is it painful? Once it happens, is it progressive?

Cerebral palsy or CP is the most common childhood physical disability. It is a permanent physical condition that affects movement. A new international consensus definition has been proposed: "Cerebral palsy (CP) describes a group of disorders of the development of movement and posture, causing activity limitation that are attributed to non-progressive disturbances that occurred in the developing fetal or infant brain. The motor disorders of cerebral palsy are often accompanied by disturbances of sensation, cognition, communication, perception, and/or behavior, and/or by a seizure disorder” (Rosenbaum et al, 2005)". The incidence in developed countries is approximately 2-2.5 per 1000 live births. Incidence has not declined over the last 60 years despite medical advances like electro-fetal monitoring. Cerebral palsy is a non-progressive disorder, however secondary orthopaedic deformities are common for example, hip dislocation and scoliosis of the spine. There is no known cure; medical intervention, Conductive Education (w) has been shown to be helpful. These treatments focus on developing the person's participation in everyday life, and not 'fixing' their impairments. While severity varies widely, cerebral palsy ranks among the most costly congenital conditions to manage.

Cerebral palsy is an "umbrella term" in that it refers to a group of different conditions. It has been suggested that no two people with CP are alike even if they have the same diagnosis. Cerebral palsy is divided into four major classifications to describe the different movement impairments. These classifications reflect the area of brain damaged. The four classifications are: (1) Spastic; (2) Athetoid; (3) Ataxic and (4) Mixed. Spastic cerebral palsy is further classified by topography, dependent on the region of the body affected. These typography classifications include: (1) hemiplegia (one side being more affected than the other); (2) diplegia (the lower body being more affected than the upper body); and (3) quadriplegia (All four limbs affected equally).

Cerebral palsy can occur during pregancy (~75%), at birth (~5%) or after birth (~15%). 80% of causes are unknown. For the small number where cause is known this can include infections, malnutrition, and significant head injury in very early childhood.  (+ info)

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