FAQ - Supranuclear Palsy, Progressive
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What is Bells Palsy and how can it be treated and cured?

I just got word that one of my relatives has been diagnosed with Bells Palsy. I know very little about this condition? What are the syptoms? How can one get better? How can a doctor help? What are the long range challenges? Can one still have a quality of life? Is this cureable and if not how can this condition be managed.

Bells Palsy is chacterized by lack of muscular control on one side of the face. it's caused by a malfunction of the facial nerve. Someone with bells palsy might have problems smiling completely, or it might look like one side of their face doesn't move. If you've ever seen batman, imagine "two-face". It's completely painless, and is sometimes more of just an annoyance than a real problem.

There's still a big debate about what causes it, but some studies indicate that EBV (the virus that causes mono), Herpes and Lyme disease might be a cause. Generally it tends to go away on it's own in a few weeks to a few months. There are not many treatments for this. I generally tell my patients to wait a month and see how it goes, unless it's severe and they have problems eating and such. Then i usually prescribe steroid medications.

It shouldn't affect the quality of someone. They might drool a bit at first, or have some problems eating, but they should get used to it very soon. As I said, symptoms generally disappear within a few weeks to a few months  (+ info)

Who is a medical professional i could contact regarding the use of stem cells to cure cerebral palsy.?

My brother is an adult male with cerebral palsy due to birth trauma. I have heard of some interesting research being done regarding the use of stem cells in curing cerebral palsy. Could anyone provide me with a contact for more information or a site where the procedures are discussed more in depth? Thanks.

you could look on line to see who is doing clinical research or conducting
trials on this procedure and may by become part of the research trials.
like U C Davis in california is doing clinical trials on emplantable
contac lenses. you have to pay for the procedure, but at least you
can get it done if you don't want to wait till its available to the public.
if you type stem cell research trials in your computer search bar
i would think something will come up to lead you to what you need.  (+ info)

What kind of charity events exist to support Cerebral Palsy?

I am currently training for next years "Pedal to the Point" for the MS society. I have a brother with Cerebral Palsy, and I was wondering if there was anything that existed to support CP like a walk, run, or bike charity event. Anyone know of one?

http://lmgtfy.com/?q=Cerebral+Palsy+Charities  (+ info)

what is the difference between progressive lenses and no line bifocals?

my mom has progressive lenses and hates them. she previously wore reader glasses and this is her first pair of "real glasses." she hates the progressive lens, and is considering taking the glasses back. any suggestions? and also, what is the difference between the progressive lenses and no-line bifocals? thanks.

Progressive lenses have less power at the top edge and maximum power at the bottom edge. The power of the lens increases gradually from top to bottom. The idea is that you can adjust your head so that you are looking through the part of the lens which is just right for the distance of the thing you are looking at. Most people don't like these at first because it takes a change in the way glasses are used. Older people do not like change. However people who will work with the progressive lenses and learn to use them usually end up liking them.

A no-line bifocal lens is one which does not have a distinct line between the top and the bottom lens. It has a more gradual change from upper to lower, like the progressive, but not totally, it is a compromise between bifocals and progressive lenses.  (+ info)

How significant is a traveling tinel sign with radial nerve palsy?

I had sugery for a broken humerus and sometime during the surgery I developed radial palsy it has now been four months and the tinel sign has moved down my arm from the triceps area to the elbow area. Is this a promising sign of recovery?

Only the doctor can say for sure, hopefully yes it is a good sign as it is moving towards the source of the palsy,, good luck,,  (+ info)

How many peps out there with a child with cerebral palsy and a deployed husband?

I have 3 daughters ages 7, 5, and 20 months. Eldest with cerebral palsy (can walk with walker and braces but mostly crawls, and doesn't talk). Husband is in Iraq for 2nd time, 3rd time overseas. Just wondering if there are anymore out there in the same "boat" that I'm in.

My husband is also military, but he's home right now.Our two year old has CP. Feel free to email me if you'd like someone to talk to. I can be contacted through Y!A and will give you my email then.  (+ info)

What are the chances of Cerebral Palsy being passed through to an unborn child during a pregnancy?

My fiancee and I want to have a baby, but he is worried that his cerebral palsy (mild) will be passed on to the baby and since he is older, he wouldn't be around to help me raise the baby and also he knows the cruelness and the hard times he had while he was growing up.

Your child's chances are the same as anyone else. Cerebral palsy isn't something that is passed down from parent to child, it is a birth defect that happens before birth, during birth, or perhaps even shortly after birth. It is usually the result of a stroke. So, I would not worry too much, as your husband cannot "give" your child C.P. It isn't apart of him in that way.  (+ info)

Do people with severe cerebral palsy understand what you say to them?

There is such a wide range of severity with cerebral palsy. I am wondering if a 12-year-old child with very severe cerebral palsy (cannot walk, talk, eat without help) understands what I say to him. Thanks!
Thanks for your answers so far! Based on your answers, he may be able to really understand me. So to him, do you think it would be offensive if I talked to him very sweetly almost "baby talk"? Or should I speak to him (nicely of course) like any other 12-year-old?

Absolutely. Some are very smart and understand everything.

"Spastic Cerebral Palsy, the most common form of CP, causes the muscles to be tense, rigid and movements are slow and difficult. This can be misinterpreted as cognitive delay due to difficulty of communication. Individuals with cerebral palsy can have learning difficulties, but sometimes it is the sheer magnitude of problems caused by the underlying brain injury that prevents the individual from expressing what cognitive abilities they do possess."

http://en.wikipedia.org/wiki/Cerebral_palsy  (+ info)

How did you feel when you found out that your child had cerebral palsy?

We always knew that our now 16 month old daughter was a little 'behind' for her age, but when the paeds told us yesterday that she actually had cerebral palsy - I was dumbfounded.

It took a whole day to sink in, and I wasnt hit with the severity of it until this morning (and it felt like I was hit with a shovel on the head).

I'm devistated. How did you feel? What did you tell your family?

I'm a 26 year old female with mild spastic diplegia cerebral palsy, and although I obviously don't remember being diagnosed, I do know that my mother worried more BEFORE the diagnosis than she did afterwards. Like you, she knew something was wrong, and she was relieved when the doctors told her what it was because now "it" had a name.

I suspect what you are most worried about is how your daughter is going to function in a "normal" world. I'm not going to lie, it's very hard, and it's probably going to be harder on you than it will be on your daughter. But one thing my parents did for me that was absolutely invaluable was to tell me from a very early age "Don't ask us for help if you can do it yourself." They would show me how to do things, and then expect me to do them, even if it took me three times longer to get it done than everybody else. It made me feel at times like they didn't really love me; especially when they would just stand there after I fell and watch me pick myself up again--which at the beginning took a full five minutes. I now realize of course, that they were doing this because they loved me. Independence is a LIFELONG process.

As your daughter grows and develops, you will learn what the severity of her disability is, and how much she is really capable of, but I'm going tell you right now, if you push her, she will me MUCH more capable than the doctors give her credit for. Push her, push her, push her! It's painful but oh, so necessary. You cannot begin to teach your daughter independence at the age of 25 and expect her to catch up with everyone else. I am what I am today because I have spent a lifetime learning it.

Your dreams for your daughter will need to be readjusted, but they do not have to die, and this is what I would tell your family. I have been alble to achieve everything I set my mind to, even if it took me a little longer to reach my goal. I'm trusting the same will be true for your daughter. The only thing I cannot do is drive. I am in grad-school for my Masters in Divinity right now (so I can preach), and I would love to get my PhD someday. I walk and do pretty much everything for myself, even if it is awkward. I have some self-image issues because of the fact that my walking gait is ugly, but that's my own junk to deal with.

This is not a death sentence. Please believe that. Inside your daughter is a wonderful, God-made person just waiting to get out with your help. Make sure you have good physicians and physical and occupational therapists, and you will be fine.

Let me know if you need anything else. I'm here to help.  (+ info)

Is cerebral palsy the outcome of all in utero stroke children?

Grandaughter diagnosed with in utero stroke on left side of brain. She has some right side weakness. Everywhere I look it seems like cerebral palsy is the outcome. Does anyone know?

CP is

a non progressive lession with an abnormality of motor function (the ability to move and control movements) that is acquired at an early age either prenatal perinatal or post natal up to 2 years of age..

So to answer you question, an in utero stroke is generally considered cerebral palsy specifically hemiplegic cp (one side of the body)

Hope this helps  (+ info)

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