Diagnosed with Tetralogy of fallot?
Im 11 and just diagnosed with Tetralogy of fallot(TOF). Im pretty scared! I've heard that I'll need many heart surgery's and cauterization's! What happens now? What causes this?(I had a snowboarding accident! Broke my arm leg and small injury to neck and hip! Can this be cause by the accident) What treatments and things will i need? Can i live a normal life(I love snowboarding,will i have to quit)?What about school? Any more info please!!!!!!!!!!!!!!(My doctor answered the questions but i was confused and stuff so if you can explain all these questions a little better i would really appreciate it)! They also told me about HeartKids and make-a-wish what are those like?
Thankyou so much!
Why would lie?
I know someone who has this aswell and he's 9!
In tetralogy of Fallot, four specific heart defects occur together.
* This condition includes four heart defects that can lead to the circulation of oxygen-poor blood.
* Symptoms include mild to severe cyanosis (a bluish discoloration of the skin), life-threatening attacks, and a heart murmur.
* The diagnosis is based on the results of an echocardiogram.
* Surgery is required to correct the defect. (+ info
Tetralogy of Fallot & Transposition of Great Arteries?
Can an infant born with these two heart defects at the same time?
huntress - that's an excellent question. Technically the answer is no, but it is really a matter of semantics. An infant CAN be born with a combination of the two conditions, but it would be called something else entirely depending on the specifics of the anatomy. The most likely would be "double outlet right ventricle with d-malposition of the great arteries". Hope you find that helpful! (+ info
Anyone else have Tetralogy of Fallot?
I'm a tetrallogy of fallot. Still here with 38 year old. you can contact my messenger if you have questions.
Tetralogy of Fallot people?
I'm just curious to hear from others with this defect. How old are you? How are you doing - have you had any complications?
I haven't needed anything since my surgery 20 years ago, but I don't know if I'm an especially lucky case.
Rather than answer this question personally, I'd instead like to refer you to the Adult Congenital Heart Association, a US nonprofit organization dedicated to the education, advocacy and support of adults with congenital heart defects such as Tetralogy of Fallot. They have an FAQ that has been approved by their medical advisory board. They also have a very active message board where you can correspond with other adults with CHD, including Tetralogy of Fallot.
Since ToF is classified as a moderately complex CHD by the American College of Cardiology (See 32nd Bethesda Conference Guidelines below), the ACC recommends that those with ToF be seen regularly at adult congenital heart disease clinics. ACHA has a listing of clinics around the country that is available to registered members. It is especially important that young adults such as yourself not be lost to appropriate follow-up care. Depending on a regular adult cardiologist can be very dangerous in that they can have as little as a few hours of training in congenital defects and often have no knowledge of the current state of the art in ACHD care. (+ info
Tetralogy of Fallot?
does anyone really know the life expectancy of someone with this. ive had 2 previous surgeries when i was younger, going in for my third in a while, developed pulmonary stenosis, having mild congestive heart failure signs. im 20 know, i would just like to know what my life expectancy is typically.
I'm a tetralogy of fallot. 38 y old now. I Had a pulmonary valve replacement. A week a go. ........
I have the same question but I guess, only God have the answer.
Have to be around.........40's or 50's......send me an email an I probably can explain what I went through.
Just be positive.....is whats keeps me going. (+ info
Tetralogy Of Fallot?
Has anyone dealt with this cardiac problem before? i would like to hear how ur family member,friend etc got treated and how they are coping now.
I've lived with Tetralogy for twenty-five years. I've had three open heart surgeries, the first two were tetralogy repairs and the third was the installation of a pulmonic valve.
I cannot walk or exercise much and have developed congestive heart failure. Heart failure sucks WAY worse than tetralogy. Before the CHF I was almost "normal".
IM me for more info, or support. (+ info
Congenital heart disease: Tetralogy of Fallot.?
my daughter who is 13 months old has been having blue episodes (with out any other symptoms: no breathing problems, no choking, no crying.)
nothing unordinary but the blueness and sometimes cranky.
but the doctor is sending her to a ped. cardiologist for an EKG & echiocardigram.
she has already had 2 heart/chest x-rays.
wouldnt it have showed up in an x-ray?
im not sure at all. just wondering.
Tetralogy of Fallot consists of 4 congenital anomalies: a large ventricular septal defect, right ventricular outflow obstruction, right ventricular hypertrophy, and over-riding of the aorta. Symptoms include cyanosis, dyspnea with feeding, poor growth, and tet spells (sudden, potentially lethal episodes of severe cyanosis). A harsh systolic murmur at the left upper sternal border with a single S2 is common. Diagnosis is by echocardiography or cardiac catheterization. Definitive treatment is surgical repair. Endocarditis prophylaxis is recommended.
A physical examination with a stethoscope almost always reveals a heart murmur.
Tests may include:
* EKG (electrocardiogram) may show the thickening of the right ventricle muscle
* CBC may show an increase in red blood cells
* Chest x-ray may show a "boot shaped" heart and dark lungs
* Cardiac catheterization helps show blood vessels in the lungs and heart
* Echocardiogram provides a definite diagnosis
* MRI of the heart (generally after surgery) (+ info
nursing intervention of tetralogy of fallot?
Clinical presentation includes not only cyanosis, but
also a systolic murmur of varying intensity along the
left sternal border. If mild to moderate pulmonary
stenosis is present, the infant may exhibit episodes
of dyspnea, hypotonia, decreased level of consciousness,
and hypoxia on exertion, known as “tet spells.”
The episodes occur most often in the morning,
shortly after the infant awakens, and are often
associated with feeding, bowel movements, or
exertion. They may be minimized by the use of
β-blockers, which inhibit spasm of the right
ventricular outflow tract. Severe episodes may
be managed with a knee-chest position, oxygen
support, bicarbonate, and morphine. Both morphine
and β-blockers help to promote relaxation and
improve flow into the pulmonary bed.
Chest x-ray usually reveals a heart that is of normal
size but with a classic boot-shaped contour caused
by right ventricular hypertrophy. Pulmonary vascular
markings may be diminished. Echocardiography will
demonstrate the degree of pulmonary stenosis and
show the overriding aorta above a VSD.
Corrective operations are often performed by
18 months of age or earlier if the child has recurrent
hypoxic episodes or progressive cyanosis. If pulmonary
stenosis is severe, and supplemental blood
flow through the ductus arteriosus is required to
support oxygenation during the neonatal period,
a palliative shunt is often placed, the most common
of which is the Blalock-Taussig shunt. The shunting
procedure involves anastomosis of the subclavian
artery to the pulmonary artery, which will direct
blood from the systemic circuit into the pulmonary
bed and improve pulmonary blood flow. Corrective
surgery involves closing the VSD with a patch,
relieving the right ventricular outflow obstruction,
and closing any previous palliative shunts. Early
corrective surgery is preferable to a palliative
procedure and can be performed in infancy if the
pulmonary arteries are of sufficient size and the
coronary artery connection is in a normal position.
Without surgery, life expectancy is markedly reduced.
Even with successful surgery, heart block, aneurysm
formation, and late sudden death are possible. (+ info
tetralogy of fallot prescribed medication?
What is the question? Could be Digoxin, lasix.... Modify your question. (+ info
tetralogy of fallot?
Can anyone tell me what the chances of survival are for a baby who has ToF, please don't tell me about the condition cos i already know about it, my older brother had it and unfortunately died but i'm trying to find out the survival chances are now (also for the 80's and 90's if you know) for a school project
actuarial survivals untreated:
1 yr 75%
4 yr 60%
10 yr 30%
40 yr 5% (+ info
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