FAQ - Tricuspid Atresia
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Surgical treatment of tricuspid valve atresia?

I read about the sequence of surgeries: first the Blalock-Taussig shunt, then the Glenn operation, and then finally the Fontan procedure. Why is this sequence used? Why isn't the Glenn operation and the Fontan procedure done at the same time, and the Blalock-Taussig shunt skipped entirely? Thanks.

I have Tricuspid Atresia, but my surgical treatment was different. I had the Glenn procedure at six months; the Modified Blalock-Taussig at 10 years; and the Fontan at 21. But I was born in 1966, and they were using a different form of the Glenn back then. Today it is known as a "Bidirectional Glenn Shunt", and sends blood to both lungs. My Glenn only goes to the right lung -- according to my Cardiologist, they changed the way the operation was performed in the mid 1980's.

A "by-the-book" Modified Blalock-Taussig dictates the use of a Gortex tube to create the shunt, but surgeons like to keep things as simple as possible. The less time the patient is out; and the fewer times that he/she needs to be operated on, the better. So if it is possible to use existing blood vessels to create the shunt, the surgeon will do it.

The sequence of operations is dictated by what various medical tests show the doctors is the best route to take. And after the first operation, of course, the patient has a completely different anatomy. That also dictates what will happen next.  (+ info)

what's the combined name for tricuspid atresia, pulmonary atresia, and hypoplastic right ventricle?

What is the name for hypoplastic right ventricle, pulmonary atresia, and tricuspid atresia? not just one or two but all three together. what's that called?
and yes a person with all three can survive, my 3 year old daughter is living proof. she had 3 surgeries starting with 4 days old 6 months old and a month shy of 3 years old. we knew before she was born. however, she has some restrictions..

The last post is incorrect. They were referring to tetralogy of fallot, and that includes 1. VSD, 2. Pulmonary Stenosis, 3. Overriding Aorta, and 4. Right Ventricular Hypertrophy. The conditions you described together are not cumulatively referred to as any congenital defect that I am aware of. They are each a diagnosis on their own, and existing together, I am not under the opinion that a patient could survive without immediate corrective surgery, and even then, with a low probability of survival.   (+ info)

Are you familiar with Tricuspid Atresia?

My 2 year old son has tricuspid atresia and I just wanted to know like how well is your child developing, what obstacles do you have to go through, and can he/she still play like other children.
My son has already had the first two surgery's and we have the last surgery this winter. He is doing well with his I just wanted to know is there anything else to look out for.

Hi! I have a two year old son also with tricuspid atresia. He is getting ready to have a Fontan surgery in a couple of weeks that I am extremely anxious about.

So far his development has been great - he is happy and able to do everything a normal two year old does. He does get winded when walking up stairs and I know his exercise capacity is not perfect. When checked his oxygen saturations are usually around 84%. I hope the Fontan increases them.

For his future, right now I am so worried about his upcoming surgery. After that, I don't know what to expect for him and that is the hardest part. The doctors have said a Fontan circulation is his best chance for a near normal life, so that is all I can hope for. The other thing I hope for is the rapidly advancing cardiac research and development for more solutions for adults with these kinds of congenital heart defects.

Best of luck of for you and your little guy! When my son was born and in the hospital so much, it seems like many people were telling us they knew of older kids and teenagers with the same defects that were happy and that always gave us so much hope.  (+ info)

Anyone else here have Tricuspid Atresia?

I am 21 and have this congenital birth defect. I have never met another person with this defect, and from what I hear there aren't many people that 1. Have this defect and 2. Have the defect that are much older than me due to the fact that the corrective surgery was relatively new when I was born.

I was wondering because I wanted to know what type of restrictions others have overcome. Example; Has anyone with my condition given successful birth? Or joined a swim or track team?
Has anyone living with this condition done what they were told was impossible for them?


I'm 41, and I have Tricuspid Atresia also! I had my first Surgery in 1967, it was a Glenn Shunt, done at Johns Hopkins Hospital. I later had a modified Blalock-Taussig, done at the University of Alabama-Birmingham Hospital.

I'm like you ,for the longest time I thought I was one of the few with a Congenital Heart Defect, but there are a lot more of us than you might think. ! in 125 people are born with heart defects, and now just over half of us are adults! I'm a member of the Adult Congenital Heart Association, and I can think of FOUR other people with Tricuspid Atresia who post on our message boards, and that's just off the top of my head!

Drop by, register (it's free!) and get involved with the message boards... it is a lot of fun, and you will learn a lot. And you won't feel like you are out there by yourself anymore!  (+ info)

I have Tricuspid Atresia, can I have a baby?

I just curious about have a baby. I can't find a site that says anything about a mother having this problem but still wanting a baby. Help me!

I found the first source below to have some encouraging information...it is a medical reference site...I suggest that you give it some attention. Although, certain precautions are indicated, it appears that you should be able to carry a baby to term.  (+ info)

pregnancy and tricuspid atresia...doctors help needed??!?

so here's the gist,

i've had 3 open heart surgeries, when i was 1...3...and 3 1/2 because i was born with tricuspid atresia. I had a the fontain procedure done.. (sp?) I am not 18, turning 19 and engaged..

here's the problem, i may be pregnant... i don't know if my body can handle pregnancy, i mean i've been perfectly fine all these years, take no medications, and live a normal life. I am too afraid to go ask my doctors because the last time they saw me 2 years ago i was still a little girl and not having sex.

help =(

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Potty training question. 4 yr. old daughter has tricuspid atresia and is learning delayed.?

She seems to have no control with urinating. She sits on toilet and is understanding the routine, but not understanding holding it until getting to toilet. Are there any good potty training books for learning delayed children. Any good advice?

Are you putting her in diapers, or pullups, or underware? I am potty training my own son right now, but my sister has potty trained 5 of her own (one was learning delayed) She told me that if they are doing good to try putting them in underware. It is hard for them to remember to go to the potty if it feels like a diaper between their legs. She said it was easier for them to remember if it was cloth. Also a good thing to think of is it takes 11 months for the average child to become completely potty trained. So (and I know it's hard) try not to get to discouraged. I hope that helps and good luck!!  (+ info)

What is atresia of the ampullary portion and what the treatment?

I did a hysterosalpingogram and my result was atresia of the ampullary portion of the left tube> you think I will be able to conceive?

If the right tube and ovary are ok you should have no problem.  (+ info)

Is a Mitral Regurgitation and a Tricuspid Regurgitation dangerous to have, what health problems can you have?

I had a Nuclear Stress Test done and the doctor told me nothing showed up but then when I got the report it says I have a Mitral Regurgitation and Tricuspid Regurgitation.

So what health problems can I have from it and what needs to be done about it?

I found a report online where some doctors don't tell you what's wrong if something shows up.

It depends on the severity, trivial mitral & tricuspid regurgitation are very common. Its only when The amount of regurgitation causes volume overload on the heart that problems start  (+ info)

What exactly is bilateral coanial atresia?

What is bilateral coanial atresia? What are the symptoms? What are the risks of having it? Is it rare? If so, how rare?

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