FAQ - antiphospholipid syndrome
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antiphospholipid syndrome?


I just had a miscarriage but don't have APS. But my husband was just recently diagnosed with it. Is it possible that since my husband has it, it could be the cause of the miscarriage?? We have two other children and were both healthy pregnancies and are healthy children so I am trying to find an answer as to why the third one ended in a miscarriage.
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No one can tell for sure why a miscarriage happens, implantation didnt take, too many unknown reasons for miscarriages to occur  (+ info)

Antiphospholipid Syndrome


Does anyone else have or know anyone who had this complication? Did you/they go one to have succesful pregnancies after being diagnosed and starting the proper mediction? My husband and I have had 6 miscarriages and it wasn't until I moved and starting seeing a different doctor that I was diagnosed. I'm nervous about getting pregnant again and starting the injections into my abdomen. uuggghhh. The medication my doctor is wanting me to use is Lovenox.
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I don't know anyone with this condition and don't really know much about it. From what I can see with the correct treatment it is is possible to have a successful pregnancy. Your Dr. will monitor you closely just to make sure everything is as it should be! The only advice I can give you for when you do fall pregnant again is to not get stressed and to not worry during pregnancy - easier said than done huh?!?!

The medication thats suggested on this website is a heparin injection and asprin in early pregnancy. I cant see anything on Lovenox, but I'm sure Dr. knows best!

If no one on here cuts it with an answer your Dr. should be able to give you more clear answers.

Good luck!   (+ info)

Antiphospholipid syndrome?


Does anyone else have this or have heard of it?
I have this, too. I'm 14 wks and have to take blood-thinner shots in my tummy. This is my third baby but seventh pregnancy. We lost three before the doctors figured out I had this. At first I just had to take asprin with my son. Then we lost another one because the condition got worse. With my daughter I had to take shots too. This is are last one but I'm worried because I keep hearing about how dangerous this can be and was hopeing for some advice.
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Yes, I have it, It is an autoimmune disease that creates abnormal clotting due to the blood cell which has an antigen shell being stripped by the antibodies you you have. It is also called "sticky cells" which mean the cells have no ability to bounce off of one another and they coin up like a stack of coins. There are meds to take for this and also asprin helps this issue. You can have miscarriages if you have this issue.  (+ info)

Can infectious diseases trigger antiphospholipid syndrome ?


Can certain infectious diseases such as HIV, HSV-2, chlamydia, and other viruses trigger your immune system to produce antiphospholipid antibodies ? Is there any correlation ?
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Researchers still aren't clear on exactly what causes this syndrome.

It should be mentioned that up to 2% of the 'normal' population carries antiphospholipid antibodies without any actual disease process.

And yes, certain viral, parasite, and bacterial infections can result in the presence of temporary harmless antiphospholipid antibodies (HIV, malaria, viral hepatitis...not sure about HSV) -- that is they cause no known disease in these patients and disappear shortly after. That is the only connection I know of with infectious diseases and this syndrome.

Take care,  (+ info)

Would someone with antiphospholipid syndrome have an increase of factor 8, or a decrease?


Also, is there any other interesting information you have on this disorder?
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That would be an increase of Factor 8.  (+ info)

How many people in America suffer from Antiphospholipid Antibody Syndrome, and what is the life expectancy?


It is a rare hypercoagable blood disorder that I suffer. It affects mostly women, and is often associated with Lupus.
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Women are more likely than men to be affected by Antiphospholipid Antibody Syndrome. Some estimates say that 75% to 90% of those affected are women. For example, it has been estimated by some doctors that one third of all of young strokes (defined as under the age of 50) are due to Antiphospholipid Antibody Syndrome. In obstetrics it is estimated by some doctors that up to 25% of all women with 2 or more spontaneous miscarriages have Antiphospholipid Antibody Syndrome. It is also believed by some doctors that 1 in 5 of all Deep Vein Thrombosis (DVTs), Pulmonary Embolisms (PEs) and even worse, amputations are caused by Antiphospholipid Antibody Syndrome. And it is believed that 10-15% of patients with Lupus also have Antiphospholipid Antibody Syndrome.  (+ info)

Birth control for those with antiphospholipid syndrome?


I have lupus and antiphospholipid syndrome so I can't take birth control pills and most other hormonal birth control. However, when I used to go to UCLA medical center a couple doctors mentioned some sort of injection that would be ok for me, I just can't remember what it was called and I don't see those doctors anymore. Does anyone know what injection they could have been talking about or any other form of birth control that is not the usual non-hormonal birth control (condoms, spermicide, etc.)?

If you don't know, those with APLS have a high risk of blood clots when we take hormonal birth control.
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this question is very specific and needs to be answered by your gyn.  (+ info)

Antiphospholipid syndrome. If treated with blood thinners what is the pregnancy risk THEN?


I've read tons of information about it and I know it increases risks for the baby and the mother but what happens if you're on the heparin and the lovenox (LOvenox)? Any statistics? I didn't have these questions Monday when I was diagnosed and I don't know when I'll see my doctor again so I thought I'd ask for someone's personal experience with ASP and blood thinners. Thanks.
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I think I understand your question better now. After my first pregnancy I was put on coumadin for a while and then later baby aspirin. And after this past pregnancy I stayed on the Lovenox instead of the coumadin for 6 weeks. I had the choice of the coumandin or the Lovenox, but I chose the Lovenox simply because I didn't have to go for blood test every week or so with it. And now I am on baby aspirin again. And as long as I don't get another clot then I don't have to go back to stronger blood thinners.

And from the little research I did online ASP is related to Lupus and other autoimmune disorders if I am understanding correctly. My uncle has had Lupus for over thirty years now. And he is doing fine. He has had some really scary moments with it, but he is in his 70's and doing pretty well. My mother has RA and she has been on predinsone for almost 20 years. And she is doing very well considering the severity of her RA,

I am still not sure if this is what you are asking- but I thought I would give it a shot.  (+ info)

Has anyone been diagnosed with Antiphospholipid Syndrome? How did you find out, did you have any miscarriages?


Thinking this might be going on with me, Doctor said from last miscarriage this could of been the problem. Both previous miscarriages were at 14-15 weeks, I do have other children before these miscarriages, and I am pregnant now and taking an aspirin a day as instructed by my doctor...thanks!
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I'm sorry for your losses. I also lost a baby at 15 weeks. Test showed she was normal so they suspect the issues were with the placenta. I'm in the 2ww (1 day to go) but have already been taking a daily baby aspirin for the past week.
Diagnoses is done by a antiphospholipid antibodies blood test. Sometimes they will also run a PT/PTT blood test which times how fast your blood clots.
It's an autoimmune disorder which can cause abnormal clotting (thrombosis) of arteries (stroke, infarction) and/or veins (phlebitis), premature miscarriages (spontaneous abortions), abnormally low blood platelet counts (thrombocytopenia), purplish mottling discoloration of the skin (livedo reticularis), migraine headaches, and a rare form of inflammation of the nervous tissue of the brain or spinal cord, called transverse myelitis. Antiphospholipid antibodies have also been detected in over half of patients with the immune disease systemic lupus erythematosus.  (+ info)

What is antiphospholipid antibody syndrome?


does anyone have this? How did it affect your pregnancy?
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The antiphospholipid syndrome is a disorder of the immune system that is characterized by excessive clotting of blood and/or certain complications of pregnancy (premature miscarriages, unexplained fetal death, or premature birth) and the presence of antiphospholipid antibodies (cardiolipin or lupus anticoagulant antibodies) in the blood. Patients with antiphospholipid syndrome have developed abnormal symptoms while having antiphospholipid antibodies that are detectable with blood testing.  (+ info)

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