FAQ - arnold-chiari malformation
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Arnold-Chiari Malformation?

Anyone have personal experience with or know anyone who has this brian malformation? Have already searched internet, looking for insight you can't find on Google. Thanks.

I was diagnosed with Arnold Chiari Malformation in 1999. By my own personal choice I have not had the decompression surgery. I encounter pain daily and the pressure from my cerebral spinal fluid having a blockage problem. When there is a change in the weather that involves the barometeric pressure I can really feel that. I try not to reach for things over my head or lift heavy things as that brings about symptoms. Feel free to email me if you want. [email protected]  (+ info)

Arnold Chiari Malformation?

I have this awful disease, but nobody can tell I have it. I look normal both physically and mentally...lol..I think! I really would like to find people like myself and just talk. I've been awful sick in past, but being hard headed and decided to be a fighter. I'm winning, so far, just need to know I'm not only one with this burden. I live in Fort Worth, TX and happy, caring, female.

Arnold-Chiari malformation is a rare malformation of the brain that is sometimes, but not always, apparent at birth. It is characterized by abnormalities in the area where the brain and spinal cord meet that cause part of the cerebellum to protrude through the bottom of the skull (foramen magnum) into the spinal canal. This interferes with the flow of cerebral spinal fluid to and from the brain, leading to accumulation of cerebral spinal fluid in the empty spaces of the spine and brain. The portion of the cerebellum that protrudes into the spinal canal can become elongated and is called the "cerebellar tonsils" because it resembles the tonsils.
Please see the webpages for more details on Arnold Chiari malformation.  (+ info)

What is the percentage of americans with Arnold Chiari Type I Malformation Syndrome?

Arnold Chiari Type I Malformation is a swellingat the base of the cerebellum at the point of connection with the spinal cord.

Until recent years, CM1 was regarded as a rare condition. With the increased availability of magnetic resonance imaging, the number of reported cases has risen sharply. Current estimates range from 200,000 to 2 million Americans with the condition. Genetic studies spearheaded by Dr. Milhorat support a hereditary tendency with a transmissibility rate of 12 percent. Women are affected three times more often than men. Approximately 3,500 Chiari operations are performed each year in the United States.

I had surgery to correct mine about 12 years ago, they had to cut off about 2 inches off the buttom of my skull.  (+ info)

How dangerous is the surgery for the Arnold Chiari Malformation for a 18-month old?

Everything was normal, during the pregnancy, birth and during his first 18 months but until last Tuesday. His shoulders collapsed with no response. After the MRI, CT scan, the doctors concluded that my son has the Arnold malformation.

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What is Arnold-Chiari malformation? Is there any different symptoms for it?

I know it has something to do with with the fluid stuff, but I don't have any of the symptoms that are normal from it (I am 14). The doctors only found it when they were looking for anything else that could be causing what I call "blackouts". My eyes kind of black over from the outside and I have passed out from them before. My legs feel very spaghetti-like, but I can normally function properly. If anyone has answers for either of my illnesses please help!

some symptoms for it are: The brainstem, cranial nerves, and the lower portion of the cerebellum may be stretched or compressed. Therefore, any of the functions controlled by these areas may be affected. The blockage of Cerebro-Spinal Fluid (CSF) flow may also cause a syrinx to form, eventually leading to syringomyelia. Chiari is often associated with major headaches, sometimes mistaken for migraines. Chiari headaches usually include intense pressure in the back of the head, aggravated by laughing, coughing, sneezing or straining. Chiari also includes extreme muscle soreness, facial pain, hearing problems, and low energy levels. It also can cause insomnia cycles of sleep deprivation followed by inabilities to remain awake cycling between them. 15% of patients with adult Chiari malfomation are asymptomatic.  (+ info)

Can a person get disability who has Arnold chiari malformation?

My daughter has this and she is sometimes unable to function out of the house, so she has a hard time in school.

I don't know this disease. I would think if your daughter is unable to function she would be eligible for disability. I wish I knew exactly what this was. I'll have to look it up. I just typed in the name and alot of info came up. Yes, try to get her on disability. Good luck  (+ info)

Can I be a Army Pilot for a blackhawk with a Arnold-Chiari malformation?

They found this a couple years ago and I am now 17. I plan on joining after college or between.

I would not think so.  (+ info)

Can deafness and blindness be symptoms for Arnold Chiari Malformation?

I am wondering if these can be symptoms due to an ACM. The deafness being called nerve deafness (with ringin in ears) and the blindness mainly due to tunnel vision and things progressively getting darker.

The answer here is yes! My daughter was recently diagnosed with ACM so we have really read up on the subject. ACM is a very serious thing. It can lead to all types of nerve damage. You can loose motor skills as well. I hope you are seeing a nuerologist who has dealt with ACM. Many have never had a case and from everything I have read you need someone who is a specialist in ACM.  (+ info)

Have you or someone you know been diagnosed with an Arnold Chiari malformation?

If so, what grade was it and what were the symtoms? I recently was diagnosed and I am having a hard time getting straight answers on what to be and not to be to concerned about.


I have chiari and other related disorders. There is a great website and support group out there to find out more information and also provide support and much needed information.

The address for the site is:


You can get to the support group from there. Keep in mind that most doctors do not recongize this disorder nor it is treated properly. So, the group will provide you much needed information about what to do. I hope you the best and look forward to you joining the group.  (+ info)

Is there life after Arnold-Chiari malformation?

My husband had Arnold-Chiari Malformation when he was 22 and went from a stage 1 to 2 in a matter of weeks. He under went surgery to remove the bottom of the cerabellum and lamanectimy of c1, c2 and parical c3. Now after five years he is getting extream headachs and the nurve damage in the right side of his bady is getting wores. Can you have the malformaiton again? HELP!

Arnold-Chiari causes unusual stress on the nervous system. It sounds to me that the cause of the disease was not treated, rather the symptom. So, whatever caused it in the first place may still be occurring. Ask your doctors why he had Arnold-Chiari in the first place and IF this cause was corrected with the surgery of removing part of the cerebellum (YIKES!). Please, keep in contact with your doctor, and please go and see a chiropractor. Not just any chiropractor, but one that specializes in upper cervical care (C1 or C2) with the express purpose of relieving nervous system dysfunction. I've put my e-mail up if you're interested, I could give you a list of chiropractors in your area who would do this. [email protected] Please no spam. If not, you can go to chirodirectory.com. It's a start, but they do not usually list the chiropractor by specialty. I have some connections and could help you in your search, if its something your husband and yourself would try. Just so you know, I know many people who have tried chiropractic as a last resort and gotten great results. People have tried as a 1st or second resort, and gotten great results. The difference, those who waited and waited suffered needlessly for a long time.  (+ info)

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