was diagnosed at age 31 with Graves Disease. The symptoms came on suddenly and severely. I was put on the medications used for Graves Disease and also the symptoms the Graves Disease was causing such as high blood pressure. Then I started getting severe hives to the point of having to be rushed to the ER because they were in my throat.
Three endocrinologists later it was determined by the majority that I was allergic to the Graves Disease medication and I should get radioactive iodine to destroy my thyroid. I was told that my increased heart rate, increased blood pressure etc. was life-threatening so I consented to the RAI.
I am now 35 years old and the journy to finding out exactly what is wrong with me continues. My thyroid eventually bottomed out after receiving the RAI, so I had all of those symptoms. I am currently on Synthroid 175 MCG. Then I was diagnosed with polycystic ovarian syndrome. Then I developed insulin resistance. I am now on Janumet to control the insulin resistance. Last year I developed severe chronic anemia and had to get 9 rounds of IV iron infusions. For the last two years I have been going to my endocrinologist every three months because something always goes wrong. I had a bout of severe intestinal distress and kept nothing down for three weeks and celiac disease was ruled out by and colonoscopy. Between April and today I have lost 40 pounds. My latest round of blood work shows that I have diabetes insepidus (sp) which is caused by a malfunctioning pituitary gland. I also have a chronic UTI infection for the last four months, increased white blood count in my urine, chronic fatigue, horrible moods, achy joints and bones, and a general feeling of being confused and aggitated.
Anyone have any clues as to what I should do next? the endocrinologist ran some kind of blood work panel - -I believe called and ADH panel and I will get it back next week and then he wants to send me for an MRI. It was also shown that my thyroid is now overactive again even though technically I am not supposed to have a thyroid.
What are other options or other tests I should ask for. The doctors seem so confused with what is going on with me because with regard to the autoimmune diseases it is confusing. The third endocrinologist I have been seeing came highly recommended because he is used as an expert witness related to autoimmune disorderes in court cases.
Thanks for any help or guidance.
I urge you to go to the nearest University Hospital (generally near a Medical School) for help. You now have several systems involved & you will go broke in bod & in dollars before long.
You'll get the latest, best treatment for all your difficult problems there. They'll help you find ways to meet the costs. You can also consider treatment overseas (India is very good, while reasonable in cost [even including food, flights, lodging + they speak English)! Be prepared to spend a lot of time & have a lot of patience; you already must be doing that anyhow... Honestly, just do it! Good luck! :) (+ info
Autoimmune diseases ?
I have hashimoto's hypothyroidism, an autoimmune disease. Will my anitbodies travel to other body parts in time? If not, why not? If my immune system is dysfunctioning in one area, does it not make sense that it will dysfunction in other areas in time? Help me understand? My sister had just this, and not has lupus. Am I next?
Hypothyroidism is a condition in which the body lacks sufficient thyroid hormone ( thyroxin) . Since the main purpose of thyroid hormone is to "run the body's metabolism", it is understandable that people with this condition will have symptoms associated with a slow metabolism.
The most common cause of thyroid gland failure is called autoimmune thyroiditis (also called Hashimoto's thyroiditisor chronic thyroiditis) , a form of on-going thyroid inflammation caused by the patient's own immune system. It is caused by a reaction of the immune system against the thyroid gland.
Hashimoto's thyroiditis frequently results in hypothyroidism or lowered thyroid function.
The outcome is usually very good because the disease remains stable for years or progresses slowly to a condition of thyroid hormone deficiency (hypothyroidism) that can be treated with thyroid replacement therapy.
Chronic thyroiditis is most common in women and individuals with a family history of thyroid disease. It is estimated to affect between 0.1% and 5% of all adults in Western countries. This thyroid gland disorder can occur at any age, but it is most often seen in middle aged women.
tThyroid hormones - The two major hormones produced and released by the thyroid gland are thyroxine (T4) and triiodothyronine (T3). These hormones travel to other body tissues through the bloodstream and play a key role in regulating metabolism, growth, and many other body functions
One of the most common symptoms thyroid patients on treatment complain of, is “fatigue”. Other symptoms they continue to experience include joint/muscle pain, mild emotional symptoms and decreased libido. Why is this? What aspect of autoimmune hypothyroidism would continue to cause a degree of continuing symptoms, despite treatment?
Research articles concluded that elevated levels of these antibodies can cause fibromyalgia type symptoms in persons with only sub-clinical hypothyroidism. Other articles stated that the autoimmune thyroid disease can have a degree of systemic (system wide) effect, so that the immune system response affects not only the thyroid area but other parts of the body as well. This may explain in part as to why autoimmune thyroid disease patients are at HIGHER RISK for developing other autoimmune diseases than the general population
I was amazed that other Doctors I had seen and even the drug manufacturer’s websites, do not mention the role of thyroid antibodies, in causing ongoing symptoms, despite proper hormone replacement medication treatment
I am not sure why more is not being said about this area because it makes complete sense that highly activated immune system activity, means a bodily response manifesting in different degrees of symptoms, depending upon how highly elevated antibody levels are. Inflammation from the autoimmune disease process also manifests in symptoms, which means the disease process itself is also what causes the illness and not the resulting hypothyroidism alone
Hopefully, this won't happen to you. It's the lack of the draw when it comes to autoimmune and genetics disorders. The best way to prevent aside from taking thyroid meds is to fortify you immune system. Bombard yourself with vitamins,e.g. Vit C) minerals,( e.g. calcium with magnesium and zinc) and a good nutrition.
I found the article below on coconut oil which is good for hypothyrodism:
http://www.coconutdiet.com/thyroid_health.htm?gad&gclid=CLfY7LPYq5ECFScXagodfDuadw (+ info
Is dermographism an isolated condition or is it a sign of many potential autoimmune disorders/diseases?
I've recently been diagnosed with dermographism and I was wondering if someone with a better understanding of autoimmune disorders could shed some light. While I know that this skin condition is fairly common and isn't generally serious, I'm curious to know that if people who are succeptable to dermographism and other common autoimmune diseases are also succeptable to more serious autoimmune diseases (MS, Krohn's, etc.) since they/I obviously have some flaw within our autoimmune system as it is. Or are they apples and oranges when compared to one another?
not a dnagerous condition; could be related to thyroid nutritional deficiences...
a. Naicn vitamin B3 @ 50 or 100 mgs. day
b. Vitamin C tabs @ atleast 250 mgs. day
c. Coconut Oil organic couple tspns. day. (+ info
Which statement best describes the relationship between immune disorders and autoimmune diseases?
A.Immune disorders include autoimmune diseases, in which the immune system attacks the body’s own cells.
B.Immune disorders are a kind of autoimmune disease in which the immune system attacks the body’s own cells.
C.In both immune disorders and autoimmune diseases, the immune system attacks the body’s own cells.
D.There is no relationship between immune disorders and autoimmune diseases.
probably A (+ info
Do autoimmune diseases suppress the immune system?
Do they? Or is it the drugs you take for autoimmune diseases that suppress the immune system? Can long term stress or autoimmune diseases suppress the immune system and affect test results, such as HIV, and cause false negatives or positives after about 7 months or so? If you're under a great deal of stress for a long time, or have an autoimmune disease, does it take longer for your body to produce antibodies against diseases, like HIV? Will 7 months have been long enough of a time to wait before getting tested for HIV? Especially since you're not sexually active or do drugs?
Wow - you've quite a few questions there.
Autoimmune diseases can reduce your immune system's effectiveness, yes. However, diseases like Lupus cause the immune system to attack the body, in which case drugs are perscribed to subdue the immune system. Stress does indeed affect your body's immunity in a negative capacity.
Seven months, though? That's a long time for the body to recover its immune defense. Dealing with HIV is something best, perhaps, reserved for medical professionals. There are hosts of checks and tests that can give you definitive answers to your questions much better than the internet can. (+ info
If you had a boy and a girl and had 2 autoimmune diseases that developed right after the second pregnancy?
would you try for another child? my OB says i can but the diseases happened a month after delivery and a lot of autoimmine diseases happen right after a stressfull situation to the body. just scared of maybe getting a more severe autoimmune disease but i have baby fever.
I personally wouldn't.
I have autoimmune hepatitis and that was nothing to do with pregnancy but if I knew that anything could make it any worse then I don't think that I'd try for another child. You already had two, right? What if it got a lot worse and you ended up unable to look after the two that you already have?
By the way, I'm pregnant with my first child. :-)
Good luck with whatever you choose. (+ info
what are autoimmune diseases that causes blood clots?
hi,i want to know what are the autoimmune diseases that can cause a lot of blood clots all over the body?and what are tests can be done to diagnose,thanks.
there are a number of them, if you want to know, then suggest you start searching in Google, I think it unreasonable to expect someone here to spend all that time doing something that you can do for yourself. A hint, research D.I.C. (+ info
Why do autoimmune diseases affect more women than men?
Why do autoimmune diseases affect more women than men? I'm researching MS (multiple sclerosis) and this is mentioned often but never explained. A good medical source on the Web would be great, if you could paste one that explains this. Thanks!!
I don't have a link but I juuuust studied this stuff for an immunology exam. The theory is that testosterone has a mild immunosuppressant effect, which makes the immune system less likely to go overboard. (+ info
Can masturbation lead to autoimmune diseases such as lupus or multiple sclerosis?
Autoimmune disease- A disease in which the immune systems attacks the body it is meant to protect.
No no no! XD Defiantly not. You can not get AIDs or HIV or anything like that from just masturbation. It has to either come from your mother or from getting it passed on from another person's blood or bodily fluids in some sort of way. (+ info
What are the effects of autoimmune diseases?
I was just diagnosed with having an autoimmune disease, but I'm not sure which one yet. I'm only 16 years old. How will my lifestyle change because of this? Will my life be shortened? Please, be honest. I can handle it.
Thank you so much.
It really shouldn't be much different then now. Depending on which type of autoimmune disease you have they all can all have periods of lengthy remissions as long as you take care of yourself. True, you will need lifelong treatments with medication and whatever else the doctor orders. Much of this is staying healthy, doing exercise and just being on a healthy diet to maintain a weight within your limitations. Not too much different then living life with any type of problem today. The only times in which this will be hard to maintain will be when the disease is active and you are in allot of pain. This also develops as time goes by too. Please remember to write any questions you have down between appointments so that you are relaxed and think of them during this time and not all at once while waiting to go into the office. Keep this handy somewhere so when a question comes into your head you can just go to it and rite it down. These suggestions and reality's are what lays before you with no putting things into a wait and see type of answer. Along with the advise of the doctor you can live as long as anyone else. Good luck and God Bless (+ info
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