FAQ - carcinoid tumor
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What is the probability of a carcinoid (cancer) tumor bursting?

My dad's doctor told him that there is a chance that his carcinoid can burst (rupture) at any time. It really scared him. What are the chances of this happening? Thanks.

Honestly, the answer depends on where the tumor is and what type of cancer it is. If the doctor thinks this is possible, he/she should be doing some aggressive treatment to try to avoid such a situation. I'm sorry that I can't help more, but good luck; I hope everything works out for your father.  (+ info)

I was just wondering if anyone has had a carcinoid tumor removed from their small intestine?

My husband has just recently been told that he has a carcinoid Tumor in his small intestine. They told him it needed to be removed but it could be an extensive surgery..I was just wondering if anyone had had this happen to them and what was the outcome? The doctor did say this wasn't cancerous but it could turn to cancer.

I had a laparoscopic right hemicolectomy to remove a carcinoid in the terminal ileum. This surgery, which removes the ascending colon, part of the transverse colon, the ileocecal valve and the affected ileum (small intestine) is necessary for any tumors located near the ileocecal valve. A smaller resection is not possible as it would affect the blood supply and the gut would die off, so it's very much a one-size-fits-all procedure.

The worst memory from my four night hospital stay was of the liquid diet. The pain wasn't too bad. The internal pain lasted a couple of weeks. The incision site still hurt for a week after that. It's fantastic when you can finally eat solid food again. My post surgery advice is to get on your feet and get moving. Get off the opiate pain medication as soon as you can as it interferes with normal bowel function.

Recovery time will depends on your age and physical condition. I'm 42, fit and I recovered fully around three weeks after the surgery. I have no lingering side effects. Your husband will need to have blood tests for Chromogranin A (CgA), platelet serotonin and urinary 5HIAA as well as repeat CT and Octreoscans to regularly monitor any potential metastatic spread. http://carcinoid.org is the best site for further information and gives a list of recommended carcinoid specialists. Good luck.  (+ info)

how rare is a renal carcinoid tumor?

I had such a tumor removed over 6 yrs ago in jan 2004 in oneida ny

I had never heard of a case of renal carcinoid until you just brought it up.
There's a case study from 2005 which mentions that 40-some cases have been reported worldwide.
Here's the link to the case study: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1477585/  (+ info)

What is the survival rate for someone with carcinoid syndrome?

Particularly with a carcinoid tumor in the intestine that has spread to liver or has not?

From http://www.carcinoid.org/pcf/docs/review.html
Typical carcinoids are slow growers.

In those tumors that are somewhat larger and have spread to local tissues and local lymph nodes but which, along with these locally invaded tissues, are still totally removable surgically, the average survival has been 8 years with a range up to 23 years.

Even when the tumor from the small intestine has spread in a manner that has made complete surgical removal impossible, the older statistics show that approximately one half of the patients survive an average of 5 years. Since various types of treatment have been introduced in the past decade patients appear to have an even longer survival and improved quality of life.

Atypical carcinoids, which is a group whose microscopic appearance looks different and more aggressively malignant than the typical carcinoid, follow a much more rapid course with a more uncertain outlook. An even worse forecast can be made for the very more malignant rare group called "neuroendocrine carcinoma". Atypical carcinoids can cause the Carcinoid Syndrome, but neuroendocrine carcinoma rarely do.

The tempo of the course of the illness in patients with Carcinoid Syndrome is different than that of carcinoid victims without the functioning syndrome. However, this has been remarkably improved and the outlook is much more hopeful with the advent of octreotide and similar somatostatin analogues and other new modes of treatment. In the early decades before effective treatment was available the average survival from the onset of flushing for a Carcinoid Syndrome patient was 3 years, and from the time of diagnosis was 2 years, though the range extended to over 10 years. Seventy five percent of the patients would die as a consequence of the harmful effects on the body from the excessive amounts of potent hormones released into their circulation by the tumors. Tumor growth and spread itself was fatal in only 25% of cases. In the last 10 years, since we have used effective combinations of treatment with octreotide(and similar somatostain analogues), various types of surgery, chemotherapy, hepatic artery injections and biological response mediators, the average survival time from the start of treatment (which unfortunately is often quite delayed after the diagnosis is made) has increased to almost 12 years - with a wide range often being observed.   (+ info)

Tell me about a carcinoid tumor ON the lung, not IN the lung?

carcinoid tumors are very rare.
Check out Indiana University Cancer Center  (+ info)

which is the treatment of the carcinoid tumor?

It really depends on the location, presentaton and circumstances surrounding the diagnosis. For example, if it is incidentally discovered with apendicitis - carcinoid of the appendix- surgical resection may be all that is needed. In other organ systems, the treatments vary along a broad range.

If you or a friend has this diagnosis, it is the physicians sworn duty to help you understand the disease and its treatment as it relates to the specific situation. Don't let docs forget that.  (+ info)

is carcinoid tumor deadly?

Hello my wife had to have her appendix removed about a week ago and they found out it had a cacinoid tumor at both ends, now they are telling her she has to remove a part or her hole colon now what i want to know is how deadly can this be and is it major or minor,quick and easy or just dont know until they open and find out also any good ?'s i could ask the doctor

Carcinoid of the appendix is not deadly. Carcinoids are semimalignant - that means they should be completely removed or they'll infiltrate their surroundings, but they seldomly metastasize.
Probably during the appendectomy, the resection of the carcinoid was not complete, that is why they have to re-operate. I doubt that the whole colon needs to be resected; you don't have to do that even when you have colon cancer. Don't worry, carcinoid of the appendix is not that bad!  (+ info)

Carcinoid tumor in the liver question? What will I see?

Very good friend has carcinoid. He had it in the Lung, it was removed. It is in the liver now. The tumors stopped growing so they stopped treatment. Now they are giant. They told him he needs surgery right away (over 4 weeks ago). They have not done the surgery yet. Now he is flushed all the time, couching, low blood pressure, diarrhea, sleeps a lot. Are they waiting to long? He has had it over 3 years. This is the worst its been? I need someone to be honest? If they don't do the surgery soon...and he keeps getting worse, can he die? What will I start seeing as he gets worse? I need honesty here...
I'm scared for him. And i just want to know what next stages will happen, so I'm ready and can be a good friend.
Please nobody say I'm giving up. I'm not. I just want to be ready if the doctors can't do anymore.
Any answer would help.
You can even email me.
[email protected]

It is a little hard to completely understand this situation and harder yet to give you a good answer, but I’ll try.

Carcinoid tumors of the lung are pretty rare, they only account for 1-2% of all cancers found in the lung. They are typically slow growing, are often caught early and have very good survival rates. Many are cured by surgery alone. These tumors are usually not sensitive to chemotherapy. The fact that your friends responded well was a very good sign. I don’t understand the delay in surgery.

However, once it has spread to other organs it is not curable. Treatment is done to give as much time possible with the best quality of life possible. Depending on the type of cancer this can vary from weeks to years. His disease is progressing this is why it is the worst it has ever been.

I suspect your friend is not telling you everything and may have decided to stop treatment. Doctors would not delay surgery 4 weeks unless there was a condition prohibiting it or if he refused it.

Is he getting any treatment at all? There are different drugs that can slow the progression and relieve some of his symptoms. Octreotide is very helpful in treating skin redness, feeling hot, diarrhea and wheezing.

Once treatment is no longer effective or the patient decides to stop their doctor will usually refer the patient to hospice who monitor the patient and make sure they are as pain free as possible. They specialize in end of life issues and work with the patient’s family as well. They are very nice and very special people.

What happens from here depends on what organs are effected, but I would expect him to sleep more, lose weight, have a change in skin coloring, decreased appetite and may seem forgetful.

I know this is not what you wanted to hear, but I think you knew it was a very real possibility. Someone in his life should be speaking to his oncologist and understanding what is happening to make this transition as easy as possible for him. Best wishes to you both.  (+ info)

HepC, Fibromyalgia, Bi-polar, Carcinoid tumor on colon & appendix, only 57 years old ...what would you do?

and, believe it or not.....but, my 59 year old husband died in December 07. I'm trying, but could sure use some helping suggestions on how to possibly strengthen up and feel better...and yes, I'm seeing several different doctors and taking several different medications..........not working......I feel like hell all the time.....I wonder???? What would you do?????

"Hi, I don't have everything you have, but other things instead. Having a body with fibromyalgia and usually a lot of other things isn't fun, and if I didn't think that God has a purpose for the suffering that I go through I don't know if I'd be able to hang on sometimes. I'm 57 too. I went through a divorce several years ago and tried to go to school at the same time - not a good idea - it seemed as if my whole body shut down. The best advice I can give you is take your medicine and give yourself time. Keep getting into the word of God and pray. When you don't feel like it maybe you can listen to cd's or something softly playing. Don't pressure yourself with what you think that you should be doing and just do what you can or cannot do. Don't judge yourself by how well you think you should be doing spriritually, etc. God gives us what we need to do His will at the moment and if it's just to rest, then that's what he wants. There's nothing wrong with just living a quiet life. God is there in all of it and he'll get us through it. If you have a good or even just a decent support system of people use it, go to your church, whatever you need to do. If you don't have a good friend, pray for one. God has brought me friends from where I'd least expect it. I don't know if any of this helps. It's stuff that I wish I had know at a younger age and have to remind myself of now. They make a difference for me. Keep in touch. I am so sorry for what you are having to deal with. In the love of Christ, grkathy  (+ info)

Does anyone know much about carcinoid tumors?

My husband has one at the end of his colon - does anyone know much about this? They are talking surgery, pretty sure it is confined to that one area.

Not anyone here.  (+ info)

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