What is vulvar adenoid cystic carcinoma and what is its prognosis and treatment?
go to webmd.com .very helpful site (+ info
my brother has adenoid cystic carcinoma causing tracheal stenosis.?
it is affecting the lower part of the windpipe where it branches out to the lungs and up to about the middle of the windpipe, does anyone have any ideas solutions or experience with this condition please, thank you
he has doctors and surgeons across the uk discussing the best course of action for him but no one seems very familiar with this type of cancer does anyone have any ideas or solutions to this disease please.
I have told my friends I have Adenoid Cystic Carcinoma but every time I tell them,they get scared.Why ?
Adenoid cystic cancer (AdCC) is an uncommon type of cancer that can exist in many different body sites. It most often occurs in the areas of the head and neck, in particular the salivary glands; but has also been reported in the breast, lacrimal gland of the eye, lung, brain, bartholin gland, trachea, and the paranasal sinuses. It is sometimes referred to as adenocyst, malignant cylindroma, adenocystic, adenoidcystic, ACC, AdCC.
It is the second most common malignant salivary gland tumor overall (after mucoepidermoid carcinoma). It represents 28% of malignant submandibular gland tumors, making it the single most common malignant salivary gland tumor in this region. Patients may survive for years with metastases because this tumor is generally well-differentiated and slow growing. There is a 70% chance of surviving five years, which drops to 20% for 20 years, reflecting deaths from late-occurring metastatic disease.
Primary treatment for this cancer, regardless of body site, is surgical removal with clean margins. This surgery can prove challenging in the head and neck region due to this tumour's tendency spread along nerve tracts. Adjuvant or palliative radiotherapy is commonly given following surgery. In some cases surgery is not an reasonable option, however radiation used alone may provide an effective treatment. Neutron therapy has been shown to be superior for some types of cancer including adenoid cystic carcinoma of the head and neck. Chemotherapy is used for metastatic disease. Chemotherapy is considered on a case by case basis, as there is limited trial data on the positive effects of chemotherapy. Clinical studies are ongoing, however.
Some pictures are shown here, too.
The site to answer more common questions
The research foundation page: http://www.accrf.org/
Info site: http://www.rare-cancer.org/adenoid-cystic-carcinoma/
Has an email-style Yahoo Group ; Adenoid Cystic Carcinoma Patient Support forum page; survivor stories page, etc.
(The word "carcinoma"--or cancer--scares anybody. I don't think your friends are scared that it is something contagious, but are scared FOR you, not against you. They don't know what they can do to help, or even how long you may have. Miracles DO happen, believe me--my cousin was told she had breast cancer and started going through radiation treatments, etc. and a couple days ago, doctors told her that she didn't have it to begin with. Her mother was a bit upset with the hospital and the doctors, but we told her to be thankful that no cancer was ever there. I wish you all the luck and miracles available. ) (+ info
Anyone suffered with rare Adenoid Cystic Carcinoma?
I have a family member who was recently diagnosed with this form of rare cancer. She is currently battling with the university of washington in Seattle to pay for treatment. She has no insurance and they want 80k up front before they will begin treatment. Even though they have told her that she cannot wait to start radiation due to the severity of this cancer and its survival rate. Funny how now they can put an 80k price tag on her life. She may have a 5 year life span if this is treated right away. Saddest part is that she is only 35 years old and has a husband and four children at home. So any advice or someone who is familiar with this would be appreciated. Thankyou
FYI: She did get medicaid and they are going to pay for 50% of the treatment. However they will not even begin to treat her until she comes up with 80k. They cannot discount her because she is no longer a resident of Washington, even though she was born and raised there. I find this to be insanely inhumane on thier part. This cancer takes a special type of radiation which is only avail. in 3 centers nationwide. So her options are very limited. Seattle has been referred by most as the best. But apparently is only the best if you have the money to "pay in ful." I realize that everything does cost, but its not as if they will recieve nothing. They could at least get started with the funding they will have, but wont unless all is covered up front. That is ridiculous! I work in the med field, so I know and I still find this unacceptable.
We are currently working on fundraisers and with the media to raise money for the remaining. Problem is that this treatment needs to start right away. Time does not heal all things and in this case it kills. There is no reason to hold off on starting treament, if the money runs out then the treatments stop, but this is not the way they work it. You pay all or you die. It is that simple.. so please spare me the sympathy cuz that is not what I am looking for. I would like to know if anyone has dealt with a situation like this or has the disease itself. No lectures please. Thankyou
All around this is a terrible situation as this woman is so young to have to go though this and she has children who I assume are young and need her. However, it seems your question has more to do with the hospital this person is seeking treatment at, than it is about the disease itself.
I know it is a scary difficult time for you and I don’t mean to be rude or want you to feel worse than you already do, but how do you “battle” with a hospital to pay for your treatment unless they are responsible for causing it? Without some leverage on the patient’s part there is no battle. They are estimating the cost of their service like every other business does. They are not putting a price tag on her life and they do not intend to. This situation is not their fault and they are not to blame.
I know this is your family and understandable you probably are not concerned about a lot of other things right now, but I am sorry to say yours is not the only family in this situation it is happening everywhere. We have a healthcare crisis in this country and it has been coming for the past 20 years and it doesn’t look like it will get better anytime soon.
Her only options are to negotiate a cash discount at this or another hospital and pay the money, apply for Medicaid or she could try a Catholic hospital that often have charity programs that can be applied for.
I really am sorry you and your family are in this situation I know it isn’t right. I see it all the time and it makes me feel sick inside every time I do. (+ info
I had surgery for cystic basal cell carcinoma and now have a lump above incision, why?
surgery went well...but above incision I have a long, noticable lump that bothers me, of course.
Of course that's a question for your health care provider but I'll give my opinion.
I think it's scar tissue. It could be inflammation since the body is in the process of healing.
It may go away in time, but still, consult your health care provider who can examine it and give you an informed answer. (+ info
i am pregnant and was just diagnoised with adenoid cystic cancer what should i do?
Prayer can be helpful. A cancer patient at my church recently was healed of a multi-site later stage cancer by prayer. God can help you live a better life if you want Him to. You can have a personal relationship with God by saying the prayer below. God is our Creator, all-knowing, all-powerful, eternal, holy, love. God loves us and sent us His Son, Jesus Christ, so we can go to heaven if we know and follow Him. Forever means without end -- time on and on without death. Forever is what happens after we die. Either we go to heaven and be with God forever, or we go to hell which is very bad and painful forever. The good people who are saved believers in Jesus Christ go to heaven. The bad people go to hell. We need to know and follow God in this world to get to heaven in the next world. We follow God by loving and obeying Him and loving others for Him. Jesus Christ, God's Son, is our bridge to God. Jesus died on the cross to cancel our sins. We need to accept Jesus into our life as our Lord and Savior forever to receive God's blessing and forgiveness plus go to heaven to be with God forever after we die. This is about being a born-again Christian. Faith in God is a gift from God. You can pray for faith in God. Just speak out and ask God for the faith to believe in Him and to follow Him. Some people find faith in God when they realize the beauty in the world is made by God. Evolution can't explain the world's natural beauty, for example, the parks in the world, animals, flowers, peacocks, sunsets, butterflies, rainbows, etc. After you have your faith on, you can pray a sinner's prayer to be a born-again Christian. This prayer is very important and should be said with a sincere heart and faith in God. This is the prayer: "Dear God, I know that I am a sinner and that Jesus Christ is the sacrifice for our sins. I have done the following sins (state these out) and I pray to discontinue these sins. I pray to receive Jesus Christ into my life as my Lord and Savior forever. In Jesus' name, amen." I'm Lutheran and I like the Baptist churches too. You could try out a Christian church and also see about their weekly Bible study group to learn about God's will for your life. You can pray to God about your daily life and have a Christian church pray for you. (+ info
Is tonsil and adenoid surgery together the right thing to do?
My son is 5 yrs old and had problems with extremely enlarged tonsils and adenoids.
The tonsils have come for the first time in his entire 5 yrs but the the adenoid problem persists from last two years. He snores during sleep and has a hard time breathing at night sometimes. He also has a problem with choking. The pediatric ENT Advised us today go for the surgery to remove both adenoids and tonsils. Is it better just to get it done together or just go for adenoid surgery right now ? Please advise us.
I would go for both since you are having problems with both now. Especially with the choking. (+ info
How do you tell the difference between cystic and normal acne?
I read cystic acne was 'large pus filled pimples' and i have a few of those, but they go away relatively quickly, which i read cystic acne doesn't. So how do i tell what i have?
i used to have cystic pimples until i changed my diet,so this probably might help you-------- a lot of food ingredients(not fresh meat,veg,fish,cheese,potato's,etc) are man made from chemicals,now if i gave you a teaspoon of chemical to drink,you probably wouldn't be surprised with the new cystic pimple growing the next day, how do i know? i lived this nightmare of cystic pimples,as one was dying,ping i could feel the next one coming,running home from school or getting up in the morning to look in the mirror(juli,stop looking in the mirror they won't go any quicker),making excuses not to go out and staying in to apply mud from mexico,slime from the bottom of the sea,face masks made from kangaroo poo,it looks a little bit better(who are you kidding)why do i only see one person in every million like me,because they aren't allergic to anything,oh no i got another one,this will be my last one,it's the end of my teenage years,this will be my last one i'm thirty and a half next week. i had 10 years of them,left mums house,bingo month later clear fresh complexion,if i went back to mums big spot again,mum said you're allergic to something,6 months later we found that it was a food (chemical)ingredient added as a food flavouring,sauces,gravy,flavours put on breadcrumbs,drinks,curries,lots of things. no more bending over when a fit boy passes so my hair falls over my face.it should be easy to find out what your eating that your allergic to
e-mail me if you need advice,profile page
p.s ignore memeber dr frank he's a ------------ (+ info
I have symptons of Cystic Fibrosis. Is it possible to start show the symptons in my 30's?
I am having a hard time breathing and seem to have attacks that come on all of a sudden. Also I t feels like something stuck in my lungs..I cannot remeber any signs when I was growing up. Is it possible to start showing signs of cystic fibrosis in my 30's?
Yes, it is possible. Some of the previous answers are unbelieveable.
No, you don't have to be diagnosed prior to 2 years old and NO you don't have to spend your teenager years in the hospital. Some of you are reading out of a 1950's medical journal.
There are many different mutations with different manifestations.
There are MANY different forms of CF and there are documented cases of people being diagnosed in their 30's, 40's, 50's , 60's etc...
Good Look and I hope you find what is ailing you. (+ info
What is a good treatment for cystic pimples?
I would like to know, what is good to use on cystic pimples?
Best way if to clear your body of toxins (the main cause of hormonal imbalance, thus acne). Once the inside it cleared, your acne will go away too. Well that's my experience, I've had acne for years before learning more about what caused it. I have used this detox method to get rid of toxins http://morereviewz.googlepages.com/acnefree.htm I've been acne free since then.
Good Luck (+ info
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