Is it possible to be intolerant to oats but not have Celiac disease?
Is it possible to be intolerant to oats, but not wheat, and not have Celiac disease?
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Yes. I have the same problem, and I don't have Celiac's. (
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What is the best age to test for Celiac Disease?
My son has Down Syndrome and because people with DS have a higher risk of Celiac Disease, we have opted to avoid gluten until he can be accurately tested. I have gotten mixed answers as far as how early he can be ACCURATELY tested. Anyone any experience with this?
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Hi! Some people say that a person needs to be eating bread/gluten for a least three weeks to test positive to celiac. Others say that no time is required. If you go to a doctor who has experience with celiac (preferably if they also have experience with Down Syndrome or Autism and the food connection with behavior), they will be able to note all of the symptoms and see the test results and make an accurate diagnosis. Many children never show the typical symptoms. Therefore it is really important that you find a doctor who has experience with celiac.
Another thing to remember is that some children are only gluten intolerant. This means that their bodies still react negatively to gluten, just in less intensity than in those with celiac.
I want to recommend to you a diet that has helped LOADS of children with autism, adhd, down syndrome, etc and adults with IBS, Ulcerative Colitis, IBD, etc. It is similar to gluten free / casein free (the diet that many with downs syndrome and autism follow)... but it is much more effective.
It is called SCD (specific carbohydrate diet) and works by helping the body digest corrently again... based on 50 years of research into how the small intestine affects the brain.
You can ask loads of mothers on the yahoo groups forum for this diet about celiac testing. They have loads of experience about how their children are affected by the food they eat.
http://health.groups.yahoo.com/group/pecanbread/ (
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How rigorous do I have to be in avoiding gluten for celiac disease?
I have a provisional diagnosis of celiac disease, but have been symptom free - except for some absorption issues. So now I have to live gluten-free. But I'm the mom, chief clerk and bottle washer. How careful do I have to be when I make regular food for my family? Can I still bake their light, fluffy and tender birthday cakes using cake flour? Sandwiches on regular bread for them? Since I don't have symptoms, isn't it going to be impossible to tell how much is too much?
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Symptoms or not, the damage is still being done to your body. You MUST be as careful as you can when you have a "mixed" household.(meaning gluten and non-gluten eaters)
This means separate cooking pots, cooking utensils, separate toaster, dish washing sponges, etc. Set up a area in the kitchen that is gluten free.Do NOT allow anything to get into that area. You have to realize that the amount of gluten to trigger a reaction is just slightly more than 20 parts per MILLION, so we are talking less than a crumb to set off the reaction.
If you use those flours in your 'normal' baking, then you need to set up the area ahead of time so you can contain the flour dust poof (it can travel up to 3 feet.) I have heard of people having reactions from inhaling the dust and then swallowing it, so be very careful to keep your face out of the way and wash your hands, face, arms, etc. well after using unsafe flours, just to be on the safe side. Most of my friends with celiac mix all of that stuff up outside and then bring it in the house to cook only. Most eating of gluten is outdoors where it can not cross contaminate the kitchen. I have a friend who had an oven installed in the garage for her husband to prepare and cook his artisan breads in.He does not bring those flours into the house as it simply isn't worth the risk.
Personally, I just went 100% gluten free in my kitchen except for packaged breads that we keep in the dining room (on a server in there) and the crumbs are kept clean using disposable towels. That way no crumbs end up in drawers or on the wrong dish sponge, etc. On nicer days sandwiches with gluten bread are made and eaten outside. I find that it is best to have one safe haven in a world full of gluten out there!
Remember, the more strict you are with your diet, the less likely you are to cause the autoimmune reaction, and the less chance of cancer you have at a later time. Go as gluten free as you can, you owe it to yourself and your family to be here as long as you can!
Sorry, but gluten free is hard work, but well worth it!
Also, once you get that diagnosis of celiac, your children, siblings and parents will need to get tested (and continue to get tested throughout life because it can trigger at any time) as this is a genetic based autoimmune disease.
Please go to celiac.com to get more information on setting up a safe gluten free area for you and to download the unsafe ingredient list. The gluten free mall has some great gluten free shopping guides that are real lifelines.
Good luck, hope you get your diagnosis soon, happy healing!
p.s. really good gf sites are out there! Try Katrina's Kitchen, gluten free girl, gluten frieda, celiac.com lots of great everyday easy things to make so going gf for your whole family won't be that bad! Enjoy your new, healthy lifestyle! (
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How about some recipes for the huge number of people who have celiac disease?
I have not misspelled "celiac!" Your spell check does not even include an acceptable change.
This is indicative of the lack of information and attention given to this increasingly wide-spread and very serious disease.
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One of my husbands best friends has Celiac's, we had a New Years Eve party last year and she was thrilled that we had homemade hummus (she dipped special crackers she brought in it, as well as veggie sticks and apple slices). She was also thrilled that I made the chili from scratch because there wasn't any gluten (that's what you have to avoid right?) in it like there would be if you used a mix or packet of chili spices.
Those are the two that come to mind. My favorite place for finding recipes is allrecipes.com I wouldn't be surprised if they had a celiac or gluten free section. If not try googling something like 'recipes that are celiac friendly'.
Good luck! (
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What kind of cookies can you home baked snack for someone with Celiac Disease?
My child's preschool teacher refused to eat my Christmas cookies at the class party as she said she has Celiac Disease. For Valentines, I wanted to make a snack she could eat too. Any ideas?
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http://allrecipes.com/Recipe-Tools/Print/PrintFourBySix.aspx?RecipeID=11441&servings=15 (
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How can I control shortness of breath (asthma) with celiac disease?
I have celiac disease and also shortness of breath. The shortness of breath is also asthma. How do I control the shortness of breath with the celiac disease?
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You have two different issues. Celiac disease and asthma. First of all for the celiac disease you have to completely avoid gluten from wheat, rye and barley and I would avoid oats too or at least make sure they are certified gluten free. Being gluten free will allow your intestines to heal and you will absorb nutrients better.
Now for the asthma you need to go to a pulmonologist and get a long term acting medicine as well as rescue inhaler for the asthma. I am on Advair for the long term-- take two puffs twice a day and just have the albuterol but only use it a few times a year and I exercise walk and play tennis.
I also have celiac, so if you have more questions feel free to contact me through here. (
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Would a colonoscopy let me know if I have celiac disease?
I've had some problems with my stomach for a few years now and think that I might have celiac disease. I had a colonoscopy 3 years ago and my intestines looked fined, so does that mean I don't have celiac disease or would celiac disease not show up in a colonoscopy?
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No, a colonoscopy checks the large intestine and the problems with celiac disease show up in the small intestine so the test used for that is an endoscopy down the throat which is not as bad as it sounds. First would come some blood tests. You need to ensure that you are eating glutenous foods til you get tested. (
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Is it normal to feel menstraul like cramping due to celiac disease?
I have celiac disease, and have often had abdominal discomfort that feels like menstraul cramping. Is this normal?
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Can a colonoscopy diagnose Celiac disease?
I started eating a gluten free diet about a week ago and I will be having a colonoscopy in a few weeks. I have not been diagnosed with a gluten intolerance but I think that is what I have. Should I start eating gluten the week before the colonoscopy? Also, I have read that an endoscopy can diagnose celiac disease. Can a colonoscopy also diagnose it?
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Colonoscopy, by Joseph A. Murray, MD. of the Mayo Clinic Rochester, MN, a Gastroenterologist who Specializes in the Treatment of Celiac Disease:
''The biopsy determination of celiac disease requires demonstration of the abnormalities in the proximal small intestine. It is not possible to get such a biopsy going through the anus. The colonoscope does not reach that far. The biopsy instrument must go through the mouth. This is usually achieved with a upper endoscopy (AKA gastroscopy, EGD) A colonoscopy is frequently preformed for the investigation of diarrhea but does not and can not detect celiac disease. '' (
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Is an endoscopy completely necessary in diagnosing Celiac disease?
My doctor suggested an endscopy to identify if my toddler has Celiac disease. Is this invasive procedure completely necessary?
She has already had a blood test, which suggested she has Celiac.
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endoscopic biopsy is still the golden rule ..But since she is so young I wonder if your dr can use a Wireless Capsule Endoscopy
"The Camera in a Pill" ? (
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