FAQ - cleft lip
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What is the name for the cleft above the upper lip and below the nose?


It is more defined in some than others.
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Commonly referred to as the "Cupid's bow," the central depression under your nose is called the philtral (or philtrum) dimple, and the ridges are called philtral columns.  (+ info)

My mom had me, and then mom had my brother, who was born with a cleft lip/palate. Is this hereditary?


Basically, when I have children, how likely is it that they will have a cleft lip/palate?
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Few cases are believed to be hereditary. When they are, however, it's typically in combination with a craniofacial disorder that has other features, too (Crouzon's Disease, Treacher-Collins Syndrome, Cri du Chat Syndrome, and others), or in certain populations, such as Central American natives, and one particular American Indian tribe in the southeast US-- they have the highest incidence in the world.
On average, one form or another of clefting is present in about one in 750 live births. It is the easiest of developmental surgical disorders to repair.
Clefts happen due to the failure of the palate and/or lip to close during the 8th week of pregnancy. Environmental toxins, including medications, are usually to blame. Some cases are difficult to prove, so there is a subset of kids who have clefts of no known cause.
Don't worry. If you want to have genetic counseling prior to becoming pregnant, large academic teaching hospitals have a genetic counselor or two.  (+ info)

Does anyone else have a cleft lip and palate?


I had a bilateral cleft lip and palate and just turned 21. Just about done with all the plastic surgery's now. Always wounder how people made it though all of this crap. Thanks
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I don't have it but I sponsor hundreds of children in the Philippines every year and help them get theirs corrected at a young age. Some look really horrible before surgery is started. I am sure it is not pleasant, even painful, but I am glad to do my part in helping.  (+ info)

What causes a baby to have a cleft lip?


Just wondering. Some say it's because of the the medicine the mother drank while she was pregnant. Does anyone know the answer to this?
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A cleft is an opening or a split in the upper lip, the roof of the mouth (palate) or both. In the womb, every baby has this opening when the mouth is forming, but the structures normally fuse together during the first three prenatal months. In babies with cleft lip or cleft palate, the fusion never takes place or occurs only partially, leaving an opening.

Researchers believe that most cases of cleft lip and cleft palate are caused by an interaction of genetic and environmental factors, although a definite cause may not be discovered for every baby.

â– Genetic factors. Either the mother or the father can pass on genes that cause clefting, either as an isolated defect or as part of a syndrome that includes clefting as one of its signs. In some cases, babies inherit a gene that makes them more likely to develop a cleft and then an environmental trigger actually causes the cleft to occur.
â– Environmental factors. Fetal exposure to cigarette smoke, alcohol, certain medications, illicit drugs and certain viruses have been linked to the development of a cleft. Researchers believe that some clefts may be caused by nutritional deficiencies in the mother, particularly a lack of folate.  (+ info)

why does my cleft lip appear more prominent in photos?


It seems that whenever I look in the mirror, I can barely see my cleft lip. But when I see myself in photographs, my cleft lip is very pronounced and the nostril seems to flare out much more than when I look at myself in the mirror. I really hope I don't look like this in real life :(
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Often times the flash on a camera can cause lighting effects on lighter/darker skinned people. It may be that you are using a flash and it is causing the light to project different attributes.  (+ info)

What will it take to survive or stay healthy if you have cleft lip and palate?


Life span? Is it fatal?
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Not fatal at all. They usually are able to do surgery on a baby with it.  (+ info)

Do you kiss any differently if you have a cleft lip or palate?


Any type of kissing, is it different to you, the person who has it, or the other person? Or, since some people with that, have underbites before they get it fixed, is it different if you have an underbite too? I am really just wondering.

-wow I, hope i put this in a good section. Haha.
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No it's just fine and the most important is the intense feeling of kissing someone.  (+ info)

What are the odds of haveing a baby with a twisted cord, club feet, cleft lip, many more problems?


My baby was born stillborn, with nothing growing the way it should have, i carried him for 32 weeks and the doctors did not know there was a problem. how rare is it to happen again? he only weighed 7.2 oz and 8 inches long. i wanna know what causes this to happen.
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I am so very sorry.
I would like to suggest that before you try to conceive again, that you and your husband get genetic testing done. Both of you individually may be genetically fine, but the combination of the two of you may have genetic implications. I know a couple that had two children. It was discovered when they were 2 years old, that they had a genetic disorder that causes blindness, increasing seizures, and many more symptoms. The older child has passed on, although these children have survived longer than any others that have the same disease. Both parents are genetically fine, but when they get together, their genes have certain information that when combined causes this illness.
You have my deepest sympathy.  (+ info)

How do I tell my 3 year old daughter that she is having surgery on her cleft lip?


This surgery will be her third, but she was too young to remember the previous two. This surgery is more cosmetic than a necessity.
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Congratulations for your daughter.

Now, I was very, very young when I had a series of surgeries to fix some defect that I had. I was 3, 4, and 6 for each operation. Here are a few things you can do for her

Make sure she is allowed to have her favorite doll in the hospital, allow her to visit the nursing staff at the hospital so she can get to know who is going to be around her. Strangers are scary. Get her a new little nightgown that the hospital will allow her to wear (buttons in the front)

Now, show her old pictures of herself not to bring up bad memories and then say she went to the hospital to fix it. Then tell her the hospital wants her back for one more fix to make it look so much better. Then explain that she will get to go to sleep in the hospital when the doctor tells her and when she wakes up it will be fixed. Tell her there will be bandaids for a while (term for bandages)

Take the days off that she will be in the hospital bring a blanket and camp out in her room.

I know I was scared and that was 27 years ago. I had a good nursing staff that became friends with me, it was mymother who came up with getting to know the nurses before I went in. Taking me to lunch at the hospital a few times and walking the childrens ward to say hi to the nurses.  (+ info)

What is the difference between a cleft palate and a cleft lip?


The main difference is that a cleft palate is where the roof of the mouth is open up into the nose, and a cleft lip is where the lip did not come together. Often they are seen together, but sometimes just the palate is affected and sometimes just the lip. There are many variations of a cleft lip and palate, bilateral, unilateral, partial, submucuous cleft.

"cleft lip is noted at birth by the presence of a notch or gap in either one or both sides of the upper lip. If the cleft extends into the gum line, it may still be considered a cleft lip only. However, if a notch or gap in the lip occurs because of injury and is not present at birth, it is not considered a cleft lip."

"cleft palate can either be an open and obvious gap in the roof of the mouth or be covered over by the lining or mucous membrane of the roof of the mouth, called a submucous cleft, which is not visible to the naked eye. A submucous cleft is characterized by a wide or split uvula (the small bell-shaped tissue that hangs down in the back of the throat), a small cleft or notch at the end of the hard palate and a thinning of the muscles in the palate that is covered by mucous membrane."

A great place to get information is www.cleftadvocate.org.  (+ info)

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