FAQ - cytomegalovirus retinitis
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Where can I find mothers coping with fetal cytomegalovirus?

I am currently a student studying to become an ultrasound Technician (sonographer). I am working on a project concerning fetal cytomegalovirus. I would like to speak to mothers of children with cytomegalovirus or women that were pregnant with a child that had fetal cytomegalovirus. I would love to hear personal experiences, feelings, emotions, etc. It would be greatly appreciated! Look forward to hearing from you.

Heres a link for fetal cytomegalovirus message boards!

http://search.yahoo.com/search?ei=utf-8&fr=slv8-msgr&p=fetal%20cytomegalovirus%20message%20boards&type=  (+ info)

What is the significance of Retinitis Pigmentosa, an eye disease?

Who/how has it shaped or what is its potential for shaping history, politics, geography?

Retinitis Pigmentosa

Retinitis pigmentosa (RP) is a rare, hereditary disease that causes the rod photoreceptors in the retina to gradually degenerate. The rods are located in the periphery of the retina and are responsible for peripheral and night vision. Cones, another type of photoreceptor, are densely concentrated in the macula. The cones are responsible for central visual acuity and color vision.

The disease may be X-linked (passed from a mother to her son), autosomal recessive (genes required from both parents) or autosomal dominant (gene required from one parent) trait. Since it is often a sex-linked disease, retinitis pigmentosa affects males more than females.

People with RP usually first notice difficulty seeing in dim lighting and gradually lose peripheral vision. The course of RP varies. For some, the affect on vision may be mild. Others experience a progression of the disease that leads to blindness.

In many cases, RP is diagnosed during childhood when the symptoms begin to become apparent. However, depending on the progression of the disease, it may not be detected until later in life.

Signs and Symptoms

Difficulty seeing dim lighting

Tendency to trip easily or bump into objects when in poor lighting

Gradual loss of peripheral vision


Loss of contrast sensitivity

Eye fatigue (from straining to see)

Detection and Diagnosis

Retinitis pigmentosa is usually diagnosed before adulthood. It is often discovered when the patient complains of difficultly with night vision. The doctor diagnoses RP by examining the retina with an ophthalmoscope. The classic sign of RP is clumps of pigment in the peripheral retinal called "bone-spicules." A test called electroretinography (ERG) may also be ordered to study the eye's response to light stimuli. The test gives the doctor information about the function of the rods and cones in the retina.


There is currently no standard treatment or therapy for retinitis pigmentosa; however, scientists have isolated several genes responsible for the disease. Once RP is discovered, patients and their families are encouraged to seek genetic counseling.

Current Research

Scientists at Johns Hopkins University are developing a micro-computer chip prosthesis called the Multiple-unit Artificial Retina Chipset (MARC). Once implanted in the retina, the chip transmits images to the brain that are captured from a small camera mounted on the patient's glasses. The chip is still in development and is not yet available for widespread use.

Doctors continue to search for treatments for RP but have yet to find a cure.  (+ info)

Is there now a cure for Retinitis Pigmentosa?

We found out that my mom has Retinitis Pigmentosa=( My mom is a really good mom and I really don't want her to loose her vision, because I care about her so much. I was wondering weather there are any cures for it now?


No, I don't think so. However, they are doing some research...http://www.highbeam.com/doc/1G1-18928308.html
Alot of articles I read said you couldn't fix what was already damaged but can slow down further damage by taking vitamin A.  (+ info)

Can having the Cytomegalovirus prevent you from military service?

Please only respond if you know the answer, or if you have an idea of what the answer may be. Please don't just copy and paste a wikipedia article. Thank you for your help.

I doubt it. Most people get that virus eventually.  (+ info)

Is there really a cure for Retinitis Pigmentosa?

I need a topic for a research paper, and i chose this question, but i need it to be argumentive.

sorry dude ,no cure ,for this ,i seen so many cases and families with majority sufferers or carriers ,they have to adjust to low vision aids ,and live life according to the vision they sustain ,its genitically determined the photorecptor rods and cones will self destroy themselves ,many types and many subcategories .classifications ,but never seen a case with a 6/6 vision ,,best is around 6/36 .and 6/60 and counting fingers ,  (+ info)

what is the difference in between usher syndrome and retinitis pigmentosa?

Can somebody explain these comparative meanings? No website suggestion, please.

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How do you get help for people with Retinitis Pigmentosa??

My husband has RP and I know that there are many things in the begining stages of development to treate and cure this disease. What I want to know is when these cures are perfected, how do people in bad financial situations get them. To be specific, I guess I need to know what kinds of organizations there are that will help my husband get the help he needs. He already has Medicare because he gets SSI. What else can we do and who can we contact for help??

Check with your local Lions Club. Lions are recognized worldwide for their service to the blind and visually impaired.  (+ info)

Are there any online support groups for mothers with children diagnosed with Retinitis Pigmentosa?

A friend of my just have her child diagnosed with Retinitis Pigmentosa, and she is devastated :(, I was just wondering if anyone knew of a site where she could talk to other people who have children with it....a support site or forums or something like that? thanks for any help :)

Here is a link from The Foundation Fighting Blindness.
There are many message boards here for different eye diseases.

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does anybody playing any outdoor sport have retinitis pigmentosa?

i want to know this because i feel only weak people may get this disease.

No i don't have it and would think it would be impossible to play any kind of sport with this condition, if people don't know what this is, its a inherited decease causing retinal degeneration and effects the images from the visual field, its got nothing to do with people being weak, maybe if you look it up on the net you might learn more about it.  (+ info)

Has anyone heard of retinitis pigmentosa?

I have it. Has anyone heard of any treatments/cures for this disease?

Yes, I have heard of it - my mother has a form of it.

As far as I'm aware, there are no treatments or cures - but it's been years since I talked with her about it, I think it was the mid 90's when she was diagnosed (and told she was very lucky to still have ANY sight left in her one eye at her age, as most people were blinded by their early 20s & she was in her early 50s)

I'd ask your doctor about treatments/cures.  (+ info)

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