FAQ - endomyocardial fibrosis
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I have symptons of Cystic Fibrosis. Is it possible to start show the symptons in my 30's?

I am having a hard time breathing and seem to have attacks that come on all of a sudden. Also I t feels like something stuck in my lungs..I cannot remeber any signs when I was growing up. Is it possible to start showing signs of cystic fibrosis in my 30's?

Yes, it is possible. Some of the previous answers are unbelieveable.
No, you don't have to be diagnosed prior to 2 years old and NO you don't have to spend your teenager years in the hospital. Some of you are reading out of a 1950's medical journal.
There are many different mutations with different manifestations.
There are MANY different forms of CF and there are documented cases of people being diagnosed in their 30's, 40's, 50's , 60's etc...
Good Look and I hope you find what is ailing you.  (+ info)

What is the average life expectancy for people with Cystic Fibrosis?

I'm pregnant with my first baby and I got some tests done and the doctors informed me that my daughter will have Cystic Fibrosis. My mother had a brother and sister who died from the disease when they were quite young. Anyway, I'm wondering what is the current life expectancy for children/people with Cystic Fibrosis and how can you best take care of them to maximize their life?

more than 37 years old  (+ info)

What is the difference between asbestosis and pulmonary fibrosis?

My husband has been advised by his consultant to claim industrial disease allowance for his pulmonary fibrosis.Has he worked in shipbuilding with asbestos we expected to be told he had asbestosis!Should we be pleased or is it two names for same illness? He has lost a lot of former colleagues to asbestosis and so we and especially me, are very concerned about his quality of life in the near future.

asbestosis is caused by exposure to asbestos asbestos fibres are thin and microscopic and easily pass through the filters in the nose and bronchi into the lungs it sticks to the lungs and scars the lung tissue it makes it harder for the lungs to function properly and gas exchange gas exchange in the lungs gets harder it can cause respiratory failure and can take years to develop
pulmonary fibrosis scars the tissue in the lungs eventually the air sacs in the lungs are all replaced by fibre or scar tissue this tissue is thicker and the tissuyes cant transfer oxygen to the blood anymore  (+ info)

What are the chances of a woman with cystic fibrosis to get pregnant?

I have cystic fibrosis and i was curious to know the percentage chance of a woman with this disease to get pregnant. i know we can conceive, but with men there is only a 2% chance of them getting their partner pregnant.

you could take a look on http://www.getpregnantguides.com/ . did a search on the internet and i found there some great guides  (+ info)

What sports/physical activities are good for someone with Cystic Fibrosis?

I want to get my daughter involved in some good sports/physical activities. She's only 3 years old. She has Cystic Fibrosis. We live in New York and walk a lot, she gets out of breath often when we go for walks and walk up hills. But the doctors say its good for her to have to work her lungs. What are the best sports and other physical activities I should get her involved in?

Regular exercise improves the health of people who have cystic fibrosis. Exercise helps loosen mucus, encourages coughing, improves oxygen flow, and makes you feel better. Upper body exercises, such as swimming or rowing, increase the strength and endurance of the muscles that are used for breathing.

After talking to your doctor about how much exercise is good for your child, encourage your child to participate in sports and recreational activities. Team sports are great ways for your child to stay fit and to interact with other children. Talk to the coach or supervisor about your child's abilities and the important role of physical activity in the treatment of cystic fibrosis.

Some people who have cystic fibrosis may not be strong enough to participate in certain activities. Your doctor can recommend the right amount and type of exercise for you. Or, you may work with a physical therapist to develop your own exercise routine.  (+ info)

What causes differences in the severity of Cystic Fibrosis?

I have identical twin girls (they're 16) who have Cystic Fibrosis, they have always been in the same environment, but they seem to have two different severity levels of Cystic Fibrosis, one of my twins is sick very often and has had to spend numerous amounts of time in hospital, has much lower lung function, needs a feeding tube, and will need a lung transplant eventually, my other daughter does not get sick and get infections that much and has always been a lot stronger. What actually causes the differences since they are identical twins?

Different mutations of the disease may play a part in this. However, this cannot be ruled at the answer either. For example, I have CF as well, my mutation is the G551D, and right now I am currently in a study with 2 other people at my CF center (about 80-120 in the US hopefully at the end) and even at my center 5 people have this mutation. I am about 50% lung function (this is very good for me) but have spent a lot of time in the 40%. To be in this study your lung function had to be over 40% and stable. One girl is not able to participate because she is under that mark, and one boy is in the 90's so he cannot participate because he is doing too well! I think that Cystic Fibrosis is still really misunderstood, and not everything is known yet about it. Everyday there are new treatments that are developing to make life better. Right now I am a lot healthier than my older sister who does not have CF! I have not been ill in nearly a year, which is amazing to me because for about 3 years I consistently had IV therapy every 3 to 4 months for about 2 months at a time.  (+ info)

What are the symptoms of cystic fibrosis?

I know that it affects the lungs, but what is cystic fibrosis exactly?

  (+ info)

What are some good websites to study or look up on cystic fibrosis?

My uncle passed June 8, 2010. He had cystic fibrosis. I want to see all about it and know the details. He lived to be 34.

http://www.webmd.com/video/adult-cystic-fibrosis  (+ info)

What should I do if my 4 year old has symptoms of cystic fibrosis?

My 4 year old son has had breathing problems and been hospitalized twice for croup, pneumonia once and constantly has a deep cough. His father is a carrier for cystic fibrosis and im not. Should he be tested? His half brother has been diagnosed with CF.

Assuming you are certain about not being a carrier, and have been test for it. Then there is absolutely zero chance of him having cystic fibrosis.

Every person has two copies of a gene, one inherited from each parent. If a person has one normal CF gene and one abnormal CF gene, then that person is a carrier of CF. Having only one abnormal copy of the CF gene is not enough to cause the disease, so a CF carrier will not have any symptoms.

If both parents are carriers of an abnormal CF gene, then there is a chance that each parent will pass the abnormal gene on to there child. Having two copies of the abnormal CF gene results in CF.  (+ info)

Is it good to use hot tubs and steam rooms when you have Cystic Fibrosis?

I'm 15 and I joined a health club that has a hot tub, steam rooms and saunas and I have Cystic Fibrosis. Are these things good to use or not with my condition and for how long at a time?

I'm not really sure but you'll have to be careful in a public place if your immune system is down because people will be spreading minor infections that might be hard for people with CF to fight .
I would think that it might relax your system but i'm just guessing , you should ask your doctor just to be sure .
I hope this helps and good luck :)  (+ info)

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