Does anyone have any information about reoccurring cerebellar ataxia in a child ?
My daughter was diagnosted with this when she was 3 now she is 9 and has it again. The ataxia has followed a viral infection both times. Her gait is unsteady with no other real symptoms.MRI has come back fine both times. The unsteady gait lasted almost a month last time. We don't know what else to do for her.
ok. it will be long
In cases where it was produced as result of any viral infection (like chicken pox) it will resolve on its own\
In cases where the ataxia is caused by other conditions, like scleriosis or cerebral palsy, it might not be treatable.
but to improve the coordination in both cases there is physical therapy (if experiencing problem with walking) speech therapy (for speech problem) etc. (+ info
Why to dysarthria (disturbance of speech) and ataxia (imbalance gait) occur suddenly..?
My cousin got this suddenly about 10 days back...what may be the reason..?
I once had a sudden speech issue related to a reaction to a drug I was prescribed. I kept biting my tongue, the words wouldn't form correctly, it was frightening. Perhaps it is a bad reaction to something she's taking. I felt a little un-balanced also, and I had an increase in blood pressure. The drug was Zyphrexa. I went to the emergency room, I suggest she do so also. (+ info
Sudden onset of dysarthria (slurred speech) and ataxia (gait trouble)..!?
MRI of the brain shows everything is normal...whatelse can be the reason...? Doctor is asking to get admitted in the hospital..If everything is normal in the brain, whatelse causes those problems.
Many things come to mind. Stroke is the first but, if that is completely ruled out, loss of oxygen to the brain,Why?...that's a good question. Exposure to toxins. Drug overdose.Lead poisoning. Severe allergies to things like Patchouli. Get admitted to a hospital.These days doctors are sending people home too soon, and doing outpatient procedures that used to be followed by a night or even 2 in the hospital. If the Dr. WANTS you in the hospital...he's serious.The MRI is not the only brain test that is revealing or even the best test for all brain conditions. Some things may be ruled out, but not everything. (+ info
has anyone heard of a condition where a person gets ataxia or becomes immobile when smoking cigarettes?
i have a friend who used to smoke a pack of cigarettes a day without any problems but lately when he smokes, he gets bouts of ataxia where he feels vertigo, cannot move properly, is reduced to walking in little steps and is forced to lie down for a period of 8-12 hours. The ataxia experienced is for a long period of time and the walking gait, balance, and stance are affected. The best way to describe it is the movements of my friend become robotic and cannot do much physical activity. Has anyone ever heard of or experienced this condition and if so are there any remedies. Thanks all
He needs to go to the emergency room when this happens. Or see his doctor NOW. This is not from smoking cigarettes. (+ info
How many types of Spinocerebellar Ataxia are there?
How many types of Spinocerebellar Ataxia are there and which one is the worst type which can never be cured? Because my friend's brother got in a car accident and he broke his spine and now his leg is paralyzed and the doctor said he got this disease and its the worst of its kind and can never be cured. Please also tell me what type that is please.
There are about 30 know SCA's plus a few still unknown. That's not counting the other types of dominant and recessive hereditary ataxia's. In all it comes to more or less 100 types.
My name is Michel Beaudet, I'm 46, have FA and live in Quebec, Canada.
I'm sending this message to invite people on this list to also join
another list for those with ataxia. The list is called Internaf and
there's also a website full of info at http://internaf.org
International Network of Ataxia Friends is a mailing list for ataxia
patients and family which serves as a support group and information
exchange vehicle. There are currently over 650 subscribers from more
than 40 countries worldwide.
Subscriptions to INTERNAF is free.
For info on how to subscribe, go see, http://internaf.org/network/services.html or
for email only access click here and send: [email protected]
for full yahoogroups features access go to http://groups.yahoo.com/group/internaf/join
ps: Don't hesitate to email me if you have questions about internaf
Internaf - INTERnational Network of Ataxia Friends
Does anyone know a cure for cerebellar ataxia?
A friend is experiencing this baffling condition and the docs don't know what is causing it. They believe his cerebellum is shrinking causing coordination problems, speech impairment/slurring, unsteady gait. He does not know anyone with the condition. It seems to be progressing and he's been told by docs he could end up in a wheel chair. As a child he had Gilliam Beret disease, a disease that destroys nerve tissue. He was paralyzed at age 13, had therapy and fully recovered. He is now 45 years of age, otherwise healthy--perhaps intolerant of wheat and dairy, but a healthy European male living in the U.S.
There is no known cure for cerebellar ataxia. (+ info
Is there a support group for people with Spinocerebellar Ataxia?
I used to belong to a support group for people with spinocerebellar Ataxia but I bought a new desktop and I lost all my contents in my folders; I'd like to get back in the group but I can't find it. It's been a year since I quit posting.
I don't know if these would be helpful for you, but I will provide some links.
www.experienceproject.com/...Spinocerebellar-Ataxia.../91756 (+ info
Does anyone know where I can get a complete list of possible Ataxia symptoms?
I have Ataxia and have begun biting my tongue alot lately. Just wondering if it yet another sympton. A link would be appreciated.
Symptoms of Ataxia
Balance problems and unsteadiness are the most common early symptoms of ataxia, and these usually progress over time until walking becomes so difficult that a wheelchair may become necessary for ambulation. Coordination is affected with shakiness and increased difficulty maneuvering movements of the arms and legs. Seemingly simple tasks such as holding a glass of water or a cup of coffee may become more and more difficult. Speech becomes thick or slurred, and there may be swallowing difficulties. There are often other disorders that affect those with ataxia, such as heart disease, diabetes, loss of hearing, spinal curvature abnormalities, and high-arched feet. Although these disorders are possible in those with ataxia, they are not seen in everyone affected.
http://www.medschool.lsuhsc.edu/genetics_center/louisiana/article_ataxia2.htm (+ info
How does Spinocerebellar Ataxia affect the other organ systems?
I'm doing a disease project and I'm a bit lost. I'm searching for all the organ systems that SCA would affect and what it does to each system. I've got nervous and muscle-- if im wrong, please correct me. Are there any other systems that are affected?
Ataxia with Identified Genetic and Biochemical Defects
Last Updated: January 19, 2007 Email to a Colleague
Synonyms and related keywords: abetalipoproteinemia, Angelman syndrome, arginase, argininemia, argininosuccinate lyase, argininosuccinate synthetase, argininosuccinic acidemia, ataxia telangiectasia, ataxia with selective vitamin E deficiency, ataxia with oculomotor apraxia, AOA, autosomal dominant ataxias, autosomal recessive ataxia, biotinidase deficiency, carbamyl phosphate synthetase deficiency, CPS deficiency, congenital disorders of glycosylation syndrome, cerebrotendinous xanthomatosis, Cockayne syndrome, CBS, Dandy Walker syndrome, defects of mitochondrial beta oxidation, dentatorubropallidoluysian atrophy, DRPLA, episodic ataxia type 1, EA1, episodic ataxia type 2, EA2, fragile X–associated tremor/ataxia syndrome, FXTAS, Friedreich's ataxia, Friedreich ataxia, GM2 gangliosidosis, Gaucher type III, Hartnup's disease, Hartnup disease, hypobetalipoproteinemia, Krabbe's globoid cell leukodystrophy, L-2 hydroxyglutaric acidemia, Lafora bodydisease, late infantile and juvenile sphingolipidoses, late infantile neuronal ceroid lipofuscinosis, late-onset urea cycle defects, Leigh's disease, Leigh disease, leukoencephalopathy with vanishing white matter, leukoencephalopathy with VWM, maple syrup urine disease, metabolic ataxias, metachromatic leukodystrophy, mitochondrial cytopathies, myoclonic epilepsy with ragged red fibers, MERRF, NARP syndrome, neuropathy ataxia retinitis pigmentosa, Niemann-Pick C disease, ornithine transcarbamylase deficiency, OTC deficiency, recessively inherited metabolic ataxias, Refsum's disease, Refsum disease, progressive myoclonic epilepsies, pyruvate dehydrogenase deficiency, pyruvate carboxylase deficiency, spinocerebellar ataxias, succinic-semialdehyde dehydrogenase deficiency, urea cycle defects, Unverricht-Lundborg disease, xeroderma pigmentosum, XP, metabolic disorder (+ info
What are the different types of ataxia?
I am aware Friedrich's ataxia is one of them, but, what are the other types?
Because on wikipedia, it classifies ataxia into 3 groups but I believe these are functional classifications not types of ataxia? Thanks.
So would the 6 types ataxia be:-
Thanks very much :)
I found myself w/ cerebellar ataxia a few years back. I'd quit taking drugs cold turkey AND I went through post traumatic stress disorder.
Keep in mind Alarming Accent Ataxia, which usually is what happens in PTSD episodes. (+ info
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