Is glycogen storage disorder type 2 a curable disease?
SINCE I HAVE A CHILD 16 MONTHS OLD AND HE WAS DIAGONISED AT THE AGE OF SIX MONTHS GLYCOGEN STORAGE DISORDER TYPE 2 AFTER DOING BONE MARROW TEST AND LIVER BIOPSY.
You have to ask the paeditrician who specialises in endocrinology for an answer. Probably it can be managed but he has to take insulin or other medication for the rest of his life. Try Spirulina, it is a very healthy food when he is older, which may heal his diabetic-related condition. (+ info
My daughter was diagnosed with Glycogen Storage Disease type 1b.?
She was10 month old. She is 2 now and doing fine. Anyone out there with similar experience? How are these children doing now? Can you share some tips? It would be really helpful. Thank you!
A glycogen storage disease (GSD) is the result of an enzyme defect. These enzymes normally catalyze reactions that ultimately convert glycogen compounds to glucose. Enzyme deficiency results in glycogen accumulation in tissues. In many cases, the defect has systemic consequences, but, in some cases, the defect is limited to specific tissues. Most patients experience muscle symptoms, such as weakness and cramps, although certain GSDs manifest as specific syndromes, such as hypoglycemic seizures or atomically.
I don't know much about it but when it comes to muscle enzymes, particular attention has to be paid to the kidneys.
is diabetes considered a glycogen storage disease?
i am a type 1 diabetic and filling out college scholarship information and when i got to the "disabilities" section diabetes is not an option but glycogen storage disease is so im wondering if diabetes is included in that? or should i just mark off medical disability?
i know what diabetes is. i just am confused as to why diabetes is not an opption when it seems like everything else under the sun is. i dont consider myself disabled but i dont consider lots of the options in this section disabled either. so idk?
No, I don't think so, glycogen storage disease should be something else, glycogen is a complex form of sugar than can be broken down into glucose when there is a need for it. If anything I think it would fall more likely to hypoglycemia, maybe there is an a (other) you could mark and name diabetes, if not it doesn't matter just make sure your friend now you are a diabetic in case of an emergency. (+ info
Any one with glycogen storage disease type ia?
my son and daughter have just wanted to know if theres anyone with the same thing as its rare
I do not have glycogen storage disease type ia but my best friend at school has it. So i know alot about it and help her take care of it. If you want her e-mail address i can give it to you so she can have a friend with the same disease. (+ info
question about glycogen storage disease type 1a?
my best friend has it and well she think shes fat shes about 145 pounds n is like 5 feet so she does have some chunk but with her disease if youve heard of it you know that most people with it have a lot of fat in the abdominal area soo i was just wondering if she does diet and excersise will she ever be thin
'my child has glycogen storage disease how will it affect her later on in life ?
my daughter is 2 and has type 1B of glycogen storage disease we were wondering how it will affect her when she is older . If there is anyone out there with the condition as it is so rare
Madisons Foundation offers information and support for parents of children with GDS. Check it out...
The Association for Glycogen Storage Disease also has quite a lot of information about your daughter's illness. I suggest you read this page.
http://www.agsdus.org/html/typeivongierke.htm (+ info
chron's disease type II and intestinal cancer?
hey peeps. lol. have been diagnosed with intestinal cancer as well as type II chrone's disease.
does any one have the same thing?
what are some good tasty recipes for food i can eat that will help me with either / both of these illnesses? points will go to what i think were the tastiest recipes.
the more you post, the better chance u have! lol
really appreciate the help people.
It is hard to cope with and often times I just suffer the consequences - because I love food -- and eat some of forbidden stuff---
Try eating as much of nutrient dense food as we cannot retain - digest most of it and it just goes in to the drain. I hate it when people look at me as if I am anorexic when I am not - it is a condition that there is no cure.
if you are good with meat, and cheese have bun less burgers all day long, alomond milk shakes etc
here is one
Perfect Gluten-Free Peanut Butter Cookies
1/2 cup gluten free, casein free margarine
1/2 cup brown sugar
1/2 cup white sugar
1/2 cup salted natural peanut butter
1/2 teaspoon baking soda
1 cup soy flour
1/4 cup tapioca flour
1/4 cup potato flour
Preheat the oven to 375 degrees F (190 degrees C).
In a medium bowl, cream together the margarine, brown sugar and white sugar until smooth. Mix in the egg and peanut butter. Combine the baking soda, soy flour, tapioca flour and potato flour; stir into the batter to form a dough. Roll teaspoonfuls of dough into balls and place them 2 inches apart onto ungreased baking sheets.
Bake for 8 to 10 minutes in the preheated oven. Allow cookies to cool on baking sheet for 5 minutes before removing to a wire rack to cool completely.
.. (+ info
Type II kidney disease, high cholesterol and borderline diabetes?
I am looking for a cook book for someone who has kidney issues, high cholesterol and borderline diabetes. Any suggestions? We have an appointment with a dietician but want to get started on a new diet right away.
I am sure your GP will advice you on the diet. To start With just try the natural ways given on this page http://pulyanithinks.blogspot.com/2008/01/my-isb-interview-experience-2008.html this might be your starting point (+ info
A question about glycogen storage disease?
do people with the disease have to test their blood sugar level a lot and is this disease counted as a form of diabetes?
Glycogen Storage Disease (GSD) occurs when there is an absence or deficiency of an enzyme needed to produce or break down glycogen in the body. GSD primarily affects the liver and/or muscles.
There are 9 different known versions of Glycogen Storage Disease.
From what I've read, Glycogen Storage Disease is NO counted as a form of diabetes mellitus.
The following website is one of the better ones for explanation that I've come across. (+ info
TATTOO IDEA FOR DAUGHTER WITH GLYCOGEN STORAGE DISEASE?
MY 5 YEAR OLD HAS GLYCOGEN STORAGE STORAGE DISEASE TYPE 1 A. I WANT TO GET A TATTOO FOR HER DISEASE, BUT I HAVE NO IDEA WHAT I CAN GET. SUGGESTIONS ANYONE?
I CURRENTLY ALREADY HAVE HER NAME "ANGELINA" WITH ANGEL WINGS AND A HALO. AND I ALSO HAVE HER INITIALS
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