FAQ - hodgkin disease
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Can anyone tell me if there is an actual Hodgkin's Disease Research Organization?

I'm looking to donate specifically to research in finding a cure for Hodgkin's Disease. I know there is the Leukemia & Lymphoma org and the Lymphoma Research org. Is there an actual charity specifically raising funds to find a cure for Hodgkin's Disease only?

Unfortunately I don't think there is a national one, but I know there are several independent studies and ongoing research projects. Check out this website, and see if it helps you. You may want to donate to your favorite university's Hodgkin's Research Center or something? Good luck! http://researchportfolio.cancer.gov/projectlist.jsp?result=true&strSearchID=265612  (+ info)

How is Chemotherapy Treatement Given for Hodgkin's Disease?

I'm most interested in knowing for Hodgkin's Disease Stage IB or IIB. Is it usually given via pill, IV, etc? And how often is it given? Is this done in a hospital, outpatient center, at home, or ???

What are the most common side effects that you've personally experienced, with this type of cancer and treatment?

For early stages, 2-4 rounds of chemo (ABVD) is usually followed by a few rounds of radiation. Where as more advanced stages can see 6-8 (and I've heard of up to 12) rounds of chemo, radiation depending on your oncololgist or bulky disease. I had Stage 4B NS Hodgkin's and saw no radiation.

Chemo is generally given by portacath (which I HIGHLY reccomend) picc line or IV. Ports are the easiest way to get chemo. They access a device that is surgically implanted in your chest, usually connected to the jugular or subclavian vein. The surgery is minor and done under sedation and local anesthesia. There is also a picc line, but that requires daily maintenance and IV's wear your veins down so much, that after a while they become very hard to access and very painful to do after one or two rounds of chemo.

I get my treatment every other week, so 2 rounds per cycle (month). I get it at a cancer treatment center, so it's done as outpatient. It generally takes 4-5 hours, depending on if my counts are ok (my potassium was low once and it took like 6 hours with a potassium drip, bleh.)

Side effects really do vary from person to person. In my personal experience, I deal with a lot of nausea the day of chemo and a little in the morning the day after. Usually, I'm back to my normal self the next day. I have phenegrin, compazine and zofran to deal with it. I'm also on Emend, which helps a little.

My hair loss was moderate, I shaved it to deal with it all falling out, but in retrospect, I didn't lose that much. The Bleomycin leaves some ugly brown streaks on my legs. Chemo brain is another. Uggghhhh...I can ask my fiance a question and totally forget five minutes later and I'll ask him AGAIN.  (+ info)

Why would children have a higher survival rate for Hodgkin's Disease?

Hey...I'm doing some Biology questions for homework and I'm not asking for anyone to do my homework for me...I actually love Bio homework, but It's not in my notes, handouts or textbook and I can't find it on the internet so...

If body knows why Children tend to have a higher sucess rate in dealing with Hodgkin's Lymphoma or can provide a link containg the information I would relly appreciate it.

pretty much what farrah said. faster cell turnover rate because they are still growing. usually they are not plagued by other problems at the same time, ex heart disease and diabetes. the body has only one fight to worry about.  (+ info)

What does hodgkin's disease do to your body?

I've been looking all over the web, and it only tells me about its symptoms and stuff, but i want to know what it does to your body.

  (+ info)

How and why did Thomas Hodgkin discover the Hodgkins Disease (also known as the Hodgkins Lymphoma)?

There must have been a reason for example a whole bunch of people were dying in similar ways so he tried to find out why and discovered the disease.
Please let me know ASAP.

Denise answered this pretty thoroughly.

This is from this site (http://www.whonamedit.com/doctor.cfm/1495.html):

1829 was the year of Hodgkin's early important contributions to pathology. In his capacity as conservator, Hodgkin published a catalogue of the preparations at Guy’s Hospital. In that year he wrote a long paper on the classification of unexpected intra-thoracic and intra-abdominal tumours and discussed how cancer spread. This article was gradually expanded to two volumes titled The morbid anatomy of serous and mucous membranes - a work of basic importance to modern pathology. The same year he described the aorta insufficiency in an article titled On the retroversion of the valves of the aorta in the London Medical Gazette. Sir Dominic John Corrigan (1802-1880), whose name is attached to the discovery of aortic insufficiency published his findings twenty years later, Corrigan’s pulse.

Hodgkin also discovered the biconcavity of the red corpuscles and the cross-stripes in muscle fibres, and he described the acute appendicitis with perforation and peritonitis.

Hodgkin described the disease that bears his name in 1832, in a paper titled On some morbid appearances of the absorbent glands and spleen, published in Medico-Chirurgical Transactions, the journal of the Medical and Chirurgical Society in London.

In 1865 another British physician, Samuel Wilks, described the same disease picture, independently of Hodgkin and with greater precision. As he later became acquainted with the work of Hodgkin, he recognized the latter’s priority and named the condition for Hodgkin, in an article in Guy's Hospital Reports titled Cases of enlargement of the lymphatic glands and spleen, (or, Hodgkin's disease) with remarks. Since then Hodgkin’s disease has become one of the best known of all medical eponyms

His original preparations of lymphoagranulomatosis maligna are still preserved at Guy’s Hospital. In histological reexaminations in 1926, 60 years after the death of Hodgkin, his diagnosis was confirmed in three of seven cases. His other cases were non-Hodgkin lymphomas, tuberculosis or other lymphatic diseases with similar characteristics.

And Hodkin's differenciates from other lymphomas by the presence of Reed-Sternberg cells, later discovered by Dorothy Reed and Carl Sternberg in 1898.  (+ info)

Hodgkin's disease, did it begin with the use of dangerous pesticides??

I've read that pesticides have a strong link to Hodgkin's disease and lymphoma.

U'r right, and also viral infection, dust exposure, other toxic agent  (+ info)

What are the signs to Hodgkin's Disease?

I need to know how to tell if you have Hodgkin's Disease or not. And also if Cancer is hereditary.

Cancer is sometimes hereditary. Studies have shown some links between cancer patients and relatives, however it doesn't mean that if a family member develops cancer, you will too. It just makes you more at risk by a small amount.
As for hodgkins disease, which is a form a cancer of the lymph nodes, the signs and symptoms are as follows :
There are many symptoms of Hodgkin's Disease. Each individual may not experience all symptoms. Some of the symptoms are: A painless swelling in the lymph nodes in the neck, underarm, or groin, unexplained recurrent fevers, night sweats, unexplained weight loss (not associated with eating disorders), and itchy skin.  (+ info)

After remission from Hodgkin's Disease, how long do I have to live?

I was diagnosed with Hodgkin's Disease at 17 years old. I finished chemotherapy. No radiation. Can I still expect to live till 80 years old if I'm as healthy as possible?

Yes, as long as your cancer stays in remission you can expect to live a full life.  (+ info)

I have Hodgkin disease.Is it possible to recover from that?How long time?What to do?

I found something in my neck,I had biopsy and the doctor said its suspicious that I have Hodgkin lymphoma.My blood test was negativ,the blood is clear.I'd like to get some information,because I'll have operation,they'll remove the lymphoma,and I'm desperately search for the way to heal up.Is it possible to have cancer when your blood doesn't shows any disorder?If the lymphoma is cancerous does it mean my body has cancer?Is it possible to cure this disease?I feel relly well,just a little bit tired,because I worked a lot in the past few years.Any answer is precious for me.thanks.32 year old "cooper"

I am sorry to hear about health scare. Your said that your doctor is suspicious, so try not to worry too much before you get the actual diagnosis. You may have something less serious. Don't do too much research before you know what you have; its confusing and scary. I had Hodgkins last lear. My doctor told me he was pretty sure I had lymphoma, so I tried researching it. I got all kinds of info, most of which didn't apply to me. I ended up giving myself an unnecessary scare.

To answer your other questions: Yes it is possible to recover! I am in full remission now! The good thing about hodgkins is that it is easier to put in remission than many other cancers and it tends to stay gone longer than many other cancers. Lots of people don't have it ever come back. When its gone for five years, it is not very likely to come back. Many people call themselves "cured" then.

My blood counts were normal at diagnosis too, many peoples are. My only symptoms were tiredness, which I thought was related to my hectic college schedule.

Lymphoma is a blood cancer, but the actual cancer is in your lymph nodes. Lymphnodes fight off "invaders" that are carried to them by your blood. If one lymphnode is infected, its very possible others are. I found one lump under my collar bone, but scans showed a couple egg sized tumors of the nodes deep in my chest and a small tumor on the other side of my neck, which was too small to be felt.
Chemotherapy was kill all of them, and I only needed the minimal amount, though I did have to follow with some radiation to help kill the larger ones.

There is a really great support forum for lymphoma. It helped me so much during my treatments; the people there were like my family. Its at http://forums.webmagic.com if you wanna check it out Click on Lymphoma support.

Take care, and please email me with any other questions. I'd love to hear from you. [email protected]  (+ info)

Can help me with 5 famous people with Hodgkin's disease ?

The question stated it all. I need names of the famouse ppl with Hodgkin's disease...It would be wonderful if you have the pictures..

And can u guys provide the person that died with Hodgkin's disease...

Thanks so much. I appreciate it

Sen. Arlen Specter, US Senator from PA (also Hodgkin’s Stage 4B)
Paul Allen, co-founder of Microsoft
Mario Lemieux, famous professional hockey player
Andres Galarraga, former professional baseball player
King Hussein of Jordan
Lauren Hart, daughter of former Flyers announcer Gene Hart and singer of National Anthem at Flyers games
Charles Lindbergh, first pilot to fly solo non-stop across the Atlantic Ocean
Gene Autry, Country singer and actor
Larry Lucchino, President of San Diego Padres
Roger Maris, Hall of Fame baseball player
Gabriel Garcia Marquez, Colombian Nobel Prize-winning author
Jacqueline Kennedy Onassis, former First Lady
Joseph Coors, former CEO of Coors Brewing Co.
Joey Ramone, musician and punk rock star
Mr. T (Laurence Tureaud), television actor of The A-Team
Gene Wilder, comedian and actor (Willy Wonka)
Some are Hodgkins some are non hodgkins, you can find the pictures.  (+ info)

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