Anyone else dealing with Lymphomatoid Papulosis ?
I have been battling this CTCL along with other cancer for over half my life and can't seem to get any improvement in my skin condition. I have tried total skin electron beam radiation and Targretin oral and topical all to know avail. Also underwent CHOP chemo for Non Hodgkin's Lymphoma which didn't improve my skin. It just seems like such a lonely disease .
You might already know this but there is a very active LP discussion group in Yahoo groups. The group currently has 571 members.
good luck (+ info
will serrapetase cure lymphomatoid papulosis?
What is lymphomatoid granulomatosis of the lung?
This disease is unusual, and the underlying cause has been determined only recently, so it is important to get current data on it. The name makes it sound like it is benign, but in most cases, the lesion represents a B-cell type lymphoma (cancer of the lymphocytes). The usual patient with this disease presents with multiple necrotic nodules in the lungs. Biopsy shows a variable number of neoplastic tumor cells (B-lymphocytes) with surrounding reactive inflammation.
Lymphomatoid granulomatosis is a disease which was named around forty years ago for its microscopic appearance (before it was known whether it was malignant). It is classified in the most current system by the World Health Organization into three grades (I through III). The grade is determined by the number of atypical cells and the amount of necrosis in the tumor. The grade I lesions show only little atypia and no necrosis. The higher grade lesions (II and III) show more necrosis and atypia. The tumor is due to an Epstein-Barr Virus driven B-lymphocyte. The higher grade tumors (grade II and III) are usually treated as lymphomas with chemotherapy while the lower grade tumors (grade I and some II) are often treated with interferon.
Diagnosis is by tissue biopsy. The diagnosis is unusual enough that I would want a specialist to look at the tissue. It would be important to have a B-cell stain (such as CD20) and a stain for Epstein-Barr Virus performed. (+ info
HPV, Bowenoid Papulosis, Gardasil?
Two years ago, I was diagnosed with cervical dysplasia, which was treated with a LEEP procedure. A few months later, I developed small spots on my vagina which was determined by a dermatologist to be Bowenoid Papulosis, a form of HPV. I was prescribed a topical cream to treat it, which did not help. I was also advised to get the Gardasil shot, which I did. Less than two weeks after I received my third and final Gardasil shot, the papules went away and a year and half later, they are still absent. I have had no signs of STDs, pain or discharge and had an STD check a few months ago that was negative. I have a fiance who is aware of my cervical dysplasia, but not of the papules or HPV and I would like to tell him. We have always had protected sex but are considering children in the future. I am wondering what are the chances of me passing anything to him and also wondering if the Gardasil shot is what cleared up the papules. Has anyone had experience with this?
I have Mucha Habermann disease.?
I am a 50 yr.old woman who has Mucha Habermann disease. I have been put on 3 different antibiotics but I had adverse reations to them. The strange thing is that when I was 25 I was diagnosed with a rare form of skin cancer called Lymphomatiod Papulosis. I was treated with Methotrexate and it worked. Now the strange thing is you usually get Mucha Habermann disease before you get Lyp. That'a not what happened to me. It was the other way around. I don't know if I should just let it be and see what happens or continue trying different medications. What should I do?
I think you need to ask here
or a specialist site
You cant trust an answer like this from here. (+ info
Dermatologist: Laser on face to have spots removed?
I'm visiting my dermatologist for the first time in a few days. I am going because I have small raised brown spots I would like removed (about 5-10 small ones near my eyes and cheeks). I think I might have what they call Dermatosis papulosis nigra, but they are very small. I read these can be removed with laser. My questions:
1. Do dermatologists usually remove it the same day as your appointment?
2. After laser treatments on the same day, does your skin turn red? I have a party to go to later that night and don't want my face to look red.
Any advice would help- I'd like to know in case I have to reschedule my appointment. Thanks!
smashed garbanzos.. set em on ur spots for 20min every other day will get rid of em........ (+ info
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