FAQ - mastocytosis, cutaneous
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How do I find information on mastocytosis in the UK?

Anyone know if there is a website with helpful information on Mastocytosis in the UK?

There is currently a worldwide group, largest collection of masto patients out there, through the Mastocytosis Society - www.tmsforacure.org

If the masto patient is a child, try www.mastokids.org  (+ info)

Can an injury to the posterior femoral cutaneous nerve due to surgery heal?

I recently had piriformis and sciatic nerve surgery. My surgeon seems to have either injured or severed the posterior femoral cutaneous nerve during the procedure. The back of my thigh has been numb with a burning feeling inside the leg since the surgery over two months ago. What are the chances that this will heal?

It's if severed I don't believe so,,,but then again,,they have been doing hand transplants  (+ info)

Is there a non-over the counter drug to cure cutaneous candidiasis?

I have a stubborn case of cutaneous candidiasis (yeast infection), I have been to the dermatologist for it many times have have tried many things. Verdeso was the only thing that worked but it came back after my sample was done. Then he put me on something else that doesn't work at all. I was wondering if there is anything that you could buy non over the counter that anyone has found to treat this. Thank you.
DTD, you are correct... it is a skin infection.

Not yet, there is a couple working their way through the red tape though.  (+ info)

Can I donate bone marrow with a history of cutaneous lymphoma?

I had cutaneous T-cell lymphoma earlier this year and am now cancer-free. It was confined to a tumor on my arm with no lymph node or organ involvement. I was wondering if I could still be a bone marrow donor?

I don't think you can. They're pretty picky when it comes to a history of cancer, especially a blood cancer like Lymphoma. Here is the bit from the National Registry:


I'd love to donate blood or marrow, but I never can and that really does upset me. I'd love to help someone else, considering a stranger helped save me.  (+ info)

How to know your child has Mastocytosis?

I have twins and one of the are very sick and have symptom of this disease and I am scared about what may happen to him if he doesnt get the correct help for it and he stays sick longer.
What do I do? I have gotten to the point that I am not sleeping bc he wakes up 2 times a night and he is always hungery and he is not going to the bathroom like normal and he is always sick with running a fever and I just cant get him better.
I need help please

In some rare cases chemicals released by mast cells cause changes in the immune system leading to typical allergy symptoms such as:

Abdominal cramping
Anaphylaxis (shock from allergic or immune causes)
When too many mast cells exist in a person's body, the additional chemicals can cause:

Skin lesions
Abdominal discomfort
Episodes of very low blood pressure (including shock) and faintness
Bone or muscle pain
Nausea and vomiting  (+ info)

Itching remedies for cutaneous lupus?

I've got photosensitive cutaneous lupus and I break out in itchy hives and rashes all the time, even though I take my plaquenil and steroids and put on sunscreen. Does anyone know of any good products I can get from the drugstore or home remedies I can try to curb the itching? It's really torturous!

yes. there is a store in ga cold ulta. you can go to ulta.com and see if there is one near you. look for neostrata prducts.
go to this link
scroll down and look at the product called pds extra strenght cream. i used to work in the dermatology field. my dad has really bad dry skin from diabetes. this stuff works. it is best to put on at night. doesnt smell the greatest but works. put any creams on when getting out of the shower within a few min, your body will absorb more moisture. the hotter the shower the more it will dry out your skin. good luck. p.s. neostrata is the founder of alpha hydroxys so it is a good cream. anyone that wants to market their product as age defying has to buy tha patent from them...:)  (+ info)

Does anyone know about cutaneous pseudolymphoma and tattoos?

I have a bump that has shown up on my finger since I got a tattoo on my arm. Does anyone know if a cutaneous pseudolymphoma that shows up sometimes when you get a tattoo always occur at the site of the tattoo? Or can it be in another spot?

From what I've read and know of cutaneous pseudolymphoma it would seem that your eruption would most likely occur at the tattoo site. The lump on your finger may just be coincidental. Of course, I am not a doctor, nor do I claim to be but I know a lot about this condition and my best guess is that the lump didn't happen because of the tattoo but just appeared around the same time. Hope this helps, maybe you should call your doctor just to be sure. Good Luck.  (+ info)

How can you get rid of a cutaneous tag ?

without a Dr. or can you ?

A skin tag should only be removed by a doctor, as skin tags can tend to bleed more than a regular type wound. Depending on the site, your regular doctor might do it, or you could be referred to a dermatologist. In either case, the skin tag will either be frozen or the area will be numbed up and it will be burned or cut off.  (+ info)

anyone out there have a baby with mastocytosis?

I have a son, he has mastocystosis, I haven't been able to connect with other parents that have childern with the same condition, does anyone know of any support groups? In the southern california area?

I had mastocystosis and found that there are some links for help, support and information on [email protected] I'm in SoCal too, but do not know of any local support groups, but will put out some feelers to see whether anyone else knows of any. For the time being, join the urticaria group, make a posting with your question and do a query on infant mastocytosis. I feel for you, I cannot even imagine what it would be like to be a baby with masto, it was hard enough being an adult taking 8 ampules of gastrocrom a day! Good luck and God bless.

There are support groups listed on the Mastocytosis Society webpage: http://tmsforacure.org/  (+ info)

What is the difference between dermatomes & cutaneous innervation?

Dermatomes refer to the level at which the main nerve roots branch off the spinal cord. Damage to the sensory nerve root at L3, for example, causes paresthesia in the L3 dermatome.

Cutaneous innervation is simply the peripheral nerve distribution and sensory organs in the skin.  (+ info)

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