FAQ - neuroectodermal tumors
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?Ever hear of Melanotic Neuroectodermal Tumors Of Infancy?

My son was born with these rare tumors, Melanotic Neuroectodermal Tumors of Infancy. He is seven now and I have never met or heard of any one else with this condition. All I can find is case studies and medical info. I know all the info about the tumors, but we want to know of some one else who has dealt with or is dealing with this.

Have you talked to NORD? They will know, or know who to ask.

http://www.rarediseases.org/  (+ info)

Has anyone ever encountered "Melanotic Neuroectodermal Tumor of Infancy" or know of someone who has?

There are very few cases of this cancer even being reported or documented since 1918. Has anyone ever encountered this type of cancer personally or know of someone who has? My son is 21-months-old and is currently undergoing chemo for the disease and reacting well so far to the treatment. Just wondered if there are others who have had experience with it or not. From the stats that we have seen so far from research, not many survive.

Talk to these people if you have not already:
http://www.rarediseases.org in the US

http://www.cancerbackup.org.uk in the uk  (+ info)

What causes tumors in rats and whats the best way to prevent them from occurring?

A few years ago when I was a freshmen in High School I had a siamese rat which got 2 tumors under her front legs and a large one on the side of her face. Now I'm in college and just yesterday I brought a female fancy rat (named Macie) which is about 3 months old.

What could I do to prevent Macie from getting tumors?

What causes tumors in rats?

Congratulations on your new rat.

Most tumors that rats get (both female and male) are mammary tumors, even though they aren't all actually located on the chest. Many people very effectively prevent their development in females rats by spaying the rat. That is one option if you are really concerned about tumors.

Other people (including myself) do not choose to spay because even though there is a risk that our rats will get mammary tumors, most mammary tumors are benign and a good, reasonable vet will remove them for a relatively small cost. This is a less serious operation than a spay and can extend a rat's life up to a year in many cases!

Many people don't realize that it is cheap and easy and relatively safe to take most tumors off of rats (as long as you have good rat friendly and experienced vet), so this is something you should keep in mind. There is no reason to live in fear of tumors.

The other really important thing to keep in mind is diet and exercise. This article is a very good introduction to rat dietary needs and has a list of foods that cause and prevent cancer in rats: http://www.ratfanclub.org/diet.html

Exerisise may lower the risk of cancer and other diseases.

Believe it or not things have changed rapidly in the rat world during the last ten years and cancer is no longer the number one threat to pet rats' health. Mycoplasmosis, a bacterial infection which all rats have and have had for decades, now kills more rats because it leaves them vulnerable to infections by secondary bacteria which humans have made stronger by over using antibiotics!

To learn about this and anything else you want to know about your rat's health I suggest this website: http://ratguide.com/health/ It is the rat keeper's bible.

Finally, I would like to encourage you to get a same sex companion for your single rat as rats lead much heathier lives and are much friendlier pets if they can live in pairs. I suggest you read this article: http://www.nfrs.org/company.html  (+ info)

What treatment is out there for small brain tumors that come from breast cancer?

My daughter has tumors now in her brain from the breast cancer. The breast cancer tumors stopped growing and shrank slightly from treatment with ixempra and xeloda. What treatment works best for the brain tumors?

Here are some links to information and resources. You have to trust the oncologist and neurologist and pray for her...she could consider joining a clinical trial..

Brain Tumor Information

http://www.clinicaltrials.gov/ct/search?term=brain+tumors&submit=Search (brain tumor clinical trials…hit map tab for local trials and don’t forget to turn pages)
http://www.braintumor.org/patient_info/links/clinical_trials/ (clinical trials)
http://www.cancer.gov/clinicaltrials/results/brain (results of brain cancer clinical trials)
http://www.braintumor.org/patient_info/ask_a_professional/ (click on “email a professional” to ask a question about brain tumors)
http://www.braintumor.org/patient_info/links/physician_listings/ (neurologist link listings..to find a physician)
http://www.braintumor.org/patient_info/surviving/ (diagnosis and treatment of brain tumors)
http://www.braintumor.org/patient_info/surviving/brain_anatomy/index2.html (National Brain Tumor Foundation…brain anatomy…run the hand over the brain to view areas and a function box will appear underneath the illustration)
http://www.braintumor.org/patient_info/surviving/treatment/index.html (common brain tumor treatments and side effects)
http://www.braintumor.org/patient_info/surviving/treatment_center_database/index.html (treatment center database)
http://www.braintumor.org/patient_info/surviving/survivor_stories/index.html (survivor stories)
http://www.braintumor.org/patient_info/surviving/faq/index.html (frequently asked questions)
http://www.braintumor.org/patient_info/links/brain_tumor_orgs/ (link list of brain tumor organizations)
http://www.braintumor.org/patient_info/links/alternative_therapy/ (alternative therapy links)
http://www.braintumor.org/patient_info/links/treatment_resources/ (treatment resources links)
http://www.braintumor.org/patient_info/links/other_sites/ (related sites link list)
http://www.braintumor.org/patient_info/connecting_and_coping/support_groups/find.asp (brain tumor support groups)
http://www.braintumor.org/patient_info/connecting_and_coping/support_groups/online.html (brain tumor online support groups)
http://www.braintumor.org/patient_info/connecting_and_coping/support_groups/pediatric.html (pediatric support groups…listed for other readers who might need…)
http://www.braintumor.org/patient_info/connecting_and_coping/message_boards/ (brain tumor message boards)
http://www.braintumor.org/patient_info/connecting_and_coping/caregivers_corner/ (caregivers corner)
http://www.braintumor.org/patient_info/links/cancer_orgs/ (link list of cancer organizations)
http://www.braintumor.org/patient_info/links/financial_assistance/ (financial assistance link list)

Disability help
http://www.new-horizons.org/ (organization to help the disabled..resource)
http://www.new-horizons.org/faqcat.html (frequently asked questions about disability

Medicine help
http://www.pparx.org (partnership for prescription alliance…help with free or low cost medicines)
http://www.copays.org/ (Patient Advocate Organization…copay assistance for malignant brain tumors)

Nutrition and Support for cancer patients
http://www.cancer.org/docroot/MBC/MBC_6.asp? (nutrition for cancer patients)
http://www.cancer.org/docroot/MIT/mit_0.asp (supporting cancer patients)

3 books on disease symptoms and treatments

you could also get these books on ebay or amazon or a half price book store. (last two are very similar)..
1.Oxford Handbook of Clinical Medicine
2.Handbook of Diseases (Lippencott)
3.Professional Guide to Diseases (Springhouse)  (+ info)

What kind of cancer tumors are present in the liver, lymph, spinal and not in the lungs or blood?

My Mother in law approx 70 yrs old has tumors pressing on her stomach and pancreas, she has spots on the spine, liver, and her lymph system is involved too. Dr's cant figure out why its not in her blood stream or lungs, any idea?


Here is a site with some good information on Cancer. It will definitely help you. Have a look.  (+ info)

What are the symptoms and causes of brain tumors and are there treatments?

I was wondering if someone could tell me what the symptoms and causes of brain tumors are and if there are any treatments. Someone had told me that they have a brain tumor that is terminal and it cannot be treated because it had gone unnoticed for about 5 years and since it has grown with their brain, it cannot be removed by a surgery and it cannot be treated. Is it really possible that there is no treatment at all?

A tumor is a pretty general thing. "A tumor...is the name for a swelling or lesion formed by an abnormal growth of cells"[wiki:tumor]. Such growths are especially serious in the brain, because they can do damage not only through their biological properties (how it will spread) but also through their physical properties (the force the exert on the brain). Benign tumors no longer spread, malign tumors are cancerous.

Treatment for brain tumors includes surgical options (remove it) as well as radiation and chemotherapy. Surgery is not always possible, as the tumor may be buried to close to crucial parts of the brain. The more a tumor has spread the lower the chances of successful surgical removal.

With all forms of cancer, early detection provides by far the most positive outcome.  (+ info)

Is there a correlation between brain tumors and antidepressants?

I've always been against antidepressants use for long periods of time. I don't have a problem with people using them for some time. But when it becomes something that you have to keep taking for the rest of your life, that's when I ask: what are the long term effects of antidepressants? Is there a correlation between brain tumors and antidepressants?

I seek intelligent answers only.

Thank you.

I have never heard of brain tumours as a result of long term anti-depressant use. The newer anti-depressants (SSRI's) Help the person keep their own serotonin. If someone needs to take them forever then so be it.  (+ info)

How many people a year are diagnosed with primary spinal cord tumors?

I have to do research on it and on one site it tells me 400, another - 1,000, and another says 10,000 but this includes primary and metastatic tumors.

Every year, about 100,000 people in the United States and 10,000 people in Canada will be diagnosed with a metastatic or primary brain tumor. http://www.rfsafe.com/brain_tumors.htm

About 10,000 Americans develop primary or metastatic spinal cord tumors every year. Spinal cord tumors are most common in young and middle-aged adults. http://www.ninds.nih.gov/health_and_medical/pubs/  (+ info)

How do you deal with Loosing the love of your life to Brain tumors?

Ive known my soulmate since we were young. We just recently found eachother and fell madly in love with eachother. He just found out he has 2 inoperable brain tumors. How do you deal with that. I lost my dad to those. I feel like im loosing him as well.

I'm sorry to hear about your situation. The best thing to do is to live each day like its the last. And if the time comes for him sooner as opposed to later. Try to remember all the good memories that you had. Remembering the good, can sometimes block out the bad, and help you move forward on without all the memories of loosing him.  (+ info)

Why are tumors still growing after masectomy?

My aunt had a masectomy (breast removed) but she again saw 2 tumors below her armpit this year (stage II breast cancer). She's undergoing radiation and taking anti-cancer medicines. She said that one of the lumps on her right armpit has gone smaller. Is that a good thing? And why do they grow back? When will they stop growing?

Unfortunately breast cancer can recur at any time, even years after initial diagnosis and treatment - there is no 'all clear' for breast cancer.

Although they can happen at any time, recurrences are most likely in the two years following treatment, and statistically they are less likely to happen after 5 years. Although I know I won't be out of the woods, I shall celebrate just a bit when I reach five years since treatment later this year.

Yes, the tumour shrinking is a good thing.  (+ info)

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