FAQ - neurofibromatosis 2
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i have type 2 neurofibromatosis. and i think i am pregnant. and i need to know if abortion is safe for me?


i need help to know if i should get an abortion or not, because if i go through with pregnancy it could kill me, but if i do go through with it would it be safe for me? what would be my best course of action. plz answer asap
i need help to know if i should get an abortion or not, because if i go through with pregnancy it could kill me, but if i do go through with it would it be safe for me? what would be my best course of action. plz answer asap
i am very early still. no more than 2 months i know for that fact but whats the best for me
i have an iud in but i still got pregnant with it in, i've had it since jan 08...
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It would be best to discuss this with your doctor, parents and father of the child.

I';ve never heard of anyone dying from having a baby that had nf. I have heard that you can get more tumors, but nothing about death. And that there is a 50% chance of passing the nf onto you child.

I'm pro life, but this is really up to you and something you shouldn't take lightly. Best to talk about it with your doctor and your family.

I have nf type one.  (+ info)

Anyone have experience with lumps on the head, not NF 1 or 2 and not dermoids?


My son has a lump on the back of his head and on his forearm. The doctors have ruled out neurofibromatosis and dermoids, and the CAT, XRAY, and ultrasound have come back inconclusive. They don't think that it is cancerous, Any ideas???
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systs  (+ info)

What is the incubation period of Neurofibromatosis Type 1?


This is for a school project, and i need info on neurofibromatosis type 1! Please post sites and info on the history of it and the incubation period. Also i need the transmission, diagnosis, treatment, and how to avoid it! Thanks. Email me info too.
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its a genetically inherited disease so it does not have any incubation period. There is no treatment, and you can't avoid it. You can transmit it either - you inherit it.  (+ info)

How many of you have heard of Neurofibromatosis?


Neurofibromatosis (NF) is a neurological disorder that although fairly common, is hardly heard of. What it does is cause tumors to grow along the nerves, randomly, in the body or on the skin. It can also cause a lot of other things, ranging from scoliosis and learning disabilities to cancer. It is a genetic disorder, progressive, and has no cure.

As a mom of two kids with NF, I have been working towards bringing awareness to my community. I am just curious as to how many people reading this might actually have heard of NF, or possibly either have NF or know someone who does.
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i have NF
did you know your kids have a 50/50 chance of passing it on.. to their kids..
?  (+ info)

I have Neurofibromatosis dose any one have it?


I have Neurofibromatosis dose any one have it?
hi i am 18 and i have Neurofibromatosis. i think i have tipe 1 becuse i dont have it bad all i have is a lernig deasability, like 20 berth marks, really really smal bumps in random playses an i have had 2 tumers removd. i was wonderin if any one has Neurofibromatosis? and if so how bad or any good madicashon that helps?
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I have it, and I have type one. I have had a few tumors removed. One on my right arm, when I was like 16 or 17. And then this passed Nov. I had a few removed from my spinal cord, two were crushing against it and if they weren't removed and might have woken up one day and not able to move.

I have a large mass on my right leg, that is too big too remove and it pretty painful, pain medication helps a little. I can't stand for long periods of time and sometimes one of my legs will give out, but the good thing is I haven't fallen yet. I have a good amount of those birthmark things, mostly on my legs.

So I wouldn't say I have a mild case, my doc is pretty concerned about my leg. And want to get me on test medication once it become available.

I learned I had NF type one when I was 15, I'll be 24 in a couple of weeks. I was probably fine the first couple of years after finding out and after that, it kind of all went down hill from there. I can't even enjoy swimming in our swimming pool the way I used to.
Hope that your NF, doesn't get any worse.  (+ info)

Neurofibromatosis lumps and cancerous Lumps how do you tell the difference?


I have Neurofibromatosis and have some N.f lumps in various places im just wondering if anyone who suffers from this Neurofibromatosis can advise me on how to tell the difference in touch or the way they look to determin if they are indeed cancerous or N.f
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The incidence of vonRecklinghausen's disease becoming neurofibrosarcomas is very rare. In reviewing the literature for an article I wrote, I found the possibility of malignant transformation far down on the possible serious side effects. A tumor suddenly growing could be biopsied.  (+ info)

Is there anyone else out there with Neurofibromatosis?


If so, have you ever tried holistic medicine or alternative medicine? Do you think accupuncture or accupressure will eliminate the bumps associated with Neurofibromatosis?
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I have NF1, and have a number of neurofibromas at various places of my body. I have had several cut out over the years but as you know, new ones will form from time to time. Since the condition is genetic, I do not think there is an alternative medicine that can help... but I have researched high and low. I share your stress over wishing there was a way to make the bumps go away. Depending on if the bump is more on top of the skin or below, some have found success with laser treatment.. but regardless of how the tumor is removed there is usually a scar. For me, every few years will have the doctor remove the largest or most visible ones. I pray that you can still find peace in that you are of great value and worth as a person despite the imperfections. I wish you the very best.  (+ info)

What is the difference between neurofibromatosis and proteus syndrome?


Are they the same thing?
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Neurofibromatosis is a genetic disorder that can cause tumors to form anywhere on the nervous system at any time, while Proteus Syndrome is a condition which causes abnormal growth of the skin and bones- having nothing to do with the nervous system (as far as I know.) PS may cause tumors also, but most of them are benign.  (+ info)

What are 2 public health concerns that have a bearing on nutritonal status?


I have to a do a nutrition project for nursing school and I have to write something on the following question but I can't figure out what the 2 public health concerns may be. Any help?

What are 2 public health concerns that have a bearing on nutritonal status?
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Salmonella tomatoes...

and other bad fruits and veggies...  (+ info)

How much formula can 2 week old infants drink at a time?


My baby girl (Grace) is 2 weeks old today. She started out at 2 ounces every 2 to 3 hours. I upped her formula to 2 1/2 ounces but an hour later she is still hungry and usually drinks another ounce. she eats 2 1/2 ounces every 2 hours and sometimes she is still hungry and will drink another ounce an hour later. i was just wondering if this is happening to other moms with little babies and how much you feed your baby at a time and how often.
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If she is finishing the two ounces then make four and see how much she drinks. 2 1/2 may not be enough for her. Do not listen to what people say about her overloading her digestive system because babies will not eat more than they need. They know when they are full and then will stop.  (+ info)

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