FAQ - nystagmus, pathologic
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What is non-congenital nystagmus caused from?


I'm 24 and was recently diagnosed with it. It had never been diagnosed in any previous eye exams that I had. Most of the information I found says it might be neurological, but that's all I can really find. Any additional info. would be greatly appreciated. Thanks!
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yes neurological. brain damage or lack of development  (+ info)

has anyone ever had accupuncture for nystagmus?


I am 33 years old and have always had nystagmus. Has anyone else had this problem and if so have you tried accupuncture to slow it
I have had the eye muscle surgery which helped some. I researched the accupuncture myself and thought i would give it a chance. I am interested in the prism glasses. Can you tell that the lens have them installed or do they look like regular specs?
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have you visited neurologist first? did he recommend accupuncture.nystagmus may be due to many reasons.  (+ info)

When someone has nystagmus, are they aware of their eye movements or is it only noticeable to others?


I don't believe they are aware of it since nystagmus is usually there since birth and the person will just adapt to the eye movements. Also their vision will never be 20/20 because their brain never got a steady image so it doesnt know what "clear" really is.   (+ info)

Can someone with Natural Congenital Nystagmus get Lasik Surgery?


Was born with it. Got it from my dad. Eyes move from left to right really fast. Got so much hell for it when I was a kid. Thank God my kids don't have it. Also have a REALLY high astigmatism. Can it be fixed or helped?
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You wouldn't be able to have lasik surgery, but you could probably have limbal relaxation surgery to improve the astigmatism. This is where they make cuts at the edge of your cornea (the limbus) to adjust it back to a rounder shape - this generally works quite well and it's pretty straightforward. Unfortunately there's nothing you can do about the nystagmus though.
See an ophthalmologist for an opinion - I think they'll be able to help.  (+ info)

What is nystagmus and what causes the eyes to move rapidly?


Nystagmus: Rapid rhythmic repetitious involuntary (unwilled) eye movements. Nystagmus can be horizontal, vertical or rotary.

The term Nystagmus is derived from the Greek word, “nystagmus”, which was used to describe the wobbly head movements of a sleepy or inebriated individual.

There are various methods of classifying nystagmus. Traditionally nystagmus has been divided into two groups.

Sensory Nystagmus (Congenital)

This type is related to vision loss & usually begins early in life. Studies suggest 1 in every 1000 children have nystagmus. In 80-90% of cases, it is a side effect of vision loss from eye diseases such as albinism, aniridia, optic nerve hypoplasia, achromatopsia congenital cataracts, coloboma or retinopathy of prematurity. This type of nystagmus is usually observed around the sixth to eighth week of life and is rarely seen before then. In about 10-20% of cases, it presents with mild vision loss not associated with other diagnosed ocular diseases. The discovery of nystagmus in a child is reason for an immediate examination!
Most cases of early onset nystagmus are associated with ocular disease many of which are inherited conditions. Genetic counseling can help the patient and family understand the odds of passing the condition to their children. Not all cases of early onset nystagmus are hereditary.

Motor or Acquired Nystagmus

This type is related to the control of muscle function & is associated with neurological disorders occurring later in life.
Nystagmus can be acquired later in life due to neurological dysfunction such as a head injury, multiple sclerosis or brain tumors. Unlike nystagmus acquired from early in life, patients with late onset nystagmus usually notice movement in their vision related to the movement of their eyes. This is called oscillopsia. Oscillopsia causes a person to have vertigo or dizziness related to the new movement they experience in their vision.

Some of the diseases which present nystagmus as a pathological sign are:

Benign Paroxysmal Positional Vertigo
Head trauma
Stroke (the most common cause in older people)
Ménière's disease and other balance disorders
Multiple sclerosis
Brain tumors
Wernicke-Korsakoff syndrome
Encephalopathy
Lateral medullary syndrome
Aniridia
Optic nerve hypoplasia
Albinism
Noonan syndrome
Pelizaeus-Merzbacher disease
Superior canal dehiscence syndrome
Tullio phenomenon
Horner's Syndrome

Late onset nystagmus is more likely to be directional. The eye will move slowly in one direction, then quickly move back. The nystagmus may change as the patient looks in different directions. The unexplained onset of nystagmus in an adult may indicate a serious neurological disorder and an immediate examination is indicated!


In general, Nystagmus patients often experience fluctuations in their vision. A change in the speed of the nystagmus leading to a decrease in vision can be related to stress, the patient’s emotional state, fatigue, the direction of view or when one eye is covered. Understanding these issues allows the patient and teachers to create a better environment

Summary
Nystagmus, an involuntary shaking or jerking of the eyes is a very complex ocular condition. It can occur early in life secondary to various ocular diseases or can be acquired later in life in patients who have neurological disorders. Patients with nystagmus often have an abnormal head position called a null position in which their vision is improved. Low vision specialists or other nystagmus specialists may be able to provide special care, eyewear and contact lenses to help patients with nystagmus.

Here's some helpful links:

http://www.nystagmus.org/

http://www.lowvision.org/

Hope this info helps answer your questions.  (+ info)

Is there any parent out there with a child who has Nystagmus?


I have a 11 month old son with Nystagmus. He has had it since birth but is hereditary in my family. I was just wondering what have you done to help your child with it. It's because I would like some opions on it. My son goes to an pediatrician ophthamoligist who specializes in this kind of eye problem. He's said there is a surgery to corect the vision and maybe slow down the eye movement, but he can't have it till he's 4 or 5 yrs. old. I just want to know what have you done to help your child with this so I can look foward to help my son through the hard times in school. Thankyou so much
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Bless your heart! I am not familar with the condition, but any time our children have any sort of problem we hurt for them and worry about them. You sound like a concerned parent and seeing a qualified Dr is a good thing. I am sure you will make decisions that are in the best interest of your child. Good luck  (+ info)

astigmatism, nystagmus and +6.5 lenses, what can i do to improve my vision?


I have been told i have 3 problems with my eyes which rule out laser eye surgery, my astigmatism, i have a nystagmus and my prescription is high at +6.5. On eye tests i am told i should be able to drive but in reality i can not read a number plate at the required distance.

Is there anything i can do/have done to improve my vision so i can drive?
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Keep wearing your corrective lenses (glasses or contacts) and ask your ophthalmologist or DMV about the possibility of getting a restricted license. (sometimes it requires getting an exam signed by an ophthalmologist or having an ophthalmologist sign a particular form) I think it varies based on the state you live in but some states allow for driving during the day time and in places around town. Good luck!  (+ info)

My 7 month old son was recently diagnosed with Nystagmus, should we try and claim some SSI benefits?


He has no other illness that we know of, but we are getting another examination in early March from a well known specialist, so we should know more then. Several people have suggested that we try to collect some benefits because we know that he will require long term vision therapy. If anyone has any experience with this please let me know - this is new territory for us.
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If you NEED the money to care for him and take care of his medical problems, then by all means do it. But don't do it just for an extra paycheck - it is paid for by taxes, after all.  (+ info)

nystagmus can it affect learning to talk?


I have a 22mth old with Nystagmus, I'm wondering if Nystagmus can affect their speech? as he is not talking yet, only mum and bub?
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Nystagmus is a sign of poor vision which also needs to be evaluated by a pediatric Ophthalmologist. It's important the child be seen as soon as possible.

If the vision is found to be poor it might mean the child can't see your mouth move when you talk. Improving his vision might help him learn to talk quicker.  (+ info)

Is there a treatment for nystagmus?


I've been diagnosed w/nystagmus & c a neuroopthamologist but in my opinion I'm not getting any results. Maybe I'm seeing the wrong doctors, I go to VA hospitals. I take muscle relaxants & have days they don't work. Had numerous tests, catscans, ear, mri, vision. I come from NYC don't have medical insurance except the VA can anyone give this army vet advice, really would be appreciated.
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In a word, no. Once you have nystagmus, you will always have it. There's usually a point in your vision where the movements either slow down or stop, which is called the "null point". I have downbeat nystagmus (drift up and snap down quickly) and my null spot is when I look up. If you have horizontal (side to side) movements, then try keeping your face straight and look to the side. If you can find and use your null point to slow the bouncing it will make life a little easier for you.
Nystagmus is always a neurological problem. If you have a recent onset, then there is probably an underlying cause. I went to the opthamologist expecting to have simple strabismis(eye muscle) surgery (to correct misaligned eyes) and came out with an order for an MRI. What a shocker! You didn't say if you have any other symptoms, but you might want to ask your doc about possibly having Arnold Chiari Malformation. Surprisingly, there aren't very many medical professionals that know what it is. I'm not trying to scare you, but rather to educate you. You have ACM when your brain slumps down into your spinal canal, putting pressure on your spinal cord, which constricts spinal fluid flow and causes all kinds of seemingly unrelated symptoms. Mine included nystagmus, imbalance, gait disturbance (can't walk a straight line heel-toe), tinnitus, loss of smell, fatigue, and severe headaches. I hope to God you don't have this, but if you do you'll need to find a good neurosurgeon to perform decompression surgery. I wish you the best of luck.  (+ info)

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