FAQ - papilledema
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can a person with bilateral papilledema okay to ride a plane?

Last week, my opthalmologist doctor told me that i have bilateral papilledema (swelling of the optic nerve) and he requested me to undergo MRI. Results of my MRI are negative. I am going to SanFo this coming weekend, i want to know if a person with papilledema can ride a plane?

there is no contraindiction or danger from riding a plane ,its ok  (+ info)

Can a general practitioner observe papilledema?

Due to persistent dizziness for almost four months, I want to ask my general practitioner if I have any observable signs of a brain tumor, including papilledema. Can papilledema be observed in a regular doctor's office?

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I was recently diagnosed with having papilledema and Sudo tumor. Has anyone else heard of these?

Now, whenever i get a headache, i am afraid that i will have to go back to the hospital and have even more tests done on me. My friends do not understand because the never have heard of it or have been really sick. How can i not be afraid anymore?

Papilledema (or papilloedema) is optic disc swelling that is caused by increased intracranial pressure. The swelling is usually bilateral and can occur over a period of hours to weeks. Papilledema occurs in approximately 50% of those with a brain tumor.

As the optic nerve sheath is continuous with the subarachnoid space of the brain (and is regarded as an extension of the central nervous system), increased pressure is transmitted through to the optic nerve. The brain itself is relatively spared from pathological consequences of high pressure. However, the anterior end of the optic nerve stops abruptly at the eye. Hence the pressure is asymmetrical and this causes a pinching and protrusion of the optic nerve at its head. The fibers of the retinal ganglion cells of the optic disc become engorged and bulge anteriorly. Persistent and extensive optic nerve head swelling, or optic disc edema, can lead to loss of these fibers and permanent visual impairment.

Checking the eyes for signs of papilledema should be carried out whenever there is a clinical suspicion of raised intracranial pressure. Because of the (rare) possibility of a brain tumor or pseudotumor cerebri, both of which can increase intracranial pressure, this examination has become common for patients suffering from headaches.

There are 10 hallmarks of papilledema:

blurring of the disc margins
filling in of the optic disc cup
anterior bulging of the nerve head
edema of the nerve fiber layer
retinal or choroidal folds
congestion of retinal veins
peripapillary hemorrhages
hyperemia of the optic nerve head
nerve fiber layer infarcts
hard exudates of the optic disc


No information found on the Mayo Clinic website. Psuedo means "false."

Hope this info helps.  (+ info)

Are these symptoms of papilledema (Please eye doctors)?

I had to see a neurologist a few weeks ago because of problems I was having in my arms, legs, feet, hands and left eye. He did a thorough neurological exam and said, "You don't have m.s., but I did notice some swelling around the optic disk- I think you have papilledema." So, he wants me to see an opthamologist, but I have astigmatism and I may need new contacts, so I think that might be my actual problem with my vision. Anyway, I need to know if when I look at objects and I blink or quickly look at the wall, the outline of the object seems to "jump" on to the wall. Is that from papilledema, or from astigmatism?
Oh, and sometimes I will wake up in the morning with a pounding headache at the back of my head and I have "tunnel vision".

Papilledeama is not diagnosed so much by symptoms as by the actual appearance of the optic nerve and pupil function. Neurologists are familar with this and you should follow your doctor's advice.

Can be associated with headache, visual abnormalities like the jumping you describe, sometimes pain in the eyes and rarely decreased vision.  (+ info)

Is Papilledema linked to vascular malformations in the brain?

For about a year now, my vision temporarily grays out for several seconds when I change position, such as from siting to standing. My doctor told me that I have Papilledema, or bilateral swollen optic nerves. I had brain imaging done and they found vascular malformations in my brain. I was given a spinal tap to drain excess fluid. The fluid build up came back, and I was put on Diamox and Lasix. The medicine didn't help. Then I lost my insurance so I couldn't afford a neurologist or my medication or tests. My opthamologist still monitors my papilledema (at a lower fee) in hope that it will improve on its own. After several months of this, there is still no improvement, but rather my symptoms are getting worse. He doesn't know what is the cause of my papilledema so I will take more tests soon.

I am wondering if the vascular malformations in my brain could have anything to do with my vision problems? I don't have a neurosurgeon to evaluate me nor money to afford the hospital.

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Papilledema, Please help?

I was diagnosed with Papilledema, so I had an MRI and spinal tap. I do not have a tumor and I do not have a high pressure reading from the spinal tap (It was an 18). I am not looking for a diagnosis, but I was wondering if anyone has seen this before? I am trying to find out what the underlying problem is, but all the DR's seem to be stumped. Any ideas that I can bring up at my next DR's visit?

I have seen numerous DR's and nobody knows.

Thank you for your time!!!!

Pseudo-papilledema. A not unusual anomaly of the optic nerve head.  (+ info)

I found out I have papilledema..?

I have been suffering from frequent headaches for nearly a year now. I get at least 4-5 headaches every week. When I get them, they last for the larger portion of the day, and medicine doesn't usually seem to help. They're usually focused behind my left eye, but sometimes behind my right eye. Anyways I went to the ophthalmalogist (eye doctor) Monday, and he said my optic nerves were swollen. He also saw that he had it written down that they had been elevated at my eye exam last year, but didn't see the need to worry as there were no headaches that I complained of. Now that he sees the swelling and knows that I am having a bunch of headaches, he had me get an MRI scheduled for tomorrow.

My mom and I have been researching papilledema (optic nerve edema) to try to better understand it. My questions are these:
1.) Is it rare? (Some websites say it is a rar condition)
2.) Is it always serious? (From what I've seen so far, it's either a tumor or PTC)
3.) Should I worry?


Papilledema, please help?

I was diagnosed with Papilledema, so I had an MRI and spinal tap. I do not have a tumor and I do not have a high pressure reading from the spinal tap (It was an 18). I am not looking for a diagnosis, but I was wondering if anyone has seen this before? I am trying to find out what the underlying problem is, but all the DR's seem to be stumped. Any ideas that I can bring up at my next DR's visit?

I have seen numerous DR's and nobody seems to know.

Thank you in advance for your time!!!!

The fact that you do not have a brain tumor nor high spinal fluid pressure means that the more appropriate diagnosis should probably be PSEUDO papilledema. This means that the optic nerve is elevated and looks swollen but is not being caused by a disease process. Sometimes a cause is never found. Pseudopapilledema, though, does seem to many times fit certain risk factors. Most cases of pseudopapilledema occur in one or more of the following situations.

1) Relatively young.
2) Female.
3) Overweight.

Some cases of pseudopapilledema are caused by "drusen bodies" buried deeply within the nerve. But, I doubt this is your case because they would have been seen in the MRI.  (+ info)

I was diagnosed with PTC and papilledema recently, how serious are these conditions?

I saw the neurologist first and he referred me to the opthamologist. The opthamologist confirmed the diagnosis of papilledema. I have read about both conditions, but the information is rather vague. How serious is papilledema? Will I lose my sight all together?
I had an MRI done that showed no actual brain tumors or scarring. The neurologist diagnosed pseudotumor cerebri and the ophtamologist diagnosed papilledma; nothing about pseudopapilledema. Currently I have no diplopia. I have greying of the visual fields though and and often time tunnel vision.

I do not know what myopic or hyperopic means, sorry.
I am 27, female, and normal weight. My father has parkinson's disease. My mother is healthy. Neither of them have any vision problems.

They have the potential to be very serious, but PTC affects individuals very variably, so there is absolutely no need to take "worst case" instances as inevitably applying to you.

Will you lose your eyesight altogether? It's unlikely, but it is possible. More likely, but not assured, is that if your intracranial pressure is brought down, your vision will improve, including recovery of peripheral vision loss.
(to an unpredictable extent: a lot will depend on how long the condition has been present, undiagnosed.)

I'm sorry there are so many unknowns, including where the disease actually comes from.
"Idiopathic" sounds like a technical term.
It is. It's the technical term for "we don't know, it just sort of happens."

Of the sites I looked at, this one, to my mind, seems both clear and comprehensive:  (+ info)

"Pounding" eyes. Do I have papilledema? What else could it be? Please read details.?

Occasionally, in particular when I get really nervous or stressed out about something, my veins along the side of my forehead start pounding very heavily to the point where I can feel them portrude from my skin. Also, my vision begins to change - the best way to describe it is that it's as if my eyes dilate (become blurry) for each heart beat. It is like my optic nerves are making my vision "pound" with each heart beat.

This usually lasts for a very short period of time - no longer than 30 seconds. But whenever it does happen, I become very nervous and try to just calm myself down by taking deep breaths until it passes. I even worry that it could be a stroke... could it?

I tried to research this and some things I found are Intracranial Hyptertenstion and/or Papilledema. Could it be any of these?

Also, I am a 16 year old male. I am currently taking medication for hyperthyroidism. Other than that, I am in good health.

Sounds like a panic attack. Slow, deep breathing is often a useful treatment for panic attack. Hyperthyroidism can be associated with increase heart rate and anxiety. Mention the attacks to the doctor who is treating your hyperthyroid. You may need medication to lessen the panic attacks.

Serious, life threatening diseases like intracranial hypertenion, papilledema, stroke do not get better after 30 seconds. Reading about them and worrying that you might have them can cause panic attack, so stop looking up symptoms on the Internet.  (+ info)

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