FAQ - parkinson disease
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Does anyone know of a support group in the Boston area for people who have Parkinson's Disease?

I have a friend who has Parkinson's Disease ("PD") and could greatly benefit from attending a support group with people who also have PD. She lives South of Boston but if anyone knows of any support groups in or around the Boston area, it would very much be appreciated. Thanks!

You should be able to find an answer here...Good Luck!

http://www.google.com/search?sourceid=navclient&ie=UTF-8&rls=GGLD,GGLD:2004-03,GGLD:en&q=parkinson+disease+support+group+boston+ma  (+ info)

What are the chances that I will unfortunately get Parkinson's Disease?

My late grandpa had it. Now both my grandma and aunt have Parkinson's... Will I get it? What are the odds?

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Is it possible that I can get parkinson disease from my father?

My father have parkinson and Im wondering if it can be passed to me or something!!?
I don't mean like catching flu or somthing!
I mean genetaically or whatever!

Yes and no.
In some familial Parkinson's disease, some immediate family members will develop PD and some won't. In other instances, the disease may skip generations. This suggests that there appears to be a need for environmental triggers as well. I'm not as familiar with familial PD but depending upon the genes, the development can vary. This is the reason for twin studies.

You should sit down with various family members on both your father's side and your mother's to determine how many people had Parkinson's or another neurodegenerative disease. Write down that history - write down where these people came from, what they did for a living and so on. Make a very complete history. This might help to provide some insight into your father's condition as well as insight into the possibility that his condition is or isn't genetic.

Genetic testing is possible and may or may not be a bad idea as there may be neuroprotective adjustments you can make that will defer or just possible prevent (I have some doubts here) the disease.
The full testing is not inexpensive an you would both need to be tested.

There is a long list of genes which can mutate and be responsible for familial Parkinson's disease. At this point there is more research into the genetics of PD and although only a maximum of 15% is considered to be genetic in origin, that is subject to change. That means that the balance of cases are considered to be idiopathic - cause unknown or undetermined.

You might wish to read more about genome testing at the National Institutes of Health - it is a bit dated but it gives you basic information.

In the meanwhile, read what you can about Parkinson's disease including alternative and nutritional supplements, exercise and massage therapy. I think that staying current with the progression of your father's condition, making suggestions for improving his treatment in terms of the additions mentioned above, might make things easier for both of you.

My husband, who does have PD and who had an aunt who had PD, did have a limited genetic test and did not have one particular gene. The commonality was exposure to rural herbicides and pesticides on his grandfather's farm. Not to mention the possibility of lipopolysaccharides.

The odds are in your favor at this point...

One last thought, if you actually do have genetic testing, make sure to include your mother's side as well. Do that also for a history. You can acquire predispositions from either side.  (+ info)

what is parkinson disease and what does it do to you?

Like Michael J. Fox, He has it and I was just wondering what it is and I see that when he talks he moves his body around constantly is it part of that disease?

Parkinson's disease is caused when your brain doesn't produce enough dopamine. This can lead to rigidity, slowness of movement, and tremors among other things. The moving around of Michael J Fox is most likely dyskinesias which are a side effect of sinemet, which is a primary medication in treating parkinson's.  (+ info)

Can Parkinson's disease affect breathing by limiting dopamine to the intercostal muscles?

I have Parkinson's and I notice that when my Sinemet wears off it is very hard to breathe. When the meds are kicked in I can breathe normally, when they run out (usually within 4 hours) my breathing is very fast, short, and shallow and I can't seem to get enough oxygen.

The short answer is Yes.

But your question and explanation raises my adrenaline levels for you because you need to make a doctor's appoint asap.

It is not just the intercostals - all of them - which are involved in respiration, it is also the diaphragm. And all of these muscles are affected by the imbalance between acetylcholine (normal) and dopamine (low levels). There are different ways in which the dopamine deficit can cause respiratory dysfunction or malfunction but I think that you have identified the direction of relief.

You really are having breathing issues that are not inconsistent with Parkinson's and you should discuss this with your doctor soon because it sounds as if you need an adjustment in your meds. Whether it is adjusting the dosage of your Sinemet or add one of the COMTS i.e. a switch to Stalevo as a second line defense, I couldn't say. One problem is that these medications themselves can cause the tardive dyskinesia and you may actually require a different therapeutic direction.

You breathing becomes rapid and shallow because you are in respiratory distress as the muscles tighten (thanks to the acetylcholine) and do not relax, no thanks to the lack of dopamine to balance the process. Your body cannot breathe as it should. This is the motor aspect of Parkinson's disease in a very focused manner.

In addition to adjusting or changing medication, please consider - if you are not already doing so - adding antioxidants whether or not it is in the supplement form or through focusing on foods which are high in antioxidants. Your condition creates additional oxidative stress which is already a PD issue.

You might try to get a copy of "Focus on Parkinson's Disease Research" by Marianne J Willow. You could read & copy Chapter VI and take it with you to your neurologist for discussion of options.

One last suggestion is Yoga and breathing exercises now and later.

And a question: how long have you been taking Sinemet? Was it your first PD medication?

Best wishes - I can be reached through Yahoo Answers and at the site below.  (+ info)

Please suggest any cure for PSP (Progressive supranervous Palsi) a Brain Disease similar to parkinson?

This is a very Deadly Disease in which your Motor Skills , Eye Vision, Thinking, Stammering, Breathing Trouble. Actually The Size of the Mid Brain is Diminishing, If anybody has a Cure or any Information please send the answers.

Currently, there is no effective treatment for progressive supranuclear palsy (PSP), although scientists are searching for better ways to manage the disease. In some patients the slowness, stiffness and balance problems may respond to Parkinson's disease medications but the effect is usually temporary. Speech, vision and swallowing difficulties usually do not respond to drug treatments.

Simple lifestyle changes may benefit patients with PSP. For example, patients frequently use weighted walking aids to deter their tendency to fall backwards. Bifocals or special glasses called prisms are sometimes prescribed for PSP patients to remedy their difficulty of looking down. Formal physical therapy has not proven beneficial but certain exercises can be performed to keep the joints limber.

When a patient experiences severe difficulty swallowing and choking is a risk, a surgical procedure called a gastrostomy may be necessary. This surgery involves the placement of a tube through the skin of the abdomen into the intestine for feeding purposes.

Being a caregiver for a PSP patient can be physically and emotionally demanding. Support groups can play an important role in coping with the disease and maintaining quality of life for the patient and caregiver.
http://www.rxbharat.com/mental/71-mental-disease/61-progressive-supranuclear-palsy-psp  (+ info)

Is there a link between mdma use and Parkinson disease?

Ive heard that there is a theory that Parkinson can surface from mdma use but im not sure if that's just a rumor spawned by some government control agency for prevention, or if it is the result of legitimate study. I would like to know and I cannot find out anywhere. If you don't know for sure or cannot site a source, please do not give feedback.

i cant believe ppl are still spreading this rumor. No, it does not cause parkinsons.

go on you tube and search for a video (5 parts) called "ecstasy rising". It has all the factual background to this myth.
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what part of the brain does Parkinson disease take place?

I'm doing a project in my anatomy class and right now and I'm studying the brain
i just really need to know what hemisphere or lobe does Parkinson's disease generally take place.
I'm kind of guessing there isn't any general area
but if there is that would be great to know!

The standard answer is the substantia nigra pars compacta of the basal ganglia

Here is another version of The Brain:

But if that makes your eyes spin, try this one:

The fact is that more is still being learned but for your purposes, the primary loss of brain dopamine neurons in Parkinson's disease takes place in the SN.

You're probably not going to need more advanced information at this point.  (+ info)

Have you heard about the new way to ward off Parkinson's Disease?

A new study now says that tobacco smokers are less likely to have Parkinson's disease. And it does not matter whether one smokes cigars, cigarettes or a pipe.

I don't believe it. For two simple reasons, one is that the different types of tobacco have very different compositions, and if any kind of smoking helps, there would have to be a common substance that would help. Two, smoking those three types of tobacco is very different, for example cigar smoke is not inhaled, unlike cigarette. This combined with the previous reason makes it very unlikely that there is a single common element that all three can give to your body to reduce Parkinson's. The chances are just too slim. It feels like propaganda to me.  (+ info)

Is it safe for my dad to take the H1N1 flu shot if he has Parkinson's Disease?

My dad has been diagnosed with Parkinson's Disease for more than a year now. I was afraid to take the H1N1 flu shot because he was afraid that there could be some effects. There was a story out there about a girl had a "seasonal" flu shot and can walk backward and run but can't walk forward. Even though she got the seasonal flu shot, he is still scared. He afraid that the flu shot can affect some of his movements. Could any flu shot affect his already worsening movements problems?

My husband has Parkinson's Disease and all his doctors recommended getting the shot. He received it two weeks ago with no problems.  (+ info)

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