FAQ - pseudotumor cerebri
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Marijuana Benefits/Risks For 29 yr. old woman with Pseudotumor Cerebri?


My wife has been suffering with pseudotumor cerebri since 1998 and smoking marijuana is the only thing that seems to keep her cerebrospinal fluid build up under controll. She has been prescribed Diamox and other diurhetics to help controll her csf build up. She has also had about 13 Lumbar Punctures (If I remember correctly) and nothing else but the marijuana seems to help keep her csf at a manageable level. anyone with some insight to this problem please feel free to comment or suggest a different course of action.
Thank you for your attention to this matter.
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If it seems to be helping her I don't see it having any real problems with her especially if she has already been smoking for a while.  (+ info)

Pseudotumor Cerebri/Benign Intracranial Hypertension? Anyone else have this?


I feel I am the only person. I do not know anyone who has had this condition.
It is a condition where the cerebral spinal fluid does not drain like it should. It builds up in your brain and causes BAD headaches, for me it causes nausea/vomiting, blurred vision and other visual disturbances. The build up of fluid puts pressure on the optical nerve and casues it to swell, which is why it is such a serious condition because a swollen optical nerve can lead to permannet blindness. I just had an LP shunt put in(a shunt device..small little tubey thing) and it runs from my spine to my stomach under my skin(you cannot see it) and it regulates my spinal fluid. It is more prevalant in young women who are on the overweight side..Not always but most of the time. I am just curious if anyone knows anyone with this or anyone that has it. It would be nice to have someone to talk to that can relate to me. It is so rare and hard to find others with this. Hope this helps a little! :)
And to top it off...they now are concerned over my blood pressure(which I am working on by diet and exercise) AND I have a bad case of anxiety/panic disorder.
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Could you explain it a little better please? If I have a better idea of what it is I might, but all those fancy words are confusing me! lol  (+ info)

Do YOU have Pseudotumor Cerebri?


Hi wad diagnosed with PTC this Tuesday pass, and I was wondering if anyone else has it? I would like to have someone to chat with to see what I may possibly face.

If that will be okay, I would your:
Name-
Age-
When you were diagnosed-
Cause of your PTC-

Thanks so much!
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I haven't had it, but I have treated it.

The preferred term these days is Idiopathic Intracranial Hypertension.

Idiopathic means Cause Unclear.

If you are obese, losing weight will cure you. Gastric reduction surgery is the best operation for IIH.

If it is mild, the neurologist may treat you with medication alone - acetazolamide.

Thin women with IIH can be the hardest to treat - lots of shunts, lumbar punctures, eye surgery, etc.
But that is not always the case - some patients' shunts serve them well for many years.

Good luck!  (+ info)

pseudotumor cerebri... does it always happen again or can it be a one time thing?


hello. im a 22yr old female and about 7 months ago i was gettin some headaches and vision problems. i went to doctors and after tests, i was told it was a pseudo tumor cerebri. i did a spinal tap and went home the same day. the doctor also put me on medication (diamox) for 7months. i just stopped taking it two weeks ago. ive had to visit him every couple of months since the procedure to check how im doin and the last time i saw him (2 weeks ago) he said my vision is back to normal now and no need for the meds. however, i should still come back in 3 or 4 months for a visit. I have been reading articles and some random blogs, it seems a lot of people who have been diagnosed and have gone through the procedure (spinal tap) kept getting the symptoms again months sometimes years later. Some even had to get brain surgeries. Did they have to go through surgery because they waited too long to get treatment? Are there different stages? Am I more or less than likely to get it again? Is it even possible to know? I've been doing great since my procedure 7 months ago does that mean anything?
I lost 10lbs since the procedure and working on losing at least 40 more. I'm 210lbs now
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I found this link helpful.best wishes for weight reduction.  (+ info)

Pseudotumor cerebri... does it always happen again or can it be a one time thing?


hello. im a 22yr old female and about 7 months ago i was gettin some headaches and vision problems. i went to doctors and after tests, i was told it was a pseudo tumor cerebri. i did a spinal tap and went home the same day. the doctor also put me on medication (diamox) for 7months. i just stopped taking it two weeks ago. ive had to visit him every couple of months since the procedure to check how im doin and the last time i saw him (2 weeks ago) he said my vision is back to normal now and no need for the meds. however, i should still come back in 3 or 4 months for a visit. I have been reading articles and some random blogs, it seems a lot of people who have been diagnosed and have gone through the procedure (spinal tap) kept getting the symptoms again months sometimes years later. Some even had to get brain surgeries. Did they have to go through surgery because they waited too long to get treatment? Are there different stages? Am I more or less than likely to get it again? Is it even possible to know? I've been doing great since my procedure 7 months ago does that mean anything?
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Hello. Glad you are feeling better now and I hope it will continue. Pseudotumor cerebri does not have stages, but the severity can vary from person to person. There are no long term studies evaluating the natural history of this condition. A protracted course lasting months to years appears to be. Generally, symptoms worsen slowly, but a subset has a more fulminant course. With treatment, there is usually gradual improvement and/or stabilization, but not necessarily recovery. Based on clinical studies, a recurrence of symptoms may occur in 8 to 38 percent of patients after recovery from an episode of pseudotumor cerebri or after a prolonged period of stability. The fact that your symptoms have improved is reassuring, but unfortunately it does not guarantee they will not return.  (+ info)

Pseudotumor Cerebri/Intracrainal Hypertension?


My daughter was diagnosed with PTC/IH 2 years ago. It has gotten worse and we are needing a doctor preferable Illinois that actually knows something about this condition and knows how to treat it. Does anyone know of a doctor in Illinois, Indiana or Missouri. We would also consider a doctor in Kentucky if we have to. Thanks
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hello, i have intrcraniel hypertension, my doc told me about the mayo clinic in minn. [rochester] they know about this situation, except i can't get in untill oct 2008, i had 5 spinal taps since 3/2008, 2 more scheduled next week.  (+ info)

I have pseudotumor cerebri?


My doctor wants me to have a weight lose procedure, to help with the tumor. if i don't have this surgery i can lose my eye sight. I have two insurance both say the procedure is excluded from the insurance. Can anyone help me, or tell me what to do.
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pseudoturmor cerebri...there is NO tumor. pseudo= false. the new name they are calling this condition is Intracranial Hypertension. You have to much cerebral fluid that is building up pressure in your brain.

I have lived with this condition since 1995 and had a VP shunt placed in 2005 to save my vision.
diet and exercise is the best place to start, but I know if you have the headaches how hard it is to exercise. Just do the best you can. A shunt, like I have should be last resort, if you can not take the medication normally given. You should see a neurologist to see about medication to help you. That is your first step.
If I can be of any help or you have any questions post a request for me to email you and I will be happy to do so.  (+ info)

what is pseudotumor cerebri?


Pseudotumor cerebri means" false tumor"
which is due to high pressure caused by a buildup of of cerebrospinal fluid in the subarachnoid space which surrounds the brain. it is common in women 20-50 years old and is characterized by head,nausea,vomiting,which closely mimic brain tumors. A doctor will do a thorough examination with CAT scans or MRI's and will treat it with diuretics to help reduce fluid buildup. Surgical procedures may be done to remove fluid buildup.  (+ info)

Do anyone have Pseudotumor Cerebri?


a pseudo tumor cerebri only means that it looks like a tumor but isn't one.  (+ info)

Pseudotumor Cerebri or PTC?


How does it affect others? And who gets it?
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PTC is not contagious like the flu, but it does affect everybody that is around the person with PTC. PTC can cause crippling headaches, blindness, and various other problems. If a person with PTC is having a bad day (painful day) then they may not be able to function as they regularly would so others may have to help them out or even do stuff for them. There is no select type of person who gets PTC, or what causes it.
Hopefully this helps you understand it better.  (+ info)

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