FAQ - pulmonary valve stenosis
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What are the post op recommendations for pulmonary valve stenosis repair in infants?

My son recently underwent open heart surgery for stenosis of one of the pulmonary valves. It has been a week and a half since that and I'm following all of the doctors orders, but I would just like to know if there is anything else I can do to help him recover better/faster.

It is always good to follow your doctors advice.  (+ info)

At 8yrs old, my pulmonary valve was removed, not replaced, from stenosis. How common is this?

The doctors were suppose to open the valve. However, it was to tight and they opted to remove the valve. I go to the doctor regularly but want to know how common this is. Also, how long can live without one, and what is my life expectancy?

Are you certain they didn't replace it? Without any sort of pulmonary valve blood would constantly backflow into your lungs and cause some pretty significant pulmonary hypertension. Quite honestly you probably wouldnt' be around today. Usually if the valve is absent (as in pulmonary atresia) or has stenosis they will replace it with a cadaver or pig valve.  (+ info)

My 2yr old daughter has pulmonary valve stenosis. Her Heart mummer is getting louder should I be concerned?

DUH!  (+ info)

pulmonary valve stenosis in my eight month old daughter.?

My eight month old daughter was just diagnosed with pulmonary valve stenosis. Anyone have an experience with this? Did you have cardiac catherization? Did that fix the problem?


Patients with mild to moderate pulmonary valve stenosis, and few or no symptoms, do not require treatment. In more severe cases, the blocked valve will be opened surgically, either through balloon valvuloplasty or surgical valvulotomy. For initial treatment, balloon valvuloplasty is the procedure of choice. This is a catherization procedure in which a special catheter containing a deflated balloon is inserted in a blood vessel and threaded up into the heart. The catheter is positioned in the narrowed heart valve and the balloon is inflated to stretch the valve open.

In some cases, surgical valvulotomy may be necessary. This is open heart surgery performed with a heart-lung machine. The valve is opened with an incision and in some cases, hypertrophied muscle in the right ventricle is removed. Rarely does the pulmonary valve need to be replaced.

Alternative treatment

Pulmonary valve stenosis can be life threatening and always requires a physician's care. In mild to moderate cases of pulmonary valve stenosis, general lifestyle changes, including dietary modifications, exercise, and stress reduction, can contribute to maintaining optimal wellness.


Patients with the most severe form of pulmonary valve stenosis may die in infancy. The prognosis for children with more severe stenosis who undergo balloon valvuloplasty or surgical valvulotomy is favorable. Patients with mild to moderate pulmonary stenosis can lead a normal life, but they require regular medical care.

finally i wish the lil baby all health :)

if you have any specific question my e-mail
[email protected]  (+ info)

Can Pulmonary Valve Stenosis cure over time?

They used to tell my parents it would correct itself by the time I was five but it never did so can it fix on its own?

Unfortunately pulmonary valve, or any heart valve stenosis for that matter requires surgery to correct it. Doctors can either open it up (stenosis means narrowing of the valve, thus blood couldn't pass through normally as it should), or replace the valve itself if the stenosis is irreparable. Medications used before surgery may include prostaglandins (PGE) to maintain lung blood flow, water pills to remove the excess fluid, anti-arrhythmics to improve the heart function, and blood thinners to prevent clots.
This needs to be done to ensure adequate blood flow in your heart because as you know our heart acts as pump to supply blood in our body.  (+ info)

How would sounds be affected by A-V valve prolapse? aortic valve stenosis? Pulmonary valve stenosis? A-V valve

AV valve prolapse will produce a non-ejection click. Aortic stenosis will produce softening of aortic component of second heart sound, an ejection click and a mid systolic murmur. Pulmonary valve stenosis will soften the pulmonary component of second heart sound, an ejection click and a mid systolic murumur.  (+ info)

which hospital will treat a child with pulmonary valve stenosis in pakistan?

is there any organisatiion that can help to fund treatment for a poor family with treatment for this child?

Try contacting the Red Cross or some other similar organisation, they may be able to poiint you in the direction of a charity able to help.  (+ info)

How does alcohol affect someone who has been diagnosed with aortic valve stenosis?

My brother has been diagnosed with aortic valve stenosis and also is a smoker and does drink alcohol on the weekends. He knows smoking should be elimated but what about the effects of alcohol? Does this also contribute to his stenosis?

Hi dear....I think we all know, even the youngest person on this site knows, there are no GOOD things that come from smoking or alcohol. They are both addicting drugs that people do to appease themselves. Think about it.

Alcohol plus smoking are stimulants. A stimulant acts on the body by constricting the blood vessels. Caffeine too. Constricting means to make smaller. He has a valve that is smaller than it should be. No one knows what causes this but hereditary plays an important part.

Anyway, since it is naturally smaller, then one goes and drinks or smokes, the entire aortic artery itself gets smaller, along with the other arteries of the body.

Take a hose. Turn the water on a good strong ways. Then bend the hose on a spot making it difficult for the same amount of water to flow what was earlier. The water coming out the end is not as strong, yet the origin or the water is as strong at the spigot. All this water is being pushed against the bent area but is not getting through fast enough.

The spigot would be the heart. It is still pumping at the same strength it was before the drinking or cigarette, but it is pumping against a brick wall so to speak. The blood is not flowing through the constricted valve, and now not so good through the constricted artery, so it is backing up somewhat as well as the heart tries to pump harder to get it through.

It is a perfect recipe for congestive heart failure in the not too distant future. The heart muscle will enlarge as the muscle is being worked too hard, and that is NOT a good thing for a heart. It will be the ventricle that enlarges. The left ventricle pumps the blood through the lungs and since the enlarged ventricle is larger, it it not as effective, so the blood moves through the heart a little slower than normal and the lungs will pick up excess fluid from the blood and deposit it in the lungs making it very difficult to breathe. Left untreated it can kill you. However, the good news is: Surgery can cure the valve. He can have open heart surgery, and a replacement valve placed. My step dad had this and he was like a new man after. Naturally, he quit smoking after smoking for more than 60 years. He was 72 when he had the surgery.

Anyway, I think you can tell him all this, but he may not listen. That is just the way it is. Give him the knowledge. He will do with it what he will. Say a little prayer.

God bless you and him.

Checkout www.healthline.com. It and www.webmd.com are wonderful sites to find out all about medicines and disease processes.

I am an RN  (+ info)

Anybody have experiences with pulmonary valve replacement surgery to share?

I have severe pulmonary valve insufficiancy and an enlarged right ventricle and was told I need a new pulmonary valve.
They can't decide if they want to do the surgery now or wait so I get to sit around and think about it for a while.

Not with "Pulmonary" valve replacement, but my husband has had his aortic valve replaced twice. The first time was in 1984 over at Stanford Medical Center. They put in a "Homograph" which is a valve from some one who has recently died. If a human one was not available at the time of surgery they would have put in a pig valve. We were told at the time that the valve would last about 15 years max and that he would not have to take anticoagulants as he would have if he had had a metal valve up in. The metal valves are hard on blood going through and sort of smash the blood cells and that can possible cause clotting...this the anticoagulants. In 1993 he had to have a new valve put in (at a different hopsital) becasue he had gotten an infection and it settled around the valve tissue and basically distroyed it. My husband said he did not want to have another "homograph" or a pig valve. He wanted to have a metal one that would not wear out. At first the sound of it bugged him, but it evenutally became a normal sound to him and he doesn't even notice it much at all...it no longer bothers him. He even says that when he does notice it in an odd way it is comforting to hear it beat strong and regular. He is on anticoagulants, but it has not been a problem at all. You just have to go get the levels tested on a monthly basis once you are stablized after starting. It too become "old hat".

I know for certain if my husband was answering this (he upstairs sleeping) he would advise everyone who goes through open heart surgery to do their coughing exercises when the nurses tell you to and try to do it more if you can. It doesn't feel good because you are sore, but it really helps so much with getting better and faster!!!! Other people who I have talk with that have had a valve replacement say the same thing.

Also, I don't know if it was the difference in proceedures (being 9 years apart...and progress etc) but his second operation was signifigantly less painful and he was off the stronger medication within a day or so. With any major operation, it an assult to your body and it takes time to get your strength back. Once you do though you will have a lot mor energy than you probably have now.
Hope some of this helps. All the best.  (+ info)

Does anyone know what effects pulmonary embolisms have on the mitral valve?

My dad had large pulmonary embolisms and almost sid not make it last month. He had a leaky mitral valve at 30 percent before all of this happened. I just wondered what kind of negative effects this could have on the valve. Could it make it worse or could it have no effect.

A leaky mitral valve will cause increased pressure in the lungs and possibly pulmonary edema (fluid in the lungs) if the mitral regurgitation is large enough. The pulmonary embolism will likely cause no additional harm to the mitral valve. It is very serious by itself though and could be made worse by potential pulmonary edema from the faulty mitral valve.  (+ info)

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