Has anyone ever heard of PULMONARY VENO-OCCLUSIVE DISEASE? If so, PLEASE HELP ME AND MY 5-YEAR-OLD DAUGHTER!!?

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my daughter started having fainting spells about a month ago.never would i have dreamed that i would take her to the hospital and eventually find out that the doctors think that she would have this rare,horrible,life-threatening disease,they said that her only chance of survival is a bi-lateral lung transplant.If there are any doctors out there or any families willing to donate, my daughter weighs about 55 lbs and her blood type is B positive, we are located at CHILDRENS HOSPITAL LOS ANGELES, her name is DELAYSIA WILLIAMS.I really need help. GOD BLESS.
Pulmonary veno-occlusive disease (PVOD) is a very rare illness causing pulmonary hypertension. As you mention, the prognosis is poor. Only lung transplantation has been shown to significantly increase survival. Lung transplantation can occur from cadaveric donors (deceased). Who gets the lung transplant is determined by the severity/prognosis of the disease and the organ availability, not by the amount of time on the list.  (+ info)

What is bilateral pulmonary disease and what causes it?

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Recently a friend became ill and everyone including her felt it may be flu as it is flu season. But, she complained of shortness of breath and had to be given oxygen. Later she had the problem again and had to be given oxygen. It is said that she had a bag full of fluid removed from around her heart and mucus started to solidify in her lungs.Diagnosis was bilateral pulmonary disease which few people have heard about or understand except that it affected her breathing. What causes such a disease? Could the aircondition in an office be a factor?
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What do you suggest to give to a patient who has a Chronic Obstructive Pulmonary Disease?

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What do you suggest we give to a patient who has a Chronic Obstructive Pulmonary Disease, coming to the emergency room for a sudden attack of chest pain and pallor
Dear worm - "we" might "give" the patient an appropriate history & physical, followed by an EKG & chest X-ray. If you need more, contact a pulmonologist or cardiologist as you attempt to administer oxygen.  (+ info)

What kind of diseases or symptoms does a pulmonary disease doctor treat?

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How do I know if I should see a pulmonary doctor for my symptoms?
Respiratory diseases, diseases of the lungs. Such as asthma, emphysema, etc.  (+ info)

What does chronic pulmonary disease or disorder mean?

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Does chronic pulmonary diseases or disorders make people wake up in the middle of the night due to difficulty in breathing? Does this mean that the lungs can't function anymore, much less about to collapse? Is chronic pulmonary disorder fatal?
COPD is a catch all phase for many lung diseases such as asthma, emphsema, chronic bronchitis and so on. The people who have these types of diseases have hyperactive airways that swell and constrict thus restricting the flow of air both into the out of the lungs. Not only can it cause them to wake at night but can include symptoms like chronic cough, shortness of breath, chest pain, lightheadedness, etc. It doesn't necessaryily mean that their lungs aren't functioning anymore, just that they aren't functioning at the normal capacity. The level at which they do work and improve with medication is solely dependant on the type of disorder and the patient themselves. Remember were all individuals. Only in the case of those with severe emphysema do we worry about spontaneous pneumothorax's (collapsed lung due to air trapped between the lung and the chest wall) due to the bleb structures. As to the fatalities, asthmatics are the ones to worry about the most as most do not take their controller medication as they should and when they have a really bad attack they usually wait to long to go to the hospital and end up dying do to the severity of the attack. Hope that this helps.  (+ info)

B/w bronchiectasis and idiopathic pulmonary fibrosis which is a more serious and damaging disease ?

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Which is a more serious and damaging disease ?
They both could be serious and damaging .... there are some pulmonary fibrotic disorders that cause severe hemoptysis and eventually death  (+ info)

What is the chances of getting pulmonary disease?

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If you are a woman, do not smoke, do not work or live in an area where you are close by or affected with polution, you are not surrounded by those who smoke? My mother is getting an xray to check for it because she has been coughing a lot. Thanks.
and it doesnt run in the family*
If your mum has never smoked or been in a smoky enviroment for a lengthy period of time then her chances of pulmonary disease are decreased. But diseases like Emphysema start at early adulthood and become obvious years later. My own mum, started to have pains in her side, constant coughing at the age of 44, emphysema was diagnosed.
I truly hope this isn't the case for your mum as it is an awful thing to go through. My aunt was recently diagnosed with Chronic Bronchitis and she was "delighted". Which sounds crazy but after waching my mum suffer for all those years [she passed away in Sept age 57] She didnt want to go though it herself.
Hope your mum gets on ok xx  (+ info)

What is the difference between chronic obstructive pulmonary disease and emphysema?

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Will COPD turn into emphysema?
COPD is a term used to describe a number of respiratory diseases, of which emphysema is one of them. Chronic bronchitis is another one of them. Emphysema is a chronic pumonary disease, usually caused from smoking.. Chronic means it has taken years to develop to the point where you notice it is harder to breathe. Over years of smoking the alveoli (tiny airsacs in the lung) become damaged and what we call overdistended and they can not function properly. If empysema progresses it can lead to needing supplemental oxygen use at all times. Emphysema/COPD can not be cured but you can slow the progression by quitting smoking and taking the medications prescribed by your physician .  (+ info)

Are pacemakers not recommended for heart patients with chronic pulmonary disease?

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About a year and a half ago someone in my family who suffers from these two diseases seemed to be ready to have a cardiologist put a pacemaker on. At least some questions were made by doctor and we thought it might just be implanted. But nothing else was mentioned by this cardiologist nor her primary care physician ever brought it up before, during hospitaliztion, or afterward.

Is this because the patient is past 80 years old. Are there risks?
There are always risks,but there is always hope as well.  (+ info)

what would be a pro of getting a lung transplant if you had a serious chronic pulmonary disease?

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This is a question for a research paper i am having to do...what would be a pro of getting a lung transplant if you had a serious chronic pulmonary disease? Cons of a transplant??
Can you get it done in the US ???

Last I knew you had to live in the UK (?# of years) and sign an affidavit that you will never smoke again.  (+ info)

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