FAQ - sarcoma 180
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What do I wear to a Sarcoma Foundation fundraiser Orchestra Holiday Concert?

My best friend has Osteosarcoma, and tonight her orchestra is putting on a concert to raise money for the Sarcoma Foundation of America, because that was my friend's Christmas wish. What should I wear tonight? I know the orchestra is wearing dressed for girls, and slacks/nice shirts for guys. I am selling raffle tickets, what should I be wearing? So far I've been thinking nice black pants, black ballet flats, and a nice red sweater. What do you think?

I think your suggested outfit sounds very appropriate - you don't want to outshine the performers.

The ribbon for sarcoma is yellow, so if you have one to wear it will show up well on the red.  (+ info)

How much time would i need off after having a Soft Skin Sarcoma removed?

Im due to have a Soft Skin Sarcoma removed and want to know how much time at a minimum i will need off work?

As the other lady said, it depends on location, how deep it is, how large it is, how hard it is to remove, etc. The best way to find out is to ask your doctor how long he/she thinks you'll need to take off. If it's superficial and easy to get to, not very large, then you may be able to go back to work after a day at home; if you are having a general anesthetic, you can't drive for 24 hours. Or you may be able to do back to work the next day, depending on the time of day your surgery is done.
If, on the other hand, it is in a painful location, and is deep, then a couple days off may be in order.
Part of it depends on how much pain you are having and if you need to take pain killers, which would influence your ability to drive, make judgments, and other important things.
Bottom line; ask your doctor. Your doctor know where it is, how large it is, how long surgery will take, how painful it might be and whether or not you need general anesthesia or can get away with something lighter. Your discharge paperwork will tell you what the doc thinks you need to do(but that won't help you plan ahead)  (+ info)

Anyone know much about synovial sarcoma and whether it is a serious cancer?

what are the chance of a sarcoma coming back because i have been given the all clear after bieng diognosed over a year ago with synovial sarcoma to the neck.... grade 2.

What is synovial sarcoma?
Synovial sarcoma is a type of soft tissue sarcoma. Soft tissue sarcomas are cancers of the muscle, fat, fibrous tissue, blood vessels, or other supporting tissue of the body, including synovial tissue. Synovial tissue lines the cavities of joints, such as the knee or elbow, tendons (tissues that connect muscle to bone), and bursae (fluid-filled, cushioning sacs in the spaces between tendons, ligaments, and bones). Although synovial sarcoma does not have a clearly defined cause, genetic factors are believed to influence the development of this disease.

How often does synovial sarcoma occur?
Synovial sarcoma is rare. It accounts for between 5 and 10 percent of the approximately 10,000 new soft tissue sarcomas reported each year (1). Synovial sarcoma occurs mostly in young adults, with a median age of 26.5 (1). Approximately 30 percent of patients with synovial sarcoma are younger than 20. This disease occurs more often in men than in women (1).

Where does synovial sarcoma develop?
About 50 percent of synovial sarcomas develop in the legs, especially the knees. The second most common location is the arms (2). Less frequently, the disease develops in the trunk, head and neck region, or the abdomen (1, 2). It is common for synovial cancer to recur (come back), usually within the first two years after treatment. Half of the cases of synovial sarcoma metastasize (spread to other areas of the body) to the lungs, lymph nodes, or bone marrow (1).

What are the symptoms of synovial sarcoma?
Synovial sarcoma is a slow-growing tumor. Because it grows slowly, a person may not have or notice symptoms for some time, resulting in a delay in diagnosis. The most common symptoms of synovial sarcoma are swelling or a mass that may be tender or painful (1). The tumor may limit range of motion or press against nerves and cause numbness. The symptoms of synovial sarcoma can be mistaken for those of inflammation of the joints, the bursae, or synovial tissue. These noncancerous conditions are called arthritis, bursitis, and synovitis, respectively.

How is synovial sarcoma diagnosed?
The doctor may use the following procedures and tests to diagnose synovial sarcoma:

Biopsy: Tissue is removed for examination under a microscope.

Immunohistochemical analysis: Tumor tissue is tested for certain antigen and antibody interactions common to synovial sarcoma.

Ultrastructural findings: The tissue is examined using an ultramicroscope and electron microscope.

Genetic testing: Tissue is tested for a specific chromosome abnormality common to synovial sarcoma.

How is synovial sarcoma treated?
The type of treatment depends on the age of the patient, the location of the tumor, its size, its grade (how abnormal the cancer cells look under a microscope and how likely the tumor will quickly grow and spread), and the extent of the disease. The most common treatment is surgery to remove the entire tumor with negative margins (no cancer cells are found at the edge or border of the tissue removed during surgery). If the first surgery does not obtain negative tissue margins, a second surgery may be needed.

The patient may also receive radiation therapy before or after surgery to control the tumor or decrease the chance of recurrence (cancer coming back). The use of intraoperative radiation therapy (radiation aimed directly at the tumor during surgery) and brachytherapy (radioactive material sealed in needles, wires, seeds, or catheters, and placed directly into or near a tumor) are under study.

Patients may also receive chemotherapy alone or in combination with radiation therapy  (+ info)

Is there a genetic test that shows who is more at risk for osteogenic sarcoma?

My daughters brother died from Osteogenic Sarcoma. Is there any genetic testing that can be done to determine whether she is more at risk for it?

Thank you.

There are some indications that osteosarcoma (osteogenic sarcoma) in some cases is hereditary as there are reports in the literature of siblings having this type of cancer. There also appears to be some type of connection with some subtypes of osteosarcoma with Li-Fraumeni.


you can check with her brothers pediatric oncologist to see if there is any genetic test, but I don't think that there is one . . but because her brother has the disease, she probably has a higher risk for the disease than someone who does not have a sibling with the disease.

http://www.ncbi.nlm.nih.gov/pubmed/11003561  (+ info)

How does a soft tissue sarcoma appear on a regular xray?

i have a mass on my finger that i had xrayed and they said it showed up as swelling in the xray, but im scared it could be a soft tissue sarcoma...what are characteristics of soft tissue sarcomas?? i have had this mass on my finger for about six months now with no pain, so the doctor said its just a tendon sheath tumor? anyone know about sarcomas or xrays?
im really worried...i know im probably just paranoid but im scared

Please take Panda's excellent advice and pursue this with a sarcoma specialist if possible. I would at least recommend a biopsy, based on my own sarcoma experience. I had a "probably nothing" lump excised from my arm, and it turned out to be Malignant Fibrous Histiocytoma. The good news is that the odds are in your favor - sarcoma is very rare, so chances are your doctor is right. But it's not worth the risk to just let it go.  (+ info)

Where can a physically handicapped 15 year old (post humerus allograft from Ewing's sarcoma) work?

I had Ewing's Sarcoma (bone cancer) in my arm, and had a allograft resection, and have radial nerve damage. Which means i cannot be a bus boy, or a stocker, i cannot lift heavy things, and have limited Range of Motion. Thank you all.

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do you know about sarcoma and is it possible that it goes to the brain?

I recently find out that I have sarcoma. I like to know more about it; especially if the informatin comes from pople who are effected.

There are many different types of sarcoma. Which one you have will determine the path of metastasis, if it spreads. If you haven't already, check out the following websites. It will give you more information on the subtypes of sarcoma and put you in contact with online patient forums.

http://www.liddyshriversarcomainitiative.org/  (+ info)

Is it true that chemotherapy makes it worse when you have sarcoma cancer?

My cousin was diagnozed with the intestine cancer (I was told it was an uterine at first) a few weeks ago. The cancer has already spread to her lungs, kidneys and everywhere else. She had a surgery and they removed lots of it from the different parts of her body. She felt better but then the doctors run some tests and found out that it was a sarcoma type. I know that the sarcoma resists to the chemo therapy treatments but is it true that it might make it worse? I never heard of it but the doctor says that there is a chance that the chemo will make more damage than good. She was asking my mom whether she should go for chemo. Does anyone have any experience with sarcoma in such a late stage? What should we expect? What will happen next? And did someone at her situation lived for long? Is she going to experience a lot of pain? It's hard for me to ask these questions her doctor because she is in Europe and I get all information on the phone only. I am scared.

There are over 60 different types of sarcoma and all are treated differently. So, it is difficult to respond to your question. It is not true however that sarcoma does not respond to chemotherapy. My son had a 75 percent response to first line high dose chemotherapy for abdominal sarcoma. He also underwent three major surgeries to remove the bulk of tumor. He had a treatment called intraperitoneal hyperthermic chemoperfusion to treat the microscopic cells embedded in the abdominal cavity. He has also undergone low dose chemo maintenance with no evidence of disease for 8 months. Currently his disease is stable and he is asymptomatic and living with cancer.

It is highly recommended that your cousin locate a sarcoma specialist or be treated at a sarcoma center. Sarcoma is extremely rare and needs to be treated by someone who has had experience with the disease. Most doctors and oncologist have never seen or treated this type of cancer . . and many patients are misdiagnosed and their treatment delayed or ineffective because of mismanagement.

Sarcoma Centers - includes centers around the world

Find out the exact name of your cousins sarcoma and than look for specific information about the disease. You can also visit the Sarcoma Alliance for information:


Medline Plus: Soft tissue sarcoma

What is a soft tissue sarcoma

NIC: Soft tissue sarcoma

Cancerbackup: soft tissue sarcoma
http://www.cancerbackup.org.uk/Cancertype/Softtissuesarcomas  (+ info)

How much difference is there in 180 axis and 002 axis on an eyeglass prescription?

My new eye glass prescription has an axis of 002 for one of my lenses and my prior prescription was 180. When I got my new glasses things just don't seem as clear and it will take a while before I can get back to my eye doctor to have this checked out. So I just want to understand how different these two axis' are.

There's almost no difference in the axis.
You should go back to the doctor or at least call him to let him know that you're having problems adjusting to the new prescription. Most likely the axis is not the problem.  (+ info)

I have been diagnose with leiomyo sarcoma - does anyone have it. I have had my kidney out and the biopsy show?

I have been diagnose with leiomyo sarcoma - does anyone have it. I have had my kidney out and the biopsy showed that is was cancerous. The tumour was the size of two fists. I also have t have chemothrapy as a bit of i was in my lungs. My health is generally good, as I use to do keep fit twice a week. Does anyone know what the pronosis is.

Maybe it would be better for you to ask where experienced people can give you support as well as answering your questions.

Here's a link to the Macmillan org uk who can give all kinds of help and have information online on leiomyosarcoma, other cancers and help of all kinds. Whatever the prognosis, stay determined and eat healthily to give your body and mind the best chance to fight for recovery. All the very best to you.

The link:


"From our local information and support centres and cancer support groups to our benefits advisers and cancer support specialists, we can help you find the practical, medical, financial and emotional support you need.

Ask Macmillan 0808 808 00 00

If you have any questions about cancer, ask Macmillan. If you need support, ask Macmillan. Or if you just want someone to talk to, ask Macmillan."

Back again! They have active forums and a real time 'live' chat room where you can talk to others there :) On this page of the Macmillan website:
http://community.macmillan.org.uk/forums/  (+ info)

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