FAQ - scleroderma, systemic
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WHAT WERE YOUR INITIAL SYMPTOMS OF SCLERODERMA/SYSTEMIC SCLEROSIS?


IM LOOKING FOR SOME1 W/ SCLERODERMA
WHAT WERE YOUR INITIAL SYMPTOMS OF SCLERODERMA? WHICH KIND DO YOU HAVE?
DID IT GET WORSE B4 IT GOT BETTER OR VICE VERSA? HOW LONG / WHAT DID IT TAKE TO DIAGNOSE THIS FOR YOU?
My symptoms are extremely simliar to:DIFFUSE CUTANEOUS SYSTEMIC SCLEROSIS
please describe for me the order in which your symptoms progressed and severity
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stiff puffy fingers w/ warm to touch hives that ppear when i have pain(stretching, tightening,aching feeling usually accompanied by temp loss of function in the area... also raynauds phenomemenom and numbness/tingling in hands and feet  (+ info)

can you die from systemic scleroderma?


yes, the internal tissues & organs can harden or scar & make normal functioning difficult. just one organ probably wouldn't kill someone, but multiple problems/organs would  (+ info)

My mother was just diagnosed with Scleroderma. How serious is it? How can I help her cope?


She has a build up of collegen on her stomach. The doctor said it was not systemic, it is limited, but im still very worried about her.
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Scleroderma is an autoimmune disease. Autoimmune diseases are diseases in which the antibodies attack normal healthy cells rather than harmful viruses.

I don't have scleroderma but I have sjogren's syndrome, hashimoto's and fibromyalgia (all autoimmune diseases). I can't tell you much except for one thing that is true for all patients with autoimmune disorders: they absoultely need a lot of support and understanding.

This is mainly for 2 reasons: 1. Autoimmune disorders usually cause symptoms, not signs (meaning that what the patient is feeling can't be detected by tests like BP, Heart rate...etc). Often this causes the people around patients to not understand the patients, since nothing can be detected externally or through tests. I always have pain and its not like its something easy for people to understand. It's not like I have diabetes where I can just say "My sugar's at 40". No, this is something only I feel and only I know.
2. There is no cure for autoimmune disorders. The person will just have to live with it. Any medications taken will be simply to relieve the symptoms but nothing to fix the actual problem.

A couple of things to keep in mind:
When it comes to autoimmune disorders (since they're very rare, hard to diagnose, hard to know when there's improvement or no improvement, and no cure), the patient knows more than the doctor. Autoimmune disorders are something you learn to live with. It's a part of daily life. So the patient should learn to know what makes him/her feel better.

Support your mom as much as you can. If she says she's not feeling well, believe her. Although she has the scleroderma in her stomach only it can spread and she can also have another autoimmune disorder (since they're so connected), so if for any reason your mom wants to go to a second doctor or do any extra tests, encourage her to.

I hope this helps.  (+ info)

my dad has systemic scleroderma is there anything that can help him he has worked in the oil business for 25y?


http://www.sclero.org/medical/general/medications/alternative/a-to-z.html
http://www.morehead.org/wellconnected/000088.htm
hope this helps  (+ info)

Does anyone besides me suffer from periodic bouts of depression? I have scleroderma (systemic sclerosis)?


I also have Rheumatoid Arthritis & Sarcoidosis;My lungs are affected (wheezing and shortness of breath), my mouth is much smaller, but generally, I feel pretty good because I know that God is caring for me.
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I think I'd be depressed too if I had your condition.

Try to maybe find a support group of other people with similar conditions.

It's interesting that you mention God though. I can't understand how a loving, caring God could allow people to suffer like that. My only choice is to either believe in an uncaring, indifferent God, or not to believe in one at all.  (+ info)

If anybody is associated with the Scleroderma Foundation or Federation, do you know if there is funding?


In other words, if a scleroderma patient has no insurance, do you know if there is funding available that would help that scleroderma patient?
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Do a little more web research and contact those who're available via internet.
God bless.  (+ info)

what symptoms 1st appear in someone with lupus or scleroderma?


what are the 1st symptoms usually experienced if you are suffering with lupus or scleroderma, do symptoms persist or can they come & go.
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I'll try and answer the lupus one as that's what I know. The symptoms are very wide as lupus is a very individual illness that isn't the same in any 2 patients.

In my case I woke up thinking I had a very bad case of flu. I never went to the doctor as I was always fit and healthy but did so in this case as I really felt awful. I was sent away by the GP who said I should just take some paracetamol and go to bed (she didn't examine me).

The next day I woke up in a pool of sweat and I couldn't move at all. All my joints were swollen and I had a rash on my legs, I also had a blinding headache. A doctor was called and I was rushed to hospital as they thought it could be meningitis. I stayed at the hospital for a week (no blood tests were ever taken!), I was then sent home with the diagnosis of a 'virus'. For the next 4 years, about once a month I would go to my GP describing classic lupus symptoms (I didn't know what lupus was at the time). It was only when the doctor got fed up with me and I had severe joint pains that they referred me to a rheumatologist who immediately diagnosed systemic lupus.

In a lot of the patients we see, the most common symptoms seem to be the exhaustion, depression and joint pains, most people have said they have had them all at some time. Then we all have had some or all of other symptoms such as mouth ulcers, hair loss, etc etc. The symptoms of lupus 'wax and wane' in other words come and go. They can be triggered if you're particularly stressed or even have something as simple as a cold. Lupus can also sometimes go into complete remission (although lupus is currently incurable so it never totally goes away and can be triggered again).

If you read the patient stories on our website you will see that the start in each patient varies http://lupus.org.uk/whatislupus/whatislupus.htm. We will also be launching a brand new lupus documentary in the next few weeks (which will be available for everyone to view free of charge on our website) and again you will see patients talking about how their lupus started and it's different in each case.

Hope that helps a bit.  (+ info)

What are homeopathic remedies for systemic yeast infection?


I saw a program with a checklist for systemic yeast infection. I answered "yes" to nearly every question! I already know about yogurt and probiotics. What other things I should be incorporating?
This is NOT for specific treatment of a vaginal yeast infection, rather an overgrowth of fungus throughout the body. Instead of "homeopathic" maybe I should have specified "natural" remedies instead -- such as certain foods, vitamins, or supplements to use.
Thanks for all the suggestions so far!
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This stuff. 98% kill of Candida Albicans. Triple blind placebo study completed in 1998 and found on Pubmed.org
http://www.microbiologybytes.com/video/Candida.html
Proof that Candida takes two forms and can become systemic.

http://video.google.com/videoplay?docid=-7727934020345992708&q=candida+albicans+video&total=22&start=0&num=10&so=0&type=search&plindex=3 What feeds candida and what starves candida.

What I did. http://www.glycoscience.org is real. Dr. Hudson Freeze used "Mannose" to help improve his genetic patients which is found in aloe and this company has as well. He was angered by the fact that one of his patients dropped out to take this complex from glycoscience web site and as a result, he has been on a campaign to put down the company that sells it because he wants to market glyconutrients. However, he has no patent and Oxford University has taken down his slamming article against the company that sells it, because he is proven wrong.

In the interum, there is a triple blind pacebo study conducted by Doris Lefkowitz PhD who approves of medical dictionaries and this study shows that glyconutrient complex has a 98% kill of Candida Albicans... The mannose alone, has a 45% kill.

Kalos, from your other answer tried to report me to Yahoo as a solicitation and once they saw my answer was helpful they restored my points and my answer.

If you ever see Kalos Orisates answers again, feel free to report him if he calls osteopaths and chiropractors who have earned their degrees and have healed countless people in a non toxic manner quacks.

This yahoo forum is to be of people of quality and its time for people to take charge and report those who slam natural healing to the extent that it is actually harming people, because side affects of OTC drugs is blindness and liver damage.

It is the body, with the proper nutritional tools that are missing in the modern diet that can cure itself. Once your cells recognize the fungus, it eliminates it on its own safely with no side affects from drugs.  (+ info)

What are systemic diseases that cause alveolar bone loss?


I have been slowly losing bone in my jaw over many years. I do not have gum disease. My dentists are perplexed. Despite getting my teeth cleaned 4X a year, they have not been able to control it. I do have a significant open bite, but x-rays do not show evidence of a traumatic occlusion. I have recently seen an endocrinologist to explore systemic causes of bone loss. I have so far ruled out sarcoidosis and osteoporosis. Are there any other diseases I should be screened for? I did find out that I was vitamin D deficient so am taking vitamin d supplements. There are no signs of inflammation on my gums. They are pink and firm.
No, I am not on fosamax. I had a dexascan and my numbers are fine. What type of autoimmune disease causes you to be allergic to your own teeth?
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It could be wisdom teeth coming in combined with lack of calcium/vitamin D that could cause the jaw to recede which together cause teeth compression and bite disortions. A bite disortion will cause the teeth to bite down crocked causing jaw resession from the teeth as well as could cause loose teeth or even pockets of jaw bone to disappear around the teeth roots. I had this situation and I am trying hard to save two incisor teeth. 1000mg Vitamin D daily. 1000mg calcium daily. Exercise is most important for your body will only process food that the body demands from continued exercise. Stop drinking coffe or soda. No more candy/sugar. Drink Orange Juice in morning, milk in morning and night. Rinse/Brush after each meal, and before bed. Hydrate your body with water after exercise. Change the pillow case you sleep on at least each week. Might also change pillows for this could be a nightly source or irritation.
Shower before bedtime too.  (+ info)

What type of physician considers systemic issues?


What type of doctor treats systemic symptoms?

My issues include (but are not limited to) severe scalp eczema, kidney and bladder pressure, intestinal distress. I believe it may be candida or perhaps a food intolerance. I would like to see a doctor that would explore whether or not these issues are all connected.
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I would also say an internist or an allergist, but there are things you can do before you see them to relieve some of your discomfort. Plantain(the herb not the banana like thing) and Slipprey Elm in a tea together (go to your local natural health store and they should have both) in an equal ratio of 2 parts (or cups) of water to 2 ounces of herb will help relieve your eczema nicely. Boil, then steep for 1/2 hour and use both externally(as a shampoo/hair treatment over a bowl...soak for 10 minutes) and internally (drink as you would any other tea). I have also found Garlic and Astragalus root extremely effective for urinary tract infections...take as labeled on the bottle.
However, definitely do go see a doctor for testing as you may also be diabetic...it doesn't happen often, but I have seen these symptoms in diabetic people all together.

I am at windstarhealing.webs.com if you have any other questions...good luck, and be well!  (+ info)

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