FAQ - sea-blue histiocyte syndrome
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How much does a blue baby surgery cost?


I need to know what the cost is to treat blue baby syndrome. Please help me!!! You can just give me the reference and I'll check it out.
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Sorry, I couldn't find the cost on-line. I include a link to a children's clinic in Texas (no idea where you're from though....) with a complete description of the procedure, risks etc. Perhaps you could e-mail them for more info. If you have insurance, you should probably call them up.

Also, you might consider that Blalock-Taussig shunt (which I think is what you mean by blue-baby operation) is a temporary measure to restore adequate blood-flow for babies with congenital heart defects like Tetrallogie-de-Fallot. Usually, the child will need other surgeries to correct the defect, which you should factor in to your estimation of costs....

Hope this helped !  (+ info)

Pink, Black Charcoal, or Navy Sea Blue Pea Coat?


I'm getting a pea coat soon and I'm not sure what color I should get? HELP!
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Black is nice and classic i think it is cute to. but i think theese would be more interesting http://www.blue-platypus.com/upl_images/products/pink%20hound%20coat%20nm.jpg
http://content.next.co.uk/images/Press/PressPreview/w/RGB/022.jpg
http://cdn.llbean.com/products/womens/42367/images/M42367_Black_Herringbone.jpg  (+ info)

Blue Baby syndrome?


I need to breifly summarize blue baby syndrome (in about a sentence). I know wikipedia says something about a layman's someting but I need something simpler. Anyone have any ideas? Is it a circulation problem?
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I always thought that it was when the baby heart wasn't working and the oxygen level was low and the skin was bluish in color.

BUT AGAIN>>>>>>>>that is what I think, NOT what I know it to be.

google it or go to ask.com  (+ info)

blue rubber bleb nevus syndrome is 1 in how many births?


blue rubber bleb nevus syndrome is 1 in how many births? This is a gentic disorder by the way. Thanks sooo much in advance!!!!!!!!!!!!!!!
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only 150 cases recorded world wide.  (+ info)

what is the treatment for blue rubber bleb syndrome?


Medical Care: No systemic therapy is currently considered a standard of care. One report indicated the successful use of interferon-beta to treat the manifestations of disseminated intravascular coagulation in one patient with disseminated skin and GI venous malformations.

Surgical Care:

Cutaneous lesions
Cutaneous lesions do not need to be treated, unless they are cosmetically unacceptable or functionally troublesome. There has been no reported malignant transformation of BRBN.
Methods to remove lesions include electrodesiccation and curettage, liquid nitrogen, and excision. These modalities often lead to recurrence or healing with a hypertrophic scar. Successful treatment without scarring has been reported with the use of the carbon dioxide laser. Treatment of 225 lesions without recurrence was reported with the use of the carbon dioxide laser.
Extracutaneous lesions
Bleeding from GI lesions usually is managed conservatively with iron supplementation and blood transfusions when necessary. Endoscopic coagulation or removal is an effective modality for repeated bleeding. Experience with endoscopic sclerotherapy suggests that it is ineffective and complicated by the development of ulcerations and strictures. Endoscopic laser (Nd:YAG) photocoagulation has been used successfully for lesions in the alimentary tract. When traditional methods fail and the vascular lesions are confined to a segment of the GI tract, resection of the involved segment of gut may be indicated. This approach should be used with caution because recurrences may occur after excision. Diffuse and scattered lesions or those where operation is not feasible should be treated conservatively.
Orthopedic lesions are managed with orthotics and supportive measures, unless impaired function necessitates surgery.
An 8-month old infant with bleeding hemangiomas of the rectum and colon was successfully treated with argon plasma coagulation. This treatment resulted in long-term success.
In one report, an aggressive surgical approach to treatment was attempted in 10 patients. GI venous malformations were identified endoscopically and then treated by wedge resection, polypectomy, suture ligation, segmental bowel resection, or band ligation. Only one patient developed recurrent GI bleeding.
Consultations:

Patients should be referred to a gastroenterologist for management of GI manifestations as needed.
Referral to an orthopedist can assist in the care of patients with bone or joint involvement.
Symptomatic patients should be referred to the appropriate specialist depending on the organ system involved.
In cases with familial occurrence, patients should be referred for genetic counseling.  (+ info)

Blue Toe Syndrome?


how do you treat blue toe syndrome and how long does it take for it to go away.
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Anticoagulant therapy  (+ info)

What is the syndrome called that affects children giving them culry blonde hair and blue eyes, without eyebrow?


What is the syndrome called that affects children giving them culry blonde hair and blue eyes, without eyebrows? I saw it on TV a while back but cannot remember the name of the syndrome.
IT IS NOT ALBINISM!! Seriously guys, be smart about this. Being albino does not affect your hair structure or body hair. thank you Ranchika. it's extrememly similar to what i'm talking about. not quite but it gives me a great place to continue looking!
I found the answer, it's called Cardiofaciocutaneous Syndrome or CFC. Here's a link http://www.truveo.com/Rare-lookalike-disease/id/3063487623#
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Ectodermal dysplasia seems to fit your description rather well. The symptoms include excessively curly, light hair, absent eyebrows. Actually there are many genetic disorders and syndromes relating to absent eyebrows.

I can say that it is not albinism. Albinism does not include the symptom of missing eyebrows. One of my former coworkers is an albino and she does have eyebrows... and she doesn't have blue eyes. Her eyes are actually red because she has absolutely no pigment in her eyes. Her hair is perfectly white too.

You can always type in symptoms at Wrong Diagnosis to see if these fit what you're looking for - this link includes eye, hair, and absent eyebrow symptoms.

http://symptoms.wrongdiagnosis.com/cosymptoms/absent-eyebrows/eye-symptoms/hair-symptoms-all.htm

Hope this helps.  (+ info)

What is the name of the syndrome that the person may appear to have facial characteristics of down's syndrome?


I previously watched a documentary about sufferers of a syndrome whose facial features appeared to be down's syndrome but it wasn't down's syndrome. The grow to be quite large adults and have special needs. Does anyone know the name of this condition?
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Klinefelter syndrome  (+ info)

Are there different types of Down syndrome and what areas of the body does Down syndrome affect? ?


Also, are there any significant statistics related to Down syndrome? Has Down syndrome received any recent attention from the media? Are there any famous people that have Down syndrome.
Answer as many of the above questions as possible.
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There are three types of Down syndrome, garden variety Trisomy 21, mosaicism and translocation.

Read more at:

Welcoming Babies with Down Syndrome (English, Spanish, French)
http://www.bellaonline.com/articles/art32534.asp

There is a slide show that also incorporates videos of the featured 'More Alike than Different' cast at the National Down Syndrome Congress website:

http://www.ndsccenter.org/morealike/flash/

And great information at the National Down Syndrome Society website:
Down Syndrome Fact Sheet
http://www.ndss.org/index.php?option=com_content&view=category&id=35&Itemid=57

You might also enjoy

Margaret's Guide to Down Syndrome
http://www.patriciaebauer.com/2007/05/12/margarets-guide-to-down-syndrome/

For bios of actors with Down syndrome, see:

Down Syndrome and the Acting Gene
http://www.bellaonline.com/articles/art34198.asp

and

DS in Arts and Media
http://www.dsiam.org/

and

Michael Johnson
http://www.users.psln.com/sharing/Michael/mainMichael.html

and

Sujeet Desai
http://www.sujeet.com

Down Syndrome Links at the Family Village website
http://www.familyvillage.wisc.edu/lib_down.htm

Check out this recent New York Times article:

The DNA Age: Prenatal Test Puts Down Syndrome in Hard Focus
http://www.nytimes.com/2007/05/09/us/09down.html

Have fun with your research!
  (+ info)

What is so bad about having down syndrome?


I think people are a lot colder than they want you to believe. Too many pregnancies prediagnosed with down syndrome are terminated! Doctors tell people that their kid will be like some animal and people believe them. I've met my share of people with down syndrome, and they all seem pretty human to me. On top of that, they were all decent folks, which is a lot more than I can say for the general population. And how does knowing that unborn children are purged because of down syndrome affect those who were born and have down syndrome?
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WOW!! I'm so glad that there are other people who's lives have been touched as mine has. See when I was 28 I gave birth to twin girls and one of them was born with Mosaic down syndrome. Of course, I didn't know much about it til now....and yes I was shocked. They are 14 months old now, and such a blessing as well as my two boys. My daughter is about 4 months behind in her milestones, but she is always so happy! Out of all my kids she is the easiest to handle.

It's always nice to have other people, who see that they are more alike, then different from the rest of us.  (+ info)

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