FAQ - urticaria pigmentosa
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Does anyone else have urticaria pigmentosa?

I have this skin conditon called urticaria pigmentosa and its quite rare but other people do have it. I was just wondering if anyone new anyway to help hid them because im coverd in pink freckles. Its because my body produces to much histamene so i have to take antihistamenes everyday. I would be very greatful if anyone could help.

I had not heard of this until I seen your question posted so I looked it up on Wikipedia and found the following information. There is a lot more there and I put the address at the bottom in case you want to look it up and read more of the article. Good luck.

[edit] Irritants
The following can worsen the symptoms of Urticaria Pigmentosa:

Emotional Stress
Physical Stimuli such as heat, friction, and excessive exercise
Bacterial toxins
Eye drops containing dextran
The classification of NSAIDs can be disputed. Aspirin, for example, causes the mast cells to degranulate, releasing histamines and causing symptoms to flare. However, daily intake of 81mg aspirin may keep the mast cells degranulated. Thus, while symptoms may be worsened at first, they can get better as the mast cells are unable to recover.

This is from "The Skin Site":
Patients with urticaria pigmentosa should avoid aspirin, codeine, opiates, procaine, alcohol. polymyxin B, hot baths, and vigorous rubbing after bathing and showering. These can release histamine which can cause itching, flushing and hives.

This is from "DermNet NZ":Treatment
Urticaria pigmentosa is not serious, and does not require any treatment in most cases. However the following can be helpful.

Oral antihistamines

Mast cell stabilisers
Disodium cromoglicate orally may be helpful in some cases

Low-dose aspirin
Paradoxically, this can help some patients, but must be taken cautiously as aspirin can also worsen symptoms

Topical steroids
Potent steroid creams applied for several months under occlusion can reduce itching and unsightliness, but the patches tend to recur within a few months. Topical steroids are only suitable for limited areas.

This form of ultraviolet radiation is the most effective treatment for adults with urticaria pigmentosa. Two or three treatments each week are required for several months.

PUVA lessens the itch and improves the appearance. The urticaria pigmentosa is likely to recur within six to twelve months but the treatment can be repeated.

Interferon An expensive treatment appropriate only for the most severely affected individuals  (+ info)

Does anyone know about the skin disease Urticaria Pigmentosa?

Okay I have this skin disease that makes you break out and mostly children get it and I had it when I was smaller and they said it would go away and it did but then I got pregnant and it came back and I'm not pregnant anymore but it is worse now all the things that I have read about it say that if adults have it then they should go get blood work done. I want to know what you think and also if it is heritatry? (I'm not sure if I spelled it correctly.)

HI, I am sorry that I don't really know what to tell you, However I have pasted two resources below that deal with Urticaria Pigmentosa and they will be able to hellp you better. Take Care and HOpe all is well very soon! :)

NIH/National Institute of Allergy and Infectious Diseases
9000 Rockville Pike
Building 31A
Bethesda, MD 20892
Tel: (301)496-5717
Fax: (301)402-0120
Internet: http://www.niaid.nih.gov/

American Academy of Allergy Asthma and Immunology
611 East Wells Street
Milwaukee, WI 53202
Tel: (414)272-6071
Fax: (414)276-3349
Tel: (800)822-2762
Email: [email protected]
Internet: http://www.aaaai.org  (+ info)

Does anyone know if corticosteroids help urticaria pigmentosa?

Topical cream might help relieve the itching.  (+ info)

my six month old son has urticaria pigmentosa. Are there any safe topical medications that I can give him?

He is too little for an oral antihistamine, is there anything out there that is mild and safe that can be applied topically?

Talk to a pediatrician first, then a dermatologist if you have to.  (+ info)

is the use of diphenhydramine tab during pregnancy result to urticaria pigmentosa in newborn?

Ask your doctor. If you are that nervous he/she will do an amnio. When I was first pregnant the test came up negative and the Dr (Dr. Idiot) said I was a bit swollen in there. He put me on meds for a yeast infection, meds to induce my period and the pill all at the same time. After 2 days of the medication I knew something was up, I just KNEW i was pregnant even though the test was negative. So after the pregnancy was confirmed I told my new doctor that Dr Idiot had me on all these meds and they recommended an amnio if I wanted. Everything was fine, but I needed that peace of mind instead of spending the rest of my term worrying about whether something will be wrong with my child.  (+ info)

Dermatologists: Urticaria Pigmentosa - Cure or Fade?

I am 27 and have had this since mid-teens.
New spots are appearing and I first of all wondered if there is anything I can do to stop this?
Also, I wondered if there is anything you can suggest to fade the ones I already have?

I didn't have the pigmentosa part but had urticaria for over 10 years. It went away when I went on a gluten free diet following a diagnosis of celiac disease.
There are two conditions, celiac disease and dermititis herpetiformis that are linked to an intolerance of gluten which is found in wheat, rye and barley. It would be worth a trial gluten free diet to see if it helped you.
I have been gluten free for five years and not had any further problems.
Good luck and hope you find a solution.  (+ info)

How is Chronic Urticaria of children removed?

The age of the child is nearly three and half year. At the age of one and half month it was suggested by Doctor that she is having Atopic Dermatities. Recently she has been suffering in Urticaria since three months. She is taking either Atarax or Alegra tabs in specified dose. But, the same is not completely removed. Please help me in solving the problem.

http://www.childrenshospital.org/az/Site1730/mainpageS1730P0.html  (+ info)

How do I get permanently ride of Cholinergic Urticaria cause by heat?

All of a suddenly 2 days ago I got a itchy rash all over my body and I found out it's Cholinergic Urticaria. I'm pretty sure it's cause by heat because whenever it get a little hot I break out everywhere. What medication should I take to get ride of it. Is there a way to get ride of it forever?

Taking an antihistamine before you expect to get heated up (exercise, hot shower, etc) will help. If you take it afterwards, it won't work, as the "horse is out of the barn." This is a strange disorder, in that it comes on out of the blue; but luckily, it also goes away spontaneously, too. However, it may take a couple of years for it to do that.  (+ info)

Any alternative remedies for urticaria, Ive been on antihistamines for ten years and would like to discontine?

Dont feel taking antihistamines is the right way for me to go - having several general well being problems and want to come off all medications but do suffer with hives. Anyone know of an alternative to antihistamines for urticaria?

Homeopathy (200C):
Take Apis if the hives are red, burn or itch intensely. Take Natrum muriaticum for chronic hives, especially if they are white. Take Rhus toxicodendron for very large red hives with some itching. Take Urtica urens for hives on the scalp and other places that burn and itch intensively. Take Arsenicum album for burning hives and chilled feelings.

Taking 500 mg of quercetin twice a day helps to clear up hives and stop itching. Quercetin is found in onions, apples, and leafy vegetables and is a natural antihistamine.

Apply mint ice cubes to the skin also relieves the itching. Mix two teaspoons of crushed fresh mint leaves, pour boiling water over the leaves, cover, and let it sit for five minutes. Strain the liquid, pour it into an ice cube tray, and freeze. Then take the cubes out, put them in a freezer bag, cover the bag with a paper towel or cloth and apply it to the hives.

Essential oil:
Sandalwood essential oil helps to stop the itching and provides a soothing sensation to your skin. Add 20 drops of sandalwood essential oil to one ounce of a coconut or almond oil and apply it to the skin every three or four hours.

Best of luck.  (+ info)

Can I get a tattoo if I have dermagraphic urticaria?

I have chronic urticaria, cholinergic, cold and dermagraphism, I take an an antihistamine daily which keeps it at bay but I've recently been thinking of getting a tattoo and wondered if anybody would know if it would be possible. Would the swelling make it difficult for the tattoo artist? Should I expect any long term problems?

Trust me on this one, it won't be worth giving it a shot. You could take extra antihistimines but since you've never had a tattoo, you don't know how your skin will react to the dye from the ink or the irritation from the needle.
Some people with this condition report that ink tries to come out of the skin during the healing process so you can get a 'blur' effect or a lighter tattoo. If your body is naturally fighting allergies and reacts to what the 'average' person can handle, then it only makes sense that this kind of irritation and ink would cause a pretty serious swell reaction not just during the actual tattoo but also during the healing stage, which causes a lot of response from your skin (redness, itching, flaking...like a really bad sunburn). Each persons' skin is different but those who are susceptible to irritated skin reactions may not end up with a good tattoo.
My advice (if you're hell bent on it) would be to try a small one in an area that's not visible to see how it heals and how your skin reacts. I've heard a lot of stories that ink can't 'heal out' of your skin once it's there, but I've also seen a lot of tattoos that have varying degrees of darkness and sharpness based on healing and after care.
So do yourself a favor and skip it...the main reason being that a bad tattoo is worse than no tattoo at all in a situation where you can't be sure if it will heal or take properly.
Also, if you go through with it, take those extra antihistimines and tell your tattoo artist before to ask his advice. Some artists guarantee touchups if it heals improperly which may also help you. Good luck...think it through because tattoos are forever and if you have a bad reaction...it's one you'll never forget, that's for sure!  (+ info)

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